New to Board & In Pain

Discussion in 'Fibromyalgia Main Forum' started by Susiem, Aug 18, 2003.

  1. Susiem

    Susiem New Member

    I am new to the board but not to FMS. I have been in a major flare up for the last 5 months. Going to PT and even changed doctors in hope of relief. I have degenerative disks and bone spurs also in lower back. Just pretty miserable and desperately want to feel better. I have a 13 year old daughter and I have to be there for her. Is there a comprehensive book somewhere that will tell me all the things I need to do to help myself? I work and want to be able to continue but it is not looking good. All my life I have been the one to care for others now there is so much I cannot do. Today I took my daughter swimming and the pool did not have steps just ladders. I was afraid to go in the pool because I feared, with my back, that I could not get out. The sadness of my lost independence is overwhelming. Without my daughter at home I think I would just give up but her smile makes me go on. The pain just rules my life.
  2. Shirl

    Shirl New Member

    Hi Susie, welcome to our world. So glad you have joined us.

    As for a book or books, the very best to a lot of us is;

    'Fibromyalgia & Chronic Myofascial Pain Syndrome (A Survival Manual)' by Devin Starlanyl, MD.

    'The Fibromyalgia Advocate' same author.

    'Fibromyalgia & Chronic Myofascial Pain (A Survival Manual)' Second Edition. Same author.

    Devin Starlanyl has Fibromyalgia, so her books are the best to me. She is writing from her own experiences with this illness. I have learned a lot on how to help myself with these books. She also has sections in them on what to tell your doctor, and charts of the pressure points, and different treatments that help. But keep in mind, there is no cure out there yet.

    Most of us were the ones who helped everyone else, and were independent. For some reason it seems like most people who are stricken with this were all very active people.

    I am happy to hear that you have your precious daughter, I can 'hear' in your post that is what is making you fight for your health, good for you!

    I believe that is one thing we all have in common, we are fighters otherwise we would not make it with this pain, and the rest of what goes with this illness.

    I have been 'battling' this illness now for over 20 years, and since coming to this board, I have not had so much help and relief from this miserable illness in all those years.

    Again, welcome to the board, and I do hope we hear from you often. Any questions, just ask we will try to answer them for you.

    Shalom, Shirl
    [This Message was Edited on 08/18/2003]
  3. pegasis

    pegasis New Member

    Hi there Susiem. First off, welcome to the fibro site. This is a wonderful place to hang out and give and get help.
    I also have severe spinal problems along with fibro and cfs. I have found that the only thing that helps me to be able to keep moving is 1) Gentle excersise. Walking or swimming are good. Just do it in moderation and start slow. and 2) pain medication. I take 2 ultram with 1 extra strenght tylenol four times daily. It keeps the fibro from making me stop altogether. Also, it helps my back some. I have a very hard time bending or walking because the pain is in my lower back. They can't do anything more to help me so, I just have to do the best that I can. Talk to your doc about what pain meds are best for you. Not everyone can take ultram and it doesn't work for everyone either. I like it because it doesn't make me stupid so that I can go to work and take it and not worry. The main thing is to talk with your doc and find out what can work for you best and discuss side effects or reactions with other meds that you may be on.
    Also, I am sure your daughter understands what you are going through. You are being a wonderful role model to her right now. She sees how much pain that you are in and that you still try to do some of the things that you love. You sound as though you are keeping your head up and that is one of the best things you can do for her. You are teaching her that no matter what happens to us in life, that you keep going and don't give up. So, my hats off to you and I hope that I meet you in chat. You sound like a great person.Huge hugs, Melody (pegasis)
  4. Susiem

    Susiem New Member

    Just to have someone to understand made me cry. I will try to get the books you suggested. I have had FM for about 10 years but the disk problem is new and I just felt overwhelmed. Thanks again.
  5. Mikie

    Mikie Moderator

    Welcome to our board. This is a wonderful place to learn about our illnesses and treatments. Are you seeing a pain specialist? I highly recommend finding a good one if you are not seeing one now.

    Love, Mikie
  6. Therrell

    Therrell New Member

    I have exactly the same thing as you. The disc do hurt very much. I have learned that the 2 things that make me hurt really bad are sweeping and vacumning. I am going to a Pain Clinic and have an appointment to go and have some epidural shots ( I think of a coritzone type med.). There are no qurantees, but that is one you can try. I would also try and find a Pain Center near you. There are 3 in the area where I live and non of the three are listed in the phone book as a "Pain Clinic". They were listed as the Dept.of Anesthesia. I hope that I spelled that right. Usually if you call the hospital they will know. Good Luck and you are not alone. I'll let you know how I am doing after my shots."HANG IN THERE".
  7. beeleaf

    beeleaf New Member

    I've only been around here a few days myself, but wanted to say howdy. I also have degeneration in neck and lower back & am in "just shoot me" mode right now. You're not alone!

  8. keeponsmiling

    keeponsmiling New Member

    I'm new to this board and I don't have FM, but I can sympathize with your situation. I have CFS and I know what you mean about wanting to be there for your daughter. It's so frustrating when we can't do the things we want to with our families due to chronic pain/fatigue, etc. :(

    Hang in there. And I hope you find something that works for you.

    All the best,


  9. miggle

    miggle New Member

    Hi Susie. I'm new to the board too and not new to FMS.

    I too have a 13yr old daughter that I need to be there for. You have my sympathy and understanding. The disk problem alone is horrible. I keep hearing exercise ... keep working through the pain. That's just too easy to say but not do.

    If you find a book, let me know. There is so much information, misinformation and different variations that work for different people it is just overwhelming to find answers... but I believe that they are there.

    I wish you the best, though. You are wonderful for doing all that you do for your daughter. She is lucky to have you, even if she may never realize just How much you're being there for her takes out of you.

    Take good care of yourself.

  10. tlc8858

    tlc8858 New Member

    Hi Susie. I too have disc problem with my back, along with fibro. Sometimes the two of them together is too much to handle. I had a doctor give me a sheet of easy back excercise that help a little. They are simple stretching excercise. You might ask your doctor to help you with that.
    There are a lot of good books out there. Just go to Amazon or a similar site and check them out.
    Hope you feel better
  11. Susiem

    Susiem New Member

    Thanks for all the understanding and good advise. Just having someone to talk to helps.