New To This / Have Questions About FMS

Discussion in 'Fibromyalgia Main Forum' started by Bigfoot, Oct 30, 2002.

  1. Bigfoot

    Bigfoot New Member

    I am so glad I found this site! I'm a 35 year old male from Wisconsin and had one doctor diagnose me with FMS, but he is sending me to a specialist in Milwaukee for confirmation. Do my symptoms sound familiar to you? They are: Extreme fatigue,muscles and joints ache, legs cramp when walking, trembling (not always visible)in hands, arms, legs, stomach, and shoulders, tingling in hands and legs, mentally feel "out of it", ringing in ears constantly, headaches, and a very painful feeling of needles stabbing me randomly all over my body. I've worked very little for the past two months and I can't see the specialist until Dec.27! Sorry this is so long, but I'm in desparate need of help! Thank you.
  2. Bigfoot

    Bigfoot New Member

    I am so glad I found this site! I'm a 35 year old male from Wisconsin and had one doctor diagnose me with FMS, but he is sending me to a specialist in Milwaukee for confirmation. Do my symptoms sound familiar to you? They are: Extreme fatigue,muscles and joints ache, legs cramp when walking, trembling (not always visible)in hands, arms, legs, stomach, and shoulders, tingling in hands and legs, mentally feel "out of it", ringing in ears constantly, headaches, and a very painful feeling of needles stabbing me randomly all over my body. I've worked very little for the past two months and I can't see the specialist until Dec.27! Sorry this is so long, but I'm in desparate need of help! Thank you.
  3. kadywill

    kadywill New Member

    sounds very familiar to me....so sorry...
    Love,
    Kady
  4. Phoenix

    Phoenix New Member

    All sounds very familiar...its a mess, but, it can be managed...generally. I've survived for nearly 20 years...about your age when finally diagnosed.

    In case you are interested, there are a couple of FM forum sites that deal with men's issues. www.menwithfibro.com is one.

    Hang in there brother;o)
    [This Message was Edited on 10/30/2002]
  5. kats1978

    kats1978 New Member

    I have had those days plus the days that i can't get out of bed....filping out....drug high
  6. Shirl

    Shirl New Member

    Hello Bigfoot, welcome to our world. I have a lot of what you described, except for the ringing in the ears problem, that could be something entirely different and not related to FM/CFS.
    The only problem I have with my ears is that they itch horribly sometimes. You might want to see an ear specialist for the ringing in the ears.

    Glad you found our board, and hope we hear from you often.

    Shalom,Shirl

  7. pam_d

    pam_d New Member

    Welcome! Sounds all too familiar to me, except instead of the random stabbing needles feeling, I get the feeling of little bugs randomly crawling all over me. But the rest all sounds the same... Sorry you are going through this, it's a diagnosis nobody wants. Do you have supportive family & friends? That can make all the difference, plus you'll find this board is a great help, I learn a lot every day here. Good luck to you...

    Pam
  8. karen2002

    karen2002 New Member

    Just wanted to say hello! Yep, I have had all those symptoms, except for the ear ringing, and needles.
    Hey --that's not a long post.....teehee...I won't point any fingers though. I know the desperation you are feeling. I was just diagnosed this Sept., after a horrid search for help. Best Wishes on your upcoming appointment. Karen
  9. Bigfoot

    Bigfoot New Member

    Wow! I'm amazed at how quick you have been responding! Thank you for the support. It is SO good to know there are other people going through this. I was beginning to think I was alone with this problem. My only other support is my wife and one other close friend. I've been so frustrated at uneducated (of FMS), well-meaning people giving their opinions on what I have and how to fix it, that I want to use my "big foot" to kick them! I can't though because I'm just a big teddy bear.

    Thanks again for your support and I'm sure I will be visiting regularly.

    God bless you all!
    Dave
  10. charlie47

    charlie47 New Member

    welcome bigfoot i had this even before it had a name. i'am new to the board have learned it helps to know u are not alone. good luck at dr. god bless
    [This Message was Edited on 10/30/2002]
  11. JaciBart

    JaciBart Member

    I am sorry you are now one of us but I will tell you this place has been my salvation, I discovered it a few months ago, I have had fibro since just May of this yr, I don't know what I would have done w/o this board.

    Best place in the world to be in my opinion. You will find all the answers you need, Good luck to you & thank your lucky stars if you have an understanding wife, a lot of people here do not have that, it seems to make it all that much worse, there are a lot of normals out there who don't get it but we all do.

    Good luck,
    Jaci
  12. sofy

    sofy New Member

    You mightcall me an official lurker because I don't have a medical diagnosis of fm or cfm. My diag is eds (excessive daytime sleepiness) or Idiopathic Hypersomnia. Take your pick. Guess that qualifies for chronic fatigue. She cant stay awake and we dont know why. I''m not making this up. The best part of this site is I am able to be for a few minutes and have gleaned lots of info to help me pursue the big cure. I'm glad you have a wife to love and support you. Being alone is lonely with the isolation. Hope your shoulders are as big as your feet.
  13. tedebear

    tedebear New Member

    Isn't it wonderful. Achy breaky body isn't easy to deal with. Have a good day. Be remindful to try to make the most of what you have. Soft hugs.
  14. marcus1243

    marcus1243 New Member

    Hi Bigfoot -- welcome to the board. I'm new here myself but your symptoms sound *so* much like mine, especially the aching muscles and joints and legs that cramp up when I walk. Do you find that if you keep on walking the cramps subside a little, but that you then get weak muscles and buckling knees later on (or the next day?). The invisible trembling sounds dead on too, especially if I've overdone any physical activity, or with stress. You can add tingling in the feet and tinnitus and headaches to my list too. Fun ain't it!
    Marcus
    PS -- try not to woory too much about it being a neurological disorder -- those tend not to cause aching joints.
  15. cyndi1958

    cyndi1958 New Member

    Hi Bigfoot,
    Notice you are from Wisconsin and going to a specialist in Milwaukee, I too suffer from fibro and have bounced to so many doctors from Sheboygan(where I am at) to Mequon. Have not really found an understanding or up on it doctor yet. Would love to hear who you are seeing and how you liked the doctor. Your symptons sound like mine or should I say all of ours on this site. Hang in there

    Cyndi
  16. Kathryn

    Kathryn New Member

    Hi Bigfoot and welcome,
    I share all your symptoms except the ringing in my ears, although my hearing has become super sensitive. If you are like the rest of us, you will have good days and bad days. The real secret to managing this illness is to not overdo on the good days. It is easy to do, but you will regret it for it for the next 3 - 4 days. What I have found helps me the most is a hot bath with epsom salts, especially just before bed time. It takes the stiffness out of my muscles and relaxes me so that I can get what little sleep that I do get. You might give it a try, as epsom salts are very inexpensive and there are no unpleasant side effects. To make it even more relaxing, turn off the light and place a candle where the mirror will reflect its light. If you find a pleasant fragrance, use it even though your wife might give you strange looks.
    Best of luck to you,
    Kathryn
  17. dianep

    dianep New Member

    hi, just thought i'd let you know i'm from wisconsin too and i do all my doctoring in Madison at the UW. I live just as far west of madison as you do east of madison so if you don t have any luck with your docs check out the University docs. HOpe all goes well

    Diane
  18. rosella

    rosella New Member

    Most of your symptoms are consistent with FM, except ringing of the ears. That is usually Tinnitis.
    Symtoms of FM..Fatigue
    Disturbed Sleep
    Muscle knotting & pain
    Pain descriptions..burning, stabbing &
    starburst pinpricks
    Intolerance to light & noise
    I sincerely hopes this helps.
  19. shannon

    shannon Guest

    I have all the same things you do as well as the ringing in the ears. I to am from Wisconsin and I have seen Doc after Doc and was not impressed with any of them. I thought it was hopeless and then I decided to try a Chriopractor and he is awsome and very very bright when it comes to this fibro and cfs crap. I do not know where you are from but I am only about 50 min. North of Milwaukee. I live in a small town called Mayville and if you want to know this miracle Doc's name I will be glaaad to tell you. He has made such a difference for me and would be well worth seeing. I never have and never will take any drugs due to the fact that they hide alot of our problems and only cause more in the long run. I have a friend who also has this Fibro and she was on 9 different meds and since she started to see the chrio. She has stopped them all and feels like a whole new person.
  20. Bigfoot

    Bigfoot New Member

    The cramping in my legs usually gets worse the more I walk. My legs buckle almost any time but it does appear to be worse later in the day. I WAS concerned about it being a neurological disorder at first, but after tests for MS turned out negative, the doctor told me he thought I had FMS. He does not like to diagnose it though, so he is sending me to a specialist in Milwaukee.

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