New to Board, New to DX

Discussion in 'Fibromyalgia Main Forum' started by slymommy4, Oct 11, 2005.

  1. slymommy4

    slymommy4 New Member

    Hello Everyone,
    I am so happy to find this board. I am so sad and really am in need of support. I am sure that everyone has heard these stories 1000 times so I am grateful for anyone listening to me.
    I have just recovered from a severe kidney disease that has completely wiped me out... However, my kidneys have improved but I feel worse than ever. My rheumatoid factor levels were very high but RA was ruled out. My rheumatologist told me that I have FM due to fatigue, tender points, and so many endless symptoms. I have done a lot of my own research and I am convinced that I have do have FM. I have actually thought this for some time even prior to the kidney disease. It seems as if the kidney disease brought on a major flare up though. I am always exhausted and in pain.
    A little background.... I am 31, my name is Jennifer, I am married with four children (9,7,5,2) I work full time and SOMETHING has got to give. I feel as if I can hardly go on another day.
    The rheumatologist told me that yes I do have FM but it is basically in my head and is just something I have to deal with. There is nothing that can be done. I need to learn to live with the pain. I left his office in tears because I can't fathom the rest of my life this way. I am continuing to work but that is becoming impossible.
    I know I need to see a specialist but not sure how to find one.
    I guess I have rambled enough. I just need to talk to someone. My husband is supportive but does not understand what is happening to my body. I think he alternates between believing me and not.
    Thanks if you are still reading. I know I am rambling and not making much sense.
  2. MamaR

    MamaR New Member

    Just checked in and saw your post. I truly can relate to the doctor thing. I have had fibro for many years. I would suggest that you talk to anyone that will listen, and try to find a good doc near you. Don't let the docs intimidate you. Just let them know right up front that you are sick. You will be able to tell if they want to help you, if not move on to another, eventually you will find help! I am still learning, but we have to take charge of our bodies, as we are the only people that knows how it feels! There are so many nice people on this site! We are all in this together. Always feel free to vent because we can relate. I will tell you I have found such strength here. Just wish that I had found it sooner!
    God Bless you and good luck!

  3. Pianowoman

    Pianowoman New Member

    A new diagnosis of Fibro can be very overwhelming. and you have so much to cope with as it is. This is the best place to come and get information and support. It is a great place!

    As has been said, you don't have to put up with the pain and it is NOT all in your head. Many of us have been told that too. If you keep reading and asking questions here, you will learn a lot. Education is a real key.

    There is a Doctor referral at the top of the page where you might find someone in your area.

    Hang in there. You will find a way out of the pain and confusion.
    All the best.

    Kathy.

  4. slymommy4

    slymommy4 New Member

    Thank you! Thank you! Thank you! Yes, I am exhausted and I am thinking that I need to make some major life changes. My main job is to be a mommy to my 4 children and right now I can hardly walk from room to room. The pain is intolerable and the fatigue is overwhelming. Just having someone to talk to and who understands is a blessing that I can't even describe.
    I was so thrilled to check this site and find that 3 of you responded so quickly. THANK YOU!!!!
    I am looking forward to getting to know all of you. I will be a very frequent member I am sure.
    Jennifer
  5. CatsKimber

    CatsKimber New Member

    You should have some peace now... finding this place and knowing you're not alone and that it's NOT just all in your head. most doctors are very ignorant. if you can, keep trying till you find one who understands Fibro. don't give up and don't listen to the ones who try to make you feel bad.

    You're not alone, sweetie, hang in there!
  6. JLH

    JLH New Member

    Welcome to our board/support group, slymommy4! So glad that you found us, but hate that you feel as crappy as the rest of us!!

    I can't believe that your rheumy talked to you the way that he did, because HE is supposed to be the specialist for fibro!!!

    There is not much you can do for the fatigue, or at least I have discovered anything but pace yourself to save your energy.

    There are things that you can do for the pain. There is a non-narcotic pain med called Ultram or Ultracet that is frequently given to fibro patients. Also, patients are normally started off on a small dose of Elavil at night to help you get a better night's sleep. I started out on that but it made me too sleepy (I had an unusual reaction to it) and now take a muscle relaxer, Zanaflex at bedtime.

    I also take Cymbalta and Neurotin during the day to help with the pain.

    The hard part is working full-time, then coming home to small children and a husband. I worked for 30 years, raising 3 children and a husband (I include him as one of the kids!!!!!). I am now retired, my children are all out of the house, and feel better now than when I worked because of less stress, etc.

    Keep researching fibro, asking a bunch of questions here, and look for a doc who is familiar with fibro.

    A few hints: When typing posts here, try to space in between paragraphs so it makes it easier to read. Also, when you post something, there is a small box under the "Post this" bar that you click on that you can check to have an email sent back to you every time that somebody replies to your post, then you don't have to keep checking all the time to see if anyone has replied!

    Hope to be talking with you often!!

    Hugs,
    Janet