New to the website

Discussion in 'Fibromyalgia Main Forum' started by Bratlyn, Aug 11, 2008.

  1. Bratlyn

    Bratlyn New Member

    As I've not been DX with FM Yet, All symptoms point to this.

    I'm a 28 year old woman with two children. I constantly have pain ALL THE TIME!! I sleep 2 times a day. I sleep well at night, but by mid day I'm exhausted and take a 3 hour nap again. Just normal activities wear me out.

    I have endometrosis, PCOS, reflux, allergies, IBS sometimes insominia and migraines. I suffer from Anxiety & depression too.

    I had the last straw the other night when I hurt all over I just cried out in pain. It wasn't the first time, and I'm sure it won't be the last.

    My question is... How do I get my doctor to referr me out and where she doesn't think it's all in my head?

    Any help would be GREATLY appreciated!

    ~ In pain all the time~
  2. mjwarchol

    mjwarchol New Member

    Hi Brandi:

    Welcome. If you have an HMO insurance and need a referral from your doc, ask for one to a rheumatologist. They are the ones that will usually diagnose and confirm fibro. If you don't need a referral just find one on your own. You can call the local hospital and ask for the physician referrals.

    If your doc is hesitant in referring you to a specialist, find another doctor! I was in the healthcare field, they should not have any problem with a referral. First, it helps them to come up with an answer to your problems, so it takes the pressure off of them. You deserve to be treated for your problems.

    The other thing I can suggest is educate yourself on fibro and chronic fatigue. It helps to know more about them when you go to the doctor. Some of the symptoms etc. you have will be explained in books and on websites. That answers some of the many questions and such that you have without having to tie the doctor up all the time. That can result in a better elationship with the doctor.

    Good luck.

    M J
  3. erinwilburn

    erinwilburn New Member

    I am 29 and dealing with PCOS FM and CFS. One of the things I have learned is that most local hospitals have a person whos job is to help you find the right Dr. I am still working with mine to find one but one question that has helped me weed out the "it's all in your head" Dr.s is : 1: Do you treat chronicaly ill patients? 2: do you rx pain meds when nessisary.

    Your Dr should give you a referral if anything just because they don't want to deal with you. But another option is getting a refferal to a good phyc. who then will be able to help you get into a Dr once they see that it's not all in your head. My Mom-in-laws phyc is the one who has helped progress her health by getting her to where she needs to be.

    Good luck! just keeping going. and just know that we all cry. I do almost every night. We have to have some kind of physical release. Soft hugs!!!
  4. Bratlyn

    Bratlyn New Member

    Thank you Erin and MJ for your kind words!
    I'm glad I'm not the only one who cries about pain.
    I usually have a high pain tolerance but it seems that either my threshold is getting less, or it's finally catching up with me. Still unsure at this point.

    My mom is begging me to get help, as well as my husband.
    So yeah I'll search till I find the right doctor. That requires me changing my PCP though which SUCKS!!!
    I miss my PPO where I didn't need referrals! It's all new to me!

    Thanks for the encouragement!

  5. jenn_c

    jenn_c New Member

    How long have you been suffering from the pain? I used to cry with my pain too. I have fortunatly a great PCP and pain doc now. It takes a while to fine tune the meds. Keep pushing and fighting to get help. I know the exhaustion is just as dibilatating as the pain. Since you have support from your mom and husband that will help. There is some good info on the internet re: Fibro. Google it and you'll see some sites. I am not sure what the rules are here for sharing web addresses. But if you google you'll see them.

    Good luck,
  6. Bratlyn

    Bratlyn New Member

    Thanks Jenn,
    I've been suffering since about 2004, I believe. It seems that i'm always complaining about not feeling well. I just NEVER mentioned it as I didn't want to be called a hypochrondriac. I just took over counter meds to just "dull" the pain and sleep it off. But seemed to NEVER feel better or go away.
    Now I have two children and I want to seriously go outside and play with them, but it hurts so badly afterwards. I go to bed in pain!

    It is exhausting and physically exhausting too!

    I TRY to exercise, but with a foot problem right now it's not really possible. I LOVE my wii fit, but again it's requiring me to put my feet down.

    Hopefully this will be resolved soon as I had surgery yesterday on it.

    Thanks for your replies!

    So question:
    I find a doctor that's willing to work with me. Change doctors if my main PCP isn't willing to send me to a Rummy?

    ~ Brandi ~

    *Trying to find answers to this pain*
  7. Janalynn

    Janalynn New Member

    Hi Brandi-
    A couple of questions - have you already talked to your doctor and have been made to feel like it's all in your head?
    I have never faced that. 4 doctors that I've seen have all treated me with respect and have never once even eluded to that fact that my pain could possibly be in my head. So I wanted to know if you've been given that impression or just worried about it.

    If your doctor has not responded to your pain issues, then I would just come out and ask for a referral to someone who can help you. Nothing to be scared or nervous about. Ask for a referral to a rheumatologist.

    A lot depends on what has already been discussed with your doctor. Have you discussed the possibility of FM? If you don't know how to bring it up, say you have been doing research out of desperation - what does she think? If she doesn't think you have it, say, well something is not right and I need to get to the bottom of it. A Rheumatologist will actually run all kinds of bloodwork to rule out other conditions (which is what you want to have done anyway). There are many other things that can have the same symptoms. So whether it's FM or not, you need to find out what is causing your pain.

    I went in with confidence and didn't even act for one minute like what I have is not 'real'. Stand up for yourself. If this doctor doesn't help you- find one who will.
    Good Luck!
  8. Bratlyn

    Bratlyn New Member

    Thanks sooo much!
    No I've not seen a doctor yet that thinks it's all in my head. My PCP was given a list of "problems" i have experienced. I think sometime last October I gave it to her. She asked me one time after that...if my problems are still there. I said not so much anymore, it comes and goes.
    But at least there's doc'd that I mentioned it and the list is in my file.
    And I'm just worried that I'll be made to feel that it's in my head.

    Did anyone document their pain prior to asking for a referal?