Newbie. CFIDS & Cancer Twice, Anyone Else Out There?

Discussion in 'Fibromyalgia Main Forum' started by CindiS, Sep 30, 2005.

  1. CindiS

    CindiS New Member

    Hello You All!

    I have suffered with CFIDS for about 20 years and then three years ago I was diagnosed with breast cancer and then a year later, ovarian cancer.
    My CFIDS is just horrible now and there are times when I really just want to "give up".
    I was so busy the past few years focused on the cancer, that I have been "out of touch" with the latest CFIDS treatments.
    Tonight I have been reading all of your posts and my heart goes out to all of us.
    Something has to be found to help us!
    Is there anyone out there who also has had CFIDS and then cancer?
    I have always had very low Natural Killer cells and was always concerned about this because I know that they fend off viruses and cancer. I also have had active titers of the various viruses.
    I am on alot of supplements, I do alot of various healing modalities and I depend heavily on pain meds.
    I have been looking at going out of the US for a stem cell transplant.
    I fear if I don't get well, I will battle cancer again.
    I am going to see an immune specialist next week, so I pray that he can help me!
    If there is anyone out there who may be able to offer some valid information that may be of benefit to me or anyone else out there who also has had CFIDS and cancer, please respond.

    God Bless Us All With Health, Vitality , Peace & Love!
    Cindi
  2. Rene

    Rene New Member

    Hi Cindi,
    So sorry for all the extra sickness you have to deal with. CfS is bad enough and usually worse.

    I had to go to ONC/OBGYN for the second time yesterday for ovarian mass. He doesn't think its cancer though I have seen an ONC last Jan and he wanted my baseball size mass out but didn't feel it was cancer though he didn't know.

    Now I have another baseball size on the other ovary but the second opion ONC doesn't want it out!! I'm losing weight too for no reason!

    Anyway how are you doing with the ovarian cancer? Is it out? I know only35% LIVE with it. Did you test positive for the BRC1?

    I know someone who got Breast Cancer 6 months and go and they are walking 4 miles a day!! I just went to a resturant for the 1st time in ThREE YEArs last week!!!

    I was almost sure I wasn't gonna fight ovarian caner very hard. I'm 38 with no kids and live alone and so my quality of life is poor anyway. So I took a chance to leave the mass in when the 1st onc wanted it out.

    So sorry for all you are going through. I do know there are others that have both CFS and Cancer if you put cancer in the search.

    Rene