New to the board in Alabama

Discussion in 'Fibromyalgia Main Forum' started by taylorat, Oct 10, 2002.

  1. taylorat

    taylorat New Member

    Hi, everyone! I am writing this for my wife who is a little shy at posting a message on this board. I am trying to get her started. She has been reading the messages for a long time, but never has posted. I signed her up for posting a message and decided to get things started for her. She is an "Internet Doctor". She is 48 years old and has been told she has the body of a 60 year old. (On the inside, only!) She has 3 grown children and 7 grand kids. She has had FM for about 8 years ever since our little boy was born (we have an 8 year old Son (with ADHD) together.) and thinks that she has CFS also. She has also had the "Mack Truck" feeling. I have to admit, that at first I thought that it was "all in her head". But after she showed me this site and I started reading some of the messages, I'm starting to be a believer, because so many of the other people on this board have described the EXACT same symptions as she does! I couldn't believe it! She has to get up in the morning and take her medicine just to be able to even get up and start the day. She is currently taking Lorcet, Klonopin, Inderall, Robaxin, and Ambien. She also has Mitral Valve Prolapse, OCD, Osteoarthritis and according to our family doctor (D.O.) she seen today, he told her she has Cervical and Spinal Stenosis (lower back). She just had a lower back MRI, as the doctor found "non fusion of the L5 disc" in her lower back during an office x-ray. The MRI showed the Stenosis. She says that the meds that she takes only "take the edge off", but she is almost never without the constant pain. She can sleep all night, but wakes up still in pain, as if she never went to sleep at all. She sometimes goes to a Professional Massage Therapist which relieves the pain for about 3 days, but it's $35.00 for a half hour, but in order to get the real benefits of it, you need to stay for an hour ($50.00). Her doctor today is referring her to a "Pain Management Doctor" for a possible epidural. She would like to hear from anyone with similar problems as hers, especially anyone here in Alabama.
  2. taylorat

    taylorat New Member

    Hi, everyone! I am writing this for my wife who is a little shy at posting a message on this board. I am trying to get her started. She has been reading the messages for a long time, but never has posted. I signed her up for posting a message and decided to get things started for her. She is an "Internet Doctor". She is 48 years old and has been told she has the body of a 60 year old. (On the inside, only!) She has 3 grown children and 7 grand kids. She has had FM for about 8 years ever since our little boy was born (we have an 8 year old Son (with ADHD) together.) and thinks that she has CFS also. She has also had the "Mack Truck" feeling. I have to admit, that at first I thought that it was "all in her head". But after she showed me this site and I started reading some of the messages, I'm starting to be a believer, because so many of the other people on this board have described the EXACT same symptions as she does! I couldn't believe it! She has to get up in the morning and take her medicine just to be able to even get up and start the day. She is currently taking Lorcet, Klonopin, Inderall, Robaxin, and Ambien. She also has Mitral Valve Prolapse, OCD, Osteoarthritis and according to our family doctor (D.O.) she seen today, he told her she has Cervical and Spinal Stenosis (lower back). She just had a lower back MRI, as the doctor found "non fusion of the L5 disc" in her lower back during an office x-ray. The MRI showed the Stenosis. She says that the meds that she takes only "take the edge off", but she is almost never without the constant pain. She can sleep all night, but wakes up still in pain, as if she never went to sleep at all. She sometimes goes to a Professional Massage Therapist which relieves the pain for about 3 days, but it's $35.00 for a half hour, but in order to get the real benefits of it, you need to stay for an hour ($50.00). Her doctor today is referring her to a "Pain Management Doctor" for a possible epidural. She would like to hear from anyone with similar problems as hers, especially anyone here in Alabama.
  3. garyandkim

    garyandkim New Member

    We're not in Alabama. Has she asked about warm water hydrotheropy and chrio. My hubby and I both have FMSand CFS and back problems he has had cervical surgery last year and more spinnal ones to come. Has she tried a heating pad? Epidurals Gary had one and it didn't help but, as you probably have read what works for one may not for another. It's a kind of trial and error thing. MVP is common in FMS our 19 year old has FMS and MVP. We don't. The top post here has a paitents guide you can order up to 99 at one time and it is a great short guide to give out to docs and family and everyone and it's free. There is also a doctors referral listing on the home page if you need to find an FMS/CFS specialist. Has she had a sleep study done? Most of us have what is called Alphia waves which are only supose to be active when awake, but we get them in our sleep so we are not really getting restoratve sleep where the body heals it's self. Are they going to do an MRI of here head and neck to. There are conditions that need tobe ruled out that mimic this, like lyme, Chairi malformation , MS, and many more. We have 5 boys ages 25-3 years. They have also done studies that show that our brains show the diffence during pain then others.

    If she is having trouble staying awake, Provigil is a good med that isn't like regular stimulents.

    Thank you for introducing you and your wife. She has a great guy behind her, Kim and Gary

    PS the lib and home page here have some great research info and other helpful stuff.
  4. cpalance

    cpalance New Member

    I would like to welcome her to the board. Believe me once you start participating instead of just reading it helps allot. Everyone is helpful, friendly, and a very smart bunch if you ask me. Most of the time I just read and read because I am new to this DD. I have FMS and can't believe I am still alive and hurting this bad. I am sure there are people on here from Alabama that will be along to greet you. I live in Texas with my hubby and 220lb. Great Dane. I have 3 grown children and 4 granddaughters.
    Again welcome to the board, it is a good place to go when no one else understands, or if you just have questions and even if you just want to vent.
    Cindy
  5. taylorat

    taylorat New Member

    Thanks for the kind words and info...she hasn't tried any of the things you mentioned in your post, but at this point, she's willing to try anything. She has had the MRI which found the Stenosis. She thinks that the epidural might help her. She has got me into this, also! Thanks again for the reply and wishing you the best!
    Dan and Alberta
  6. taylorat

    taylorat New Member

    Well, he finally got me on this thing. I know how you feel because I feel the same way everyday I don't see how I can hurt so bad and still be alive. Sometimes I don't know how I get through the day. No one should have to hurt this bad every single day. The problem is most of the time the Dr's. don't want to give you the pain medicine you need, to at least take the edge off of the pain for fear of you becoming addicted to it, but it is not fair to have to be in constant pain when there are medicines to help you . My Dr. is pretty good about giving me pain medicine but the strongest he will give me is Lorcet 5-500 and it doesn't do me much good anymore. I went to see him today to see if he would up the strength and he said no. So I guess the Lorcet5-500 is better than nothing. I think it's hard for someone that is not in the constant pain we are in to understand what we go through every day of our lives.I was born in Edingburg Texas it is in thr Rio Grande Valley. I left Texas when I was 23 years old my ex husband went in the Army. I haven't been back home in years. Where are you from in Texas? I moved to Alabama in 1985 my ex husband got stationed at Ft. McClellan, Alabama and I have lived here ever since. Thank you so very much for replying to our message and your kind words of encouragement. Hope we can keep responding through this message board and if you want, we can E-mail each other. Let me know if you would like to do this and I will send you my E-mail address if that's ok to do on this board as I could really use someone to correspond with that knows what it's like to be in pain all the time. Hope to hear from you soon, Alberta