New to the Site and all Flared Up!

Discussion in 'Fibromyalgia Main Forum' started by fullarmor, Jun 21, 2003.

  1. fullarmor

    fullarmor New Member

    Hello. I found this site about a month ago and just love it. I was diagnosed with FMS in November of 2001. It was very bad for a while, but I've gotten better and have managed to maintain a decent level of functioning thru diet and exercise. But I've flared up recently and nothing seems to be working now. Also this morning my doctor diagnosed me with TMJ! I thought I was going to be one of the "lucky" FMS sufferers who didn't have it, but oh well. Now I've got another place to deal with pain. My family is pretty supportive: my husband tries to understand and help as much as possible, but I don't think he really truly understands how bad it is. My mom is great: she has arthritis and degenerative disc disease, so she's used to pain. I just hate that I'm young (28) and feel like my body is 88! But I just love that the people here on this website can understand me. No stupid comments like "oh, yeah, I get tired sometimes too" or "you need to exercise more" or "don't think about it." So enough of my babbling. :) I look forward to getting to know everyone here! Thanks!
  2. granmakitty12

    granmakitty12 New Member

    I hope you will receive as much helpful information and emotional support as I have here.

    I have fms and tmj also. I have had these problems since 1990 when I was 42 years old.

    I think half the battle is finding a doctor who knows how to treat these dd's and is cooperative-and-a supportive family.

    Hope to hear from you often. The people here are wonderful.
  3. lynnkat

    lynnkat New Member

    Glad you found this board cause everyone here understands exactly what you are talking about with this nasty, mean fibro stuff.

    Know what you mean about those stupid comments. My son just had a pulled muscle in his back and was moaning and groaning about it. He went to the doc and got some meds to help loosen it up so it's better now but you would have thought he was dying.

    I know that he was in pain and tried to offer support about his misery. He got snappy and said that I didn't understand how badly it hurt and how the meds made him feel funky. WELL----I said WELCOME to my world where pain is with me all the time. He said my problems couldn't possibly be as bad as his. SIGH----

    He sees me deal with fibro, a bad back and arthritis everyday and he still can't really understand how this all affects me but the people here can relate and are quick to offer a HUG or information.

    Hope you feel at home here with all us fibroites!!!

    Take care, :) lynnkat
  4. Lynda B.

    Lynda B. New Member

    If you have been reading you will notice some have FMS before the term was even coined and some are new to the diagnosis. All I know is that I have a big list in my head of what they call "modalities" to helps. That means things to do to help with the pain. Try all the things you have learned, maybe layer things and in addition there may be some things that you have not heard about or learned yet.

    The best things I ever learned was true biofeedback. Getting all parts of my body hooked up to electrodes, watching a screen to help me learn to relax and a good teacher. I think all FMS people should be taught that. It can get me through some pretty intense times. But I have my cold packs, heat packs, TENS unit, S-curved knobber to get to spot in my back I can't reach, certain oils for my husband to rub on areas, hot baths or showers and on and on. When my pain became so intense that it was at a very high level 24/7 and no sleep, I had to turn to a pain specialist and pain medication like oxycontin, methadone, the duragisic patch and other things. I don't use all of those. We just had to work at what combination of various things worked. Find out as many things as you can. This is a wealth of information. Don't forget the search engine.
    Lot's of good info from months/years back.

    Glad you are here.

    Lynda B.
  5. Mikie

    Mikie Moderator

    Welcome to our board. I'm glad you found us.

    TMJ is common for us. Since I have been taking the Klonopin for my sleep, it has helped with clenching my jaws at night and pretty much done away with my TMJ headaches and jaw/teeth pain.

    Some get help with muscle relaxants and/or mouth pieces.

    I didn't take the Klonopin for TMJ; I took it to help me sleep, which it does. It also helps with anxiety and sensory overload.

    Love, Mikie
  6. Shirl

    Shirl New Member

    Hi Nay, I just sent you an email, I hope you can read your responses on the board this time!

    If not, just go to the link at the top of this page that says; 'Need Message Board Help? Click here', just write the problem in the message section there.

    Just stopped to welcome you, and let you know I did receive your mail, and responded.

    Shalom, Shirl