New to this site

Discussion in 'Fibromyalgia Main Forum' started by CJ-Tex, Oct 14, 2002.

  1. CJ-Tex

    CJ-Tex New Member

    Hi everyone!

    I am new to this site. I posted a message in the Lupus board but I see this is a more active board. Do y'all mind if I introduce myself here and get to know you?

    I am a woman in my mid 40's, I have discoid lupus and show signs of SLE with arthritis and fatigue. I was diagnosed about six years ago. I keep a positive attitude and have made lifestyle changes so I can stay active.

    It is nice to find a supportive site with other people who try to keep a positive outlook. Annette, thanks again for suggesting I try this place.

    Keeping the faith makes things alright with me.
    CJ (in Texas)


  2. CJ-Tex

    CJ-Tex New Member

    Hi everyone!

    I am new to this site. I posted a message in the Lupus board but I see this is a more active board. Do y'all mind if I introduce myself here and get to know you?

    I am a woman in my mid 40's, I have discoid lupus and show signs of SLE with arthritis and fatigue. I was diagnosed about six years ago. I keep a positive attitude and have made lifestyle changes so I can stay active.

    It is nice to find a supportive site with other people who try to keep a positive outlook. Annette, thanks again for suggesting I try this place.

    Keeping the faith makes things alright with me.
    CJ (in Texas)


  3. Carolonly

    Carolonly New Member

    This message board is very supportive it has helped me alot! I am 36 and suffer fm,Ra and alot of other diseases. This board has been very supportive through everything. Welcome and hope you find support.
  4. kathyrere

    kathyrere New Member

    Nice to have you, i mostly post on CC board it's where we go to be silly are just to ramble on. this is the best people and most support i have ever found since i've been sick. hope you find the same come over to CC too! (CHit Chat)
    we have to keep on keepin'on
    kathyre
    I am from Austin, Texas[This Message was Edited on 10/15/2002]
  5. Cactuslil

    Cactuslil New Member

    I am Ms. Autoimmune Disorder....so welcome and share the things that work for you. I agree keeping things simple ultimately will allow for some freedom. That is my overall goal.

    I have this and that, most arising out of a compromised immune system, but technically I have FMS/CPS and UPS (joke) but for reasons of reducing my Pred. nightmare (got Cushings Syndrome-gained an ugly 100 lbs almost overnight) I am now wrestling diabetes lest I lose my lower mandible. Not funny!...plus my fingers are getting sorer than I don't know what (I have callouses from playing guitar a half a decade.)

    Welcome! CactusLil'
  6. latracy

    latracy New Member

    Welcome, I am 40 years old with FM/MSD/eye problems. This board is like talking to old friends. You can see and hear when they are having a bad day, and they sense when you are having one too. I don't find it as depressing as other boards. I has been a real comfort to me the last week.
    [This Message was Edited on 10/14/2002]
  7. debrastets

    debrastets New Member

    Welcome ! I live in a small town in Texas now! Everyone here are so supportive! It help alote to have some one that under stands to talk to! I have f.m.;DDD; IbS; RSD in hand arm and shoulder;ocd ;panic attacks and ect! So i am in pain alote ! You came to the right place! Welcome! DEB!
  8. karen2002

    karen2002 New Member

    Hey CJ--I am a long, tall, Texan, too! Okay, maybe not long and tall, but a Texan, nonetheless :)
    I am new here, too--having CFS/FM, its a great site, with lots of great folks. Just wanted to give ya'll a Big Texas Howdy!
    Karen
  9. AnnetteP

    AnnetteP New Member

    Glad you found this site! Its full of wonderful people and information. I used to post a lot, but FORTUNATELY I am feeling better than I have in probably 10 years and I'm rarely home, much less online. BTW, I have SLE AND Drug-Induced Lupus....not sure which drugs are causing this...might even be my much-needed thyroid meds ugh! I used to have IBS-C, chronic yeast infections, brain fog, panic attacks, carpul tunnel syndrome, pms, restless leg syndrome, insomnia, and the list goes on and on. The only things I'm really still dealing with are fatigue (which has been greatly reduced thanks to diet and supplements) and anemia.

    Hope you will enjoy this site and learns lots of good stuff,
    Annette
  10. allhart

    allhart New Member

    welcome to the board i did notice before that the lupus board is kinda slow,youll never feel lonley here.hopr you enjoy it as much as i have
    kara
  11. cpalance

    cpalance New Member

    I was out yesterday, first time in months. I missed your post so I just want to welcome you to the board. I am also from Texas, Houston area. I have FMS and severe osteroarthritis everywhere, especially in my neck. You will love it here everyone is so kind and understanding.

    Cindy
  12. timmissyh

    timmissyh New Member

    Hi CJ,

    I am pretty new here too and really love it. I have learned a lot by coming here and reading and being able to relate to others. It was good to read from others that I am not a "basket case" for the shrink! Others have the same symptoms that I have and the same struggles! I too am from Texas, outside of San Antonio in the country! Love it here!

    Just wanted to say WELCOME!!!
    Missyh
  13. tedebear

    tedebear New Member

    This board is wonnnnnderful. Helps to discuss situations with people one can relate with. Welcome. Find many interesting topics/discussions on this site. Helpful hints and suggestions as well from other individuals that have same/similar feelings. Hope you enjoy all that many of us experience on this site.

    Soft hugs
  14. Rich

    Rich New Member

    Hi CJ, I am also new, as of today. I am a caregiver and my wife has FM and has had it for about 4 years. She has been on 'industrial strength' pain-killers and they have recently gotten to her. She had to go into the hospital (9/23-10/9) for pneumonia and for withdrawal from the narcotic pain-killers. She has been put on Methadone and it is doing only fair for her. She has very little appetite because of the pain, and as of this writing she weighs 82 pounds. She used to consistently weigh 125 when she was healthy. She has many other issues. They are congestive heart failure (probably from the pain she has had to endure over the last 4 or 5 years, Lupus (the non-scarring skin-type called SCLE), anemia, emphysema (from smoking for 40 years), but pain is the main issue here. We believe it started when she had a hip replacement and had to use a walker for several months. She had been on Prednisone (for the Lupus)for several years and we both believe this is the culprit for the pain. We think the Pred. caused something like a muscle myopthy and the stress from the walker did the muscles in. She has had pain in the same area ever since she had to use the walker. It has never quit, never.

    That is my story and it is as brief as I could make it. We are at our wits end trying to make it so Noel (that is my wife's name, and we have been married since 1966) can regain some quality of life but we have not been at all successful. I recently got hold of a support group in my area and we are going to try that. I have e-mailed the administrator and have not yet heard back from her. BTW, we live in the St. Louis area and have all our lives.

    Rich
  15. yellowrose1

    yellowrose1 New Member

    Hi CJ, Just wanted to stop by and introduce myself to ya. I'm Sonya from "smalltown" central Texas. I have cfs and have suffered with it for as long as I can remember. Just recently stopped working to take care of myself for a few months. Totally run-down.
    I'm a fairly quiet person and don't post much here, yet I read all posts every day. Everyone here just seems to have so much experience and knowledge it's amazing. It's nice to read that others truly understand everything that this disease gives you and takes away.
    Glad you found us, Sonya
  16. CJ-Tex

    CJ-Tex New Member

    THANK YOU ALL so much for making me feel welcome. I want to apologize AGAIN for my goof on my "Thanks" post, I swear to goodness I did not mean to click on the little hind end man, I wanted the guy clapping but somehow clicked on the wrong guy. Since only one person has replied to it I don't know if anyone actually read it since it looks like I am "giving you the moon." I would never do that!!!!

    Rich I hate to hear your wife (&you) have been through so many challenges with lupus, etc. You are in my prayers. I hope you will read up on some of the lifestyle changes and alternatives like diet changes, etc. that might help Noel. I honestly feel so much better after cutting my Plaquenil in half through some a major overhaul in how I eat and getting regular (moderate) exercise, taking the right vitamins, etc. Not only do I feel better but my test results show a difference otherwise my specialist would not have agreed to cut down my Plaquenil dosage. I am a reformed smoker (7 years now) so I know how hard it is to quit, tell your wife that she really MUST stop the smoking. Once the lupus starts to flare it may go for the already weak parts of the body and do even more damage and quickly! It is so scary for the both of you, I am so sorry she has been doing so bad. Take good care of each other and I will hope and pray for better days ahead.

    In faith,
    C J