New to board

Discussion in 'Fibromyalgia Main Forum' started by mabeckoff, Apr 18, 2012.

  1. mabeckoff

    mabeckoff New Member

    I am new here. I am a 52 year old SAHM. Right now I am in CA, after having lived in NC for 4 years. I am originally from NY.I was DX with fibromyalgia in 2007 after I had a slight car accident . In 2010 , I had first scoliosis surgery . In 1/11, I had neck surgery , having 3-4-5 fused. At that time, my surgeon had to go back in and do an emergency surgery because my spinal cord was being pressed against my nerves. My spinal cord was injured during that emergency surgery. Then in March, I had a broken rod. This was all in NC.In April, 2011 , we decided to move to CA for my DH's job. From my scoliosis forum, I found a wonderful surgeon at the University of CA at Irvine , who has done the best job for me that anyone could do. He did 3 surgeries on me in 2011. I am fused from C2 to my pelvis.I have been in constant pain since my surgeries. He have tried everything to help me. I am finally getting to see a fibromyalgia specialist at the University of CA at Irvine. I have an appt May 7th with her.I cannot wait to see her. I am taking Cymbalta and Lyrica , both at full maximum strength .
    I also have sjogean's syndrome and diabetes,
    Thanks for letting me join
  2. gb66

    gb66 Well-Known Member

    Welcome to the board. I'm glad you found us. There are a lot of nice people on here and lots of support. I'm sorry you're having so much trouble. My granddaughte has had the surgery for scoliosis also. She has Marfans Syndrome and had lots of spinal problems.

    She's had several surgeries too. I remember when she had the first one they had to do another to make a correction from the first. I guess that happens a lot. She has metal plates in her spine and has had breast augmentation on one side. Her ribcage was protruding also.

    I don't think she's had any problems with pain like fibro though. She's 24 years old now.

    I was just diagnosed with type 2 diabetes last April. It's hard to cope with so much. I just posted a few minutes ago about a tooth extraction I'm facing today.

    I hope you feel better soon and have a good day. GB66
  3. rkidd3423

    rkidd3423 New Member

    Glad you found us Melissa! These diseases are definitely no fun. I have fibro, myofascial pain syndrome, polycystic ovary syndrome, acide reflux, irritable bowel, arthritis, TMJ, etc. One thing I have learned is I have to stay positive because it has an overall affect on my health. I feel better when I take 1 day at a time and make the most of that day!

    I really hope the doctor can help you! Please keep us updated on how you are feeling!!

  4. Mikie

    Mikie Moderator

    Sorry for all you have gone though. I hope you like your new doc and he can help you. You might want to ask him if he knows about the peptide injections from Oxford University which are helping some of us. It's new in the US but has been around Europe for more than 30 years.

    Glad you found us. Keep us updated and good luck to you.

    Love, Mikie
  5. Saoirse3

    Saoirse3 Member

    Small world! We moved from San Diego to Winston-Salem! Lived 12 years in California and 6 in NC. My parents lived right by LAX for years! Then we made the BIG move - to Alaska! We moved because DH was offered a job at double his salary, plus benefits at a time when we needed medical insurance and employment. I have to say, it's been an adventure!

    I am diabetic too, and have liver disease, which went undiagnosed until I came to AK. However, it was a trade-off because my PCP "doesn't believe" in fibromyalgia. I told him "Well, it believes in ME!"

    Goodness, it seems like you have had your share of problems as well! Bravo for keeping a positive attitude! It's SO hard at times.

    I take Lyrica but I had to stop the Cymbalta because it made me more depressed than ever and I gained 70 pounds. Stopped taking it, felt happy again and I have lost 40 pounds. So it wasn't for me. I am really chemically sensitive and a lot of times meds do the exact opposite for me. This disease has been really crazy at times. Or maybe it's me! My family thinks I have a warped sense of humor. I told them at least I HAVE a sense of humor! LOL!

    I love to read, write, learn new stuff and play with eagles. No, REALLY! I volunteer at Bird TLC, which rescues and rehabilitates Alaska's wild birds. And while I don't "play" with them (you don't play with a 15 pound bird, with a 7 foot wingspan and feet that could rip you in half!) I HAVE been in the same cage, tube-fed them and given them medications. You tend to forget your own pain when something so magnificent is injured and looks at you pleadingly. It can't tell you what's wrong. It can only trust that you will help. And then comes the day when you take the crate, open the door and they fly up to the clouds, dip their wings as if to say "Thank you!" and take off. And you say to yourself "You're welcome!"

    So welcome, make yourself comfy and know you're among friends!
    Soft hugs,
  6. kch64

    kch64 New Member

    Sorry you have so much pain. Welcome to the board. We are all here for each other.