new to this any advise

Discussion in 'Lyme Disease Archives' started by cnash, Aug 17, 2006.

  1. cnash

    cnash New Member

    Hi,
    Im a 24 year old female who has been suffering from symtoms since 2000. It all began with twitching in legs,numbness,tingling,fatigue. Since then i have had burning in arms ,hands feet,joint pain in knees,tremors, vibrating,Ive had 5 emgs the last one showed slight nerve irritation in ulnar nerve. I recentley have been diagnosed with fybro,thats after being told it was benign fasiculation syndrome for all these years. Ive also recentley taken two igenex test both coming up positive,but the one from my pcp came up neg. I have made appointment with dr. striker in San francisco,anyone heard of him? Im really confused on what i have all the burning in left arm is really scary,my doctor is making me feel like im crazy!
    Any feedback would be appreciated.
    Thanks!
    Courtney
  2. ajp

    ajp New Member


    Welcome!

    I too have the burning pain. It was one of my first symptoms. It has been better lately since I started treatment.I was diagnosed in May and have been on abx for 3 months. I was clinically diagnosed.

    Is the DR.is Frisco a LLMD? Because that would be my advice...to see a Lyme literate doctor. Lyme is difficult to diagnose and often imitates other diseases.

    We have all gone through visits with doctors who don't believe us. I think most of us have been (mis)diagnosed with CFS or fibro. My LLMD thinks that I have had Lyme for almost 20 years! I was diagnosed with CFS in the late 80's. I have had some improvement since I started the abx. They are tough and it is a difficult journey. But there is hope...and you can get better.

    I have spent the last three years progressively getting worse. So for me to have some days that I actually feel good.....is amazing to me. And only confirms the diagnosis.

    Keep in touch and let us know how you are doing.

    Mindy
  3. cnash

    cnash New Member

    yes Im on doxy right now,but for a bronchial infection,i just started hyperbarics today also,very expensive. The dr in frisco,is the vise president of the nation lyme disease group supposed to be the best in his field,other then burrascanno in new york. Do you have twitching with yours as well,
    Thanks ! courtney
  4. ajp

    ajp New Member

    Hi,

    Sounds like you are in good hands. I had the eye twitching for about 3 weeks, it stopped when I started the Ketek, but came back for a few days and then my left eye started, but that didn't last long. It absolutely drove me crazy.

    Keep in touch.

    Mindy
  5. 6t5frlane

    6t5frlane New Member

    Where are the twitches? I had a positive Igenex test also. 10 weeks Doxy. The twitches remain.Mostly calves....
  6. cnash

    cnash New Member

    twitches are all over arms legs calves you name it Ive had 5 emgs Ive been so freaked only one came back with minimal ulnar nerve irritablity.
  7. bct

    bct Active Member

    Good choice; I believe he is a Lyme specialist and highly regarded. I didn't know he was still taking patients, so you are in luck!

    PLEASE let us know how you get along with him!

    When is your appt.?

    Best Wishes to you,
    Barry.

















  8. cnash

    cnash New Member

    Thanks I really hope this is the answer,because all of these symtoms are driving me crazy!
    thanks!
    court