New to this....Pain Mgm't

Discussion in 'Fibromyalgia Main Forum' started by julianaj21, Dec 6, 2002.

  1. julianaj21

    julianaj21 New Member

    I am new to this board. I have spent the last 7 years being treated for MS, but when my doc didn't seem to get a handle on the pain and fatigue issue I sought another opinion. This MS specialist said that I DO NOT have MS but more than likely a combo of CFS and FM and took me off of my Neurontin and Baclofen because of the of sedative side effects. I haven't slept for more than an hour at a time or more than three hours a night in a week and a half. I can't get in with a Rheumatologist until the 26th and I am MISERABLE!! I am so stiff I can barely get out of bed in the AM andI have a high degree of widespread pain. The only thing keeping me awake is the Provigil. Do any of you CFS/FM veterans have any suggestions to get thourgh the next couple of weeks without medications? I have been doing alot of homework on these syndromes but I can't seem to get any concrete ideas on pain mgm't without meds and I am ready to lose it. That is if my family doesn't toss my crabby butt out the door :) Any help will be greatly appreciated!!!!!!!!!!!!!!!!!!!!!
  2. julianaj21

    julianaj21 New Member

    I am new to this board. I have spent the last 7 years being treated for MS, but when my doc didn't seem to get a handle on the pain and fatigue issue I sought another opinion. This MS specialist said that I DO NOT have MS but more than likely a combo of CFS and FM and took me off of my Neurontin and Baclofen because of the of sedative side effects. I haven't slept for more than an hour at a time or more than three hours a night in a week and a half. I can't get in with a Rheumatologist until the 26th and I am MISERABLE!! I am so stiff I can barely get out of bed in the AM andI have a high degree of widespread pain. The only thing keeping me awake is the Provigil. Do any of you CFS/FM veterans have any suggestions to get thourgh the next couple of weeks without medications? I have been doing alot of homework on these syndromes but I can't seem to get any concrete ideas on pain mgm't without meds and I am ready to lose it. That is if my family doesn't toss my crabby butt out the door :) Any help will be greatly appreciated!!!!!!!!!!!!!!!!!!!!!
  3. catgal

    catgal New Member

    I can relate to how you feel as I suffered needlessly for years before I got serious medication help for pain management.

    Some of the things I did was soak in a comfortably-hot bath with epsom salts and later on when I found some I added eucalyptus & lavender essential oils to the bath. I would also make the bathroom dark and soak by candlelight with soothing music playing on a boombox. I would massage my sore spots as I soaked. When I got out, I rubbed the painful areas with Tiger Balm and put on something soft and warm and just rested for a couple of hours. I also used and still do ThermaCare HeatWraps that they make in all sizes. You can get them at Wal-Mart, and they you press them up against your aching places, and they stick to you and work for a long time. It is like having a portable heating pad. I use them for my back alot. Create you a beautiful and comfortable place to lay sprinkling baby power between your sheets or covers that you lay between. Get someone to give you a warm oil or Tiger Balm massage and pay particular attention to the sore spots. Massage really helps me, but it the massage needs to last for at least 30 to 45 minutes. Try some Percogesic pain pills that you can over the counter at Wal-Mart or drug stores. They not only help with the pain, but two at night will also help you sleep. Limit hard physical activities and cut down on stressors as much as possible during this time. Delegate chores if you can. Treat yourself with gentleness & kindness during this period as you would anyone else with an illness. Lay down and listen to some relaxing guided imagery tapes or soothing music. Let your cares float away and focus on taking care of yourself. Take this time to read and educate yourself as much about your illness as possible.

    I'm sure others will be along with some good ideas. Glad to see you here! Best Wishes, Carol....
  4. CAgirl

    CAgirl New Member

    Call the doctor that took you off your meds and tell him what is going on. It is irresponsible of him to have left you hanging like this. I have FM and have taken Neurontin. It helps some people with FM. Did you want to go off of it or did he just take you off? Baclofen is a muscle relaxer (right?) what was wrong with you being on it? If you wanted to get off these meds. then I understand, but if he just removed them then he is wrong. You don't take a patient off her meds. unless you are going to offer something else.
    Do you have a primary care doctor you could see for some meds. until you get into the Rheumatologist?
    I hope you are feeling better.
  5. Shirl

    Shirl New Member

    Hi Juliana, welcome to the board. I agree with Catgal, your doctor should have given you something to replace what you had been taking, or continue untill you met with another doctor.

    Here are some things that I do for pain;

    3 cups of Epson Salts
    3 large bottles of regular Peroxide

    Mix in a tub of warm water, and soak for twenty minutes only. This will make you feel weak, so go to bed for at least a half hour after the soak. Its not a cure, but it sure will help with the pain for the night.

    Also I have a 'wireless mattress heating pad', this is a God send, its a gentle heat and will help with that morning stiffness and pain too. They can be bought at Sear's, Penny's and Spiegel's. I ordered mine over the phone.

    I do hope this helps untill you can get to your doctor. I know how it feels to be in all that pain, and yes! I get cranky too.

    Again, welcome to the board.

    Shalom, Shirl
  6. teach6

    teach6 New Member

    I also have CFS and FM. I take Neurontin and Flexeril (muscle relaxant) at night for pain. If you decide to get ZMA, which several people here use for sleep, be aware you cannot use it at the same time you take Neurontin. The magnesium in it can't be taken with Neurontin.

    I do agree with the others who said you should call the doc who took you off the meds and tell him what is going on. If you are taking Provigil I see no reason for you not to be able to continue on the other meds until you see someone who can treat you for CFS and FM.

    Barbara

  7. kadywill

    kadywill New Member

    Isn't it awful to be misdiagnosed??? I have been before, as well. You shouldn't have been treated so cruelly as to have been taken off of anagesics/muscle relaxants with nothing to comfort you in the meantime. Criminal of him to do that!
    The advice you've been given is good; I would add that Lidoderm patches (RX. only) have been very good pain relief for specific areas of my body. The are lidocaine and they numb these areas; they were begun to help with post-herpetic pain following shingles, but they are used for my type of pain as well. They are costly, but most doctor's offices keep samples as supplied by the drug company. Call the office and ask if they have samples you could try until you see the Rheumy. It has been MY personal experience that they help tremendously. Now, I AM on a lot of pain medication and not all of my pain is related to the Fibro., but pain is pain and it should be treated. Pain is known nowadays as the fifth vital sign and it is a doctor's neglect when he won't treat it. Recently a NC doctor had his medical license revoked for failing to treat a person's chronic pain sufficiently. You deserve better treatment!
    Love and empathy,
    Kady