New to MD, I've been told by 3 Dr. Lortab is innapropriate

Discussion in 'Fibromyalgia Main Forum' started by hiltonqueen, Mar 26, 2007.

  1. hiltonqueen

    hiltonqueen New Member

    Good afternoon. I just ran across this website today, I've been trying to find answers & help for my Fibro in the state MD... I think that all 3 Doctors I saw don't have any clue how to treat it, they only assume that a narcotic is a bad thing... one of these Doctors I saw was a "Pain Specialist" for crying out loud! He gave me a pricey prescription of "Lidoderm" patches (I say pricey, because they are not available in a generic name), I'm on my second 24 hour stretch & there isn't any relief.


    I moved recently to a new state. My Arthritis Specialist was treating me with muscle relaxants & lortab.
    Since moving to MD, I've visited 2 walk in clinics, 2 ER visits & one spine Pain doctor... all of which have told me that it's inappropriate to treat Fibro with narcotics. This is what my Doctors were prescribing me in the state of TN. I see a Rhumy specialist on April 2nd, & I hope to god that he doesn't give me the same answer, because the pain is unbearable. I cannot sit, stand, walk, or lay comfortably. I have a heated back brace that I wear while I'm at home. I've been out of my Lortab for sometime, and now my pain receptors are on high mode I guess... because I cannot wait to take my xanax to go to bed... another issue I have. But it helps me sleep through the night & get up to face the next day.

    When I went to the Doctors, I was armed with a list of meds that I've been subscribed & what I am taking... they all looked at me like I was a crazy person seeking drugs. The truth is, the Lortab is the only thing that allows me to move & take care of my children throughout the day.

    It's been very rough since moving here, I was hoping to find a Doctor here that would understand that yes indeed Lortab is prescribed for Fibro (It's listed at the Arthritis Foundation website!) & I thought for sure seeing a pain specialist would have been in my favor... but it wasn't.

    Any help or advice for someone living in the MD area with chronic pain?

    Thanks for your time!!

    Debra
  2. butterfly83

    butterfly83 New Member

    Debra - Try Pain and Rehabilitation Medicine in Bethesda, MD. Their web address is www.painpoints.com

    They have several good doctors there who are experienced in treating Fibro, and chronic pain conditions. They ARE expensive, but the doctor's are helpful and willing to work with me to find meds that actually work so.. for me, they are worth the price.
  3. obrnlc

    obrnlc New Member

    hi debra
    would your former doctor from your home state contact a new doc for you? if you go to er's, & other docs with a list, they'll act like its a grocery list and you are drug shopping. Unfortunately, the abuse rate for prescr. pain meds is very high and it ruins it for people like us who really need relief, not a "high".

    If your former doc will fax a consult to the new doc before you get there (on office letterhead and include phone number for verification) it will show that you did have medical care for this and you aren't just "shopping"

    try to do this before your rheumy visit, but MOST rheumys won't prescribe opiates, they get out of it by quoting the AM. col. of RHEUM. (who obviously has never HAD, this DD) and declared, in their great wisdom, that "Opiates are not apppropriate in fibromyalgia".

    Now, there is no mention of the fact they dole out rheum. antiinflammatory meds like candy that will ROT your liver, but don't let a fibro pt get ahold of a narcotic!!!


    so, unfortun., because of so many abusive druggies, you have to prove your "innocense" or be looked at as guilty, and the best way to do that and build up a relationship w/ a new doc. is to have some referrals and records sent.

    GOOD LUCK to you--L
  4. hiltonqueen

    hiltonqueen New Member

    Thanks so much for your help! YES THEY ARE EXPENSIVE.... , they quoted me $410 for initial consult, as they don't take insurance?????

    They told me to call my insurance & see which FP I have in the area.

    I really appreciate your reply, as I feel pretty alone here... thanks!

    Debra
  5. hiltonqueen

    hiltonqueen New Member

    I have a small TENS unit... but the doctor mentioned is a bigger TENS unit, I just have the "pads" & he mentioned a "jacket".. but he didn't mention it again after my consult with him. I just left a message to ask him (or his nurse) about it).

    Thanks for your replies!
    Debra
  6. hiltonqueen

    hiltonqueen New Member

    Ok, I don't know if it's good news or not... but I explained to the receptionist about my condition & the comments to the other other Dr. in the area. They are wiling to see me tomorrow at 10 & I hope that all goes well.. I was up front & & the Dr. was upfront with me... I guess we will see tomorrow after my appointment.

    Thanks,
    Debra
  7. munch1958

    munch1958 Member

    I did and found a great doctor in Chicago who takes my fibro pain seriously! Just click on the link under community that says doctors. Search by your state.
  8. nightngale

    nightngale New Member

    I'm in Maryland too and wondering where you are? I live near Crofton, route 3. I am seeing a rheumatologist who rxs Ultram for me, but I have never asked for more. I am about to though cause lateley a bunch of new pains cropped up.

    I am also starting the disability thing with Allsup, am nervous but I am hoping for best. I don't really like the feeling of the Tramadol but I can function better and still drive, etc. It isn't helping my new thigh pain Im getting looked at now.

    Let us know how it goes and if you find a good doc, I am always on the look out, have gotten good ideas here and I love most of my docs, but still having pain......
  9. hiltonqueen

    hiltonqueen New Member

    *sigh*
    I saw a very smart, very informative Doctor who I just picked from the insurance book.

    His info:

    Lawrence Vidaver MD
    1411 Madison Pk. Drive Str. 1-C
    Glen Burnie, MD
    410-761-7901

    He "knew" many things about Fibro, he told me that he studied it in the 80's in Italy. And brought out a book on the matter & sat & talked with me for about 45 minutes.

    He asked me what I was experiencing as far as what happens to me during the day & such. He told me that he's treated several Firo patients & he could tell that I didn't have it & that it did not surprise him that I was mis-diagnosed in TN. I don't know if I'm relieved or not (it's a one step back, 2 more Dr. Steps forward... more $$$ out of pocket), I am really relieved knowing that I can at least get my back fixed, which bothers me the most out of all of it... it's chronic pain & hard to live with. So I can say I'm excited to start a whole new realm of Neuro Dr's, I can say that maybe for me, there will be some light at the end of the tunnel some day. He's doing a ton of blood work on me, we know I have Osteo & he mentioned perhaps "psoriatic"... I don't even know what that is yet... I have to do some "More" research.

    Thanks to everyone who replied & helped me. If your in MD, I suggest that you see Dr. Vidaver...he knows about Firo & he's very nice & caring. And yes, he did also mention that fibro isn't treated with narcotics.

    I hope that you can all have a good day. Mine has been a bit easier with my pain meds & my heating brace, but I'm soooooooooo tired, I got very little sleep last night & I swear I've dosed off a couple of times making this post, I wish my 4 year old took naps, so I could take one.

    Sincerely,
    Debra
  10. twitcher

    twitcher New Member

    I would have to agree with the doctors. I have severe fibro pain and I do not think narcotic pain meds are appropriate. I do not take any. Narcotic pain meds are for ACUTE pain such as surgery or an injury like a broken bone. They are not for chronic pain. They are for short-term use. They don't help fibro pain anyway. Fibro pain is neuropathic from what I have read. Meds. like motrin don't touch this kind of pain either. Narcotics cause dependency and therefore higher and higher doses are needed. IMO better meds are the ones for neuropathic pain like Cymbalta, Lyrica etc....
  11. wolflady01

    wolflady01 New Member

    I have been taking 10 mg. lortab for 5 years. I get 93 a month. My Dr. knows what kind of pain I'm in. I don't take them unless I really need them, cause they make me feel nauseous. I don't know how anyone can get hooked on those! I also take Cymbalta, and it does help with the pain, even tho it's an antidepressant. I also take Valium, Celebrex, and about 3 others. About 9 a day. I take 100mg seroquel at nite, but just found out I had sleep apnea, so when I get my cpap, hopefully I won't need those. they make me so groggy the next day.
    Anyway, having your previous Dr. fax, or call your current Dr. may help. Hope you get it worked oout. God Bless!
  12. dc1980

    dc1980 New Member

    TN born and raised here. Thats a long way from TN, all the way to MD. Somewhere on this message board was a website that might be helpful to you in finding a new doctor. At least it is an alternative.

    www.ratemds.com

    It is doctors from all states & specialties and patients can write under their name what kind of doctor they are and their experience, such as how an office vist went or the type of care, or is the office staff was nice or rude. You may also add doctors to the list and write about your experience.

    Take care and good luck,
    dc
  13. kjfms

    kjfms Member

    I do not live in the MD area but I just wanted to say how sorry I am that you are having this trouble.

    Good grief you would think by now more physicians would understand that we -- as FMS patients -- are each unique and require an individualized treatment plan.

    What works for one patient is not a guarantee that it will work for an other and that yes for some patients who have more severe pain and for whom other therapies have not been effective or cannot be used, chronic opioid analgesic therapy -- involving oral painkillers (such as Lortab) is an option.

    I use Lortab as well and yes it does work effectively on relieving my pain. I have not had to increase my dosage -- I take p.r.n. as directed by my physician and responsibly.

    While it [opiod analgesic therapy] may not be an option for everyone -- it is an option for some (myself) who cannot use other treatment plans.

    I hope you find a physician who understands this soon -- I know this must be very hard for you.

    I will keep you in my prayers and wish you the best,

    Karen :)

  14. kjfms

    kjfms Member

    Oops missed one of your posts. I am very happy you do not have FMS and very sorry you have OA.

    Best wishes,

    Karen :)
  15. bettydroop

    bettydroop New Member

    Good to hear you found out so you can move on. I hope things work out for you.

    I have to say your Dr. is making a blanket statement that DRs dont treat Fibromyalgia with Narcotics and thats not true. Many do, (mine does too for example) and for alot of people, many on this board, have decided that its what works for them and its their own personal choice.

    I just had to comment about it cause it bothered me and I had to. LOL.

    Good luck to you~~~~ B. droop ( Karen)
  16. hiltonqueen

    hiltonqueen New Member

    Thanks to everyone for your replies :)
    And to those few who agree with me regarding the narcotics... I appreciate that. Obviously I have more pain that the fibro considering the Dr agreed with me & said I didn't have it. And yes, he gave me my pain meds because he knows that I'm in pain... he could tell by looking at my MRI results.
    He also did blood work to test for RA & Scoliosis, among other things. He also x-rayed my hands & feet. The x-ray tech told me that it looked like I had Arthritis in my hands... jeeze, I'm only 36.

    Debra