New to FMS

Discussion in 'Fibromyalgia Main Forum' started by smokingun35, Aug 20, 2003.

  1. smokingun35

    smokingun35 New Member

    I have been diagnosed (finally) w/fibro by a local Dr. I have to wait 4 weeks for my appnmt. with the Rheumatologist so am looking for ANY advice on supplements that could possibly help. I am a 40 yr old man and have had symptoms for 6/7 yrs and just now bad enough, factored in with the fact that they have run every other test known to man, to come to this conclusion FM..My shoulders, back and arms are my worst points along with the almost constant fatigue..Any suggestions besides pain meds ?
  2. klutzo

    klutzo New Member

    Here are my suggestions after almost 18 yrs. of trying everything for my fibro.

    1. Don't bother with the Rheumy. Get a holistic doctor. Read the post from today by "stillafreemind" entitled, "My Last Choice Should Have Been My First". Learn from our mistakes.

    2. Magnesium is essential, as we have proven tissue deficiencies of it. Slowly work up to at least 350 mgs. at bedtime.

    3. Also very helpful are B-complex and digestive enzymes, as we don't absorb nutrients well.

    4. My holistic doctor is a big believer in using amino acids to fix our low levels of brain neurotransmitters. This means taking L-tyrosine during the day, and 5-HTP at bedtime. It also helps to take Whey Protein right after your exercise routine....yes, mild exercise to tolerance is very helpful. The whey will help repair your muscels, esp. if taken right after exercise.

    5. If your thyroid has not been checked out my someone who knows about thyroid resistance and natural thryoid meds, ie. a holistic doctor, please have it done. Many of us have untreated hypothyroidism that does not show up on standard testing, and treatment with Armour Thyroid can be amazingly helpful.

    6. Read up on Adrenal Fatigue, which is a major problem in this illness.

    7. We are not allowed to give URL's here, but a websearch will turn up the following Doctor's websites for info on what I've said in this post:
    Gerald Poesnecker, M.D. (adrenals in CFS/FMS)
    Bruce Rind, M.D. (thryoid and adrenals in FMS)
    Dr. Lowe (thyroid in FMS)
    Marty Hinz, M.D. (neurotransmitters)
    Jacob Teitlebaum, M.D. (FMS treatment in general)
    There are hours of informative reading at these sites that will help you understand your illness.

    Klutzo
  3. kar1953

    kar1953 New Member

    Just wanted to say welcome to the board. You will find a lot of useful info here.

    As far as supplements - if I had to choose just one of mine it would be Colostrum. This helps keep your immune system healthy which is really important.

    Anyhoo, welcome.....Kathi
  4. Mikie

    Mikie Moderator

    You have come to the right place. Klutzo is right; rheumies are of limited value to us. I no longer see one. I have a good PCP and a specialist in our illnesses and I do all my own research on treatments. All my treatments are ones I have read about here.

    One thing you might try is the ZMA sold here. It is zinc, magnesium, and vitamin B-6. It helps with sleep and with pain and works well with other sleep and pain medications.

    Love, Mikie
  5. jmaxjmax

    jmaxjmax New Member

    I also found that taking acidophilus helps too.
    :) Max
  6. smokingun35

    smokingun35 New Member

    Thanks Everyone for your suggestions. I will lock my office door today for an hour and do some research on the items you've mentioned. I hope you all have a great day today ! Thanks Again, Scott
  7. smokingun35

    smokingun35 New Member

    By the way, What is a holistic Dr. ?
  8. klutzo

    klutzo New Member

    Are doctors (or licensed Naturopaths in the states of Washington, Oregon, Connecticutt and Arizona only) who practice Integrative medicine. In otherwords they use alternative medicine,with drugs as a last resort. When drugs must be used, the natural form is used rather than synthetic. Most of these docs actually know something about FMS!
    You can find one in your Yellow Pages or through your local health food store. If you don't have a health food store where you live, locate the website for GSDL, Great Smokies Diagnostic Laboratory, and send them an e-mail requesting a listing of doctors who use their lab in the area you are willing to travel within to see a doctor. Giving them zip codes will help. They will be glad to send you this info. This lab does most of the alternative medical testing, which is far more likely to turn up numerous abnormalities that are missed by conventional medical tests, and any doctor that uses them is going to be holistic. In the far Western U.S., holsistic docs may use Diagnos-Techs of Tukwilla, Washington instead. There are also Professional Associations of Holistic docs on the Internet. Some of them charge about $10 for a catalogue listing all their members and their specialties, like acupuncture, chiropractic, homeopathy, naturopathy, iridology, reflexology, herbal medicine, nutritional medicine, etc.
    I hope that answers your question.
    Klutzo
    [This Message was Edited on 08/21/2003]
  9. smokingun35

    smokingun35 New Member

    Thanks Again..I have located a Dr. about 125 miles from me in Nashville, Tn. so I will call today and see if they are treating FM .If you learn anything new about Amino Acids I would love to hear about it. I took them years ago when I lifted weights (many yrs ago) and would not be scared to take them again if they would help this condition.