New to Boards--Social Security Disability Question

Discussion in 'Fibromyalgia Main Forum' started by ljm527, Feb 18, 2006.

  1. ljm527

    ljm527 New Member

    Hi Everyone. I am new to this board and am trying to read as much as I can to continue to educate myself on a number of medical conditions I have. Since I am recently being evaluated and treated for more of my fibro issues, I have come here for support as well.

    I have a lot of medical issues going on and have not been able to get the pain, burning, stiffness, and inflexibility under control. I am coming out of denial and have applied for SSDI. I am dealing with RA, OA, Osteoporosis, Ankylosing Spondylitis, Fibromyalgia, RLS, Raynauds, etc. Does anyone know if multiple disabling diseases and age will make the decision from SS go faster. I am almost 59.

    Thanks; sorry for the long note.
  2. ruru1992

    ruru1992 New Member

    Hi! I'm new to the board too.I've been through the SSDI process.It can be discouraging.Most people are denied on the first application.I did get an attorney.I was denied twice, but received it before a hearing.They put a lot of weight on doctor's reports.I wrote my congressman in Virginia & he assisted me alot & it also made the process go much faster.Good luck to you!
  3. Pianowoman

    Pianowoman New Member

    For more answers
  4. 69mach1

    69mach1 New Member

    but i got approved on the intial claim when i was 40..i turned 41 last xmas...

    are you still working?

    do what you can...

  5. bapakay

    bapakay New Member

    Welcome to the boards!!! This is a wonderful place and you will learn so much!! I call it "my soft place to fall".
    When family and the world do not understand all the time, you can come here and be accepted and guaranteed that someone else has gone through the same thing. We all walk in comman shoes along similiar paths!!!
    I definitely think you have alot going for you!!! Your age and multiple diagnoses will be in your favor, especially if you have a good work history!! Remember when you fill out your paperwork on your daily activities, approach it as one of your down days, as you never know when those will come and there seem to be many more of them: just depends on the stage of your diseases.
    I won SSDI on the first time. I was 57. I have almost the same diagnoses as you-most recent-spondylitis for which I am taking Methotrexate!! Many on this board take 2-3 times to win SSDI and had to end up hiring an attorney! I cannot give you advice on that.I have heard that many obtain an attorney after first denial of SSDI.
    As far as denial goes, I think all of us fight so hard to accept our health issues and learn in time to deal with them. I lost my career as an R.N.! It has been so hard to give up my passion but it was to getting to hard to do the bedside nursing at my age and especially the several years of pain without a diagnosis!!! I am still trying to figure out what I am supposed to do now!!!!
    So, it is good to have you on board and let us know how you are doing!! Everyone here cares alot!!!! Bapakay
  6. ljm527

    ljm527 New Member

    I too am on Methatrexate for the RA and Spondylitis as well as prednisone and folic acid. I used to take Vioxx and Enbrel but got a near fatal rare blood disease called TTP (thrombotic thrombocytopenia purpura) (thought to be caused by the Enbrel) and spent 2 months in the hospital with plasma pheresis treatments. So I can no longer take any of the TNF blocker miracle drugs and other anti-inflamatory drugs. So the only pain killer I am allowed to have is tylenol, which doesn't work, so I live with the pain and inflexibility. So I can no longer take any aggressive meds. I worked as an Administrative Assistant/Office manager for 40 years up until last June and can't manage work and myself anymore. So I am hoping to just manage my health which seems to be a full-time job.
  7. pemaw54

    pemaw54 New Member

    You have come to the place of love, acceptance, and lots and lots of friends. Ive been turned down 2 times. Now it goes to the judge. If he doesnt sign it, I have to go before the judge(not looking forward to that. You know we look healthy) I dont have all of the problems you do. I believe it is worth your time and money to have help with the process. Good luck

  8. achy

    achy New Member


    I'm 44 and got by disability 2 yrs ago. If there I one thing I learned going thru the process, and listening to others at this site and a few attorneys...

    What matters in the long run...the judge that gets your case. You can have the best medical records, several illnesses, and a fantastic attorney. But, if you get judge grumble butt that believes unless you are in a wheelchair or blind you can work, forget disability.

    I hate to rain on ya, but that's how it is. You need a great doc to support ya...he will get all the tests you'll need and fill out the paperwork. You need to PROVE your case on paper...with tests that show your disabled. MRI's CT scans are the best. They are indesputable proof that there is a problem. Then pray.

    I wish you well, keep perservering!!
  9. NifferA

    NifferA New Member

    I think there were several things that helped me get approval quickly.

    1. Thorough, complete medical records.
    2. Following up with the disability examiner to make sure they received the records. (I had to call several times and send in records myself. Don't count on the doctors to send them). This is very important!
    3. A complete (and exhaustive) application. I bought a book with worksheets and I completed them before going online and completing the application from SSA. I completed it with all of the emotion I could muster. It is so tempting to down-play our illness with others. This is one circumstance where you should lay it all out there. When you are suffering, you need to communicate that, otherwise, your application is just a bunch of medical records without any human connection.
    4. I documented all of my ailments and had medical records to back them up.
    5. I had records from more than one doctor, including specialists.

    Good luck!
  10. greenlynn

    greenlynn New Member

    about a website, can you tell what it is thanks
  11. zerped

    zerped New Member

    I just had my hearing before a judge two weeks ago, so no word yet on the verdict. I'm about to turn 52, and the sense I get from others is "older-is-better." I began having CFIDS/ME at 47, and the odds of getting approved have gone up because the process has taken so @%#*& long!

    All the other suggestions are worth their weight in gold. If you can get a "real doctor" on your side (i.e.--my primary physician is a nurse-practitioner and the doctor who made my case for me in his assessment is a naturopath) get them to commit to a strong letter in your favor.

    something others haven't mentioned yet, but very important: Remember, you're not trying to convince anyone that you're sick, or what illnesses you have, or why, or where you got them. Your job is to convince an uncaring bureau that several measurable legitimate disabilities make it impossible for you to work eight hours a day at any kind of work on a consistent basis, allowing no more than two days off work in a month due to illness. That's the legal definition, and if you don't beat them over the head with that, it makes a rougher time for you.

    Sorry to hear about that horrible blood-plasma thing. The ProHealth people who sponsor this site have some natural anti-inflamatory remedies which would be worth trying. Another company called Oasis makes some good ones. Others have found good ones. Use the search feature and you'll have lots of options to try. Good luck and welcome again!

  12. maggierose

    maggierose New Member

    I to had to apply for SSSI,I did receive it. I was turned down the first time. I have good days and bad. I just found out I have raynauds also,do you take anything for it?
    I am 60 yrs. I think I had fibro for 15 yrs. Now I have alot of chest pain from fibro. I get so discourage at times,but I keep telling my self it could be worse.

    Take care, Maggierose
  13. Candlewick

    Candlewick New Member

    Hello: If you have a psychiatrist and had a neuro psych eval, showing depression, etc, that is truly what you are approved for SSDI on rather than fibro. I won by myself the first time, did not go to any of their Drs. THEY ARE PAID TO DENY YOU- I WORKED IN RN Nursecasemanger DISABITY MANAGEMENT SO I KNOW. IF YOU HAVE RHEUMATOLOGIST AND PRIMARY CARE ALL AGREEING YOU CANNOT DO FULL TIME WORK - PRESENT COPIES OF THESE PAPERS WITH A letter TO SSI or SSDI and explain you do not need to be seen BY THEIR DR., AS YOU HAVE VERY WELL COMPETENT DRS WHO HAVE ALREADY DETERMINED THAT YOU CANNOT RETURN TO FULLTIME WORK THAT IS SUBSTANTIAL GAINFUL EMPLOYMENT. I too gathered and submitted all of my records so none would be missed. I was 49 when I got it and was to be reviewd in 5-7 years- which then I found out if you are 55yrs- they automatically will renew you without too much issue. If you apply at 54-55 or older- you have a better chance of getting it, expecially if you have other medical issues.


  14. ljm527

    ljm527 New Member

    It has been a long time since I have had to take something for the Raynaud's. It was quite severe about 10 years ago and I was on a med, but it came back really strong over the last several months (wonder if stress makes it worse), so I will be talking with the dr on Friday to see if there is anything I can do. I wear gloves all the time outdoors and cotton gloves indoors in the summer with the air conditioning when possible. Mainly just try to keep the fingers warm. Not sure why my toes get numb though.
  15. ljm527

    ljm527 New Member

    Hi All. I applied for SSD in January; completed their daily activities report last week and have left messages with my disability guy for all new appointments. My physiatrist (pain management doc) has referred me to a psychiatrist for counseling in helping me manage my pain/fatigue/anxiety issues. I have an appointment tomorrow. Has anyone any insite/experience as to what I can expect from this and subsequent visits? I think I am having an anxiety attach just approaching the visit. I have always been a positive, can-do person; but this past year has been the worst for me and have come to the realization that I can no longer manage things and am seeking as much help as possible.

    Thanks all for listening and offering any advice.

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