Newbie here w FM/CFS

Discussion in 'Fibromyalgia Main Forum' started by hermitlady, Sep 14, 2006.

  1. hermitlady

    hermitlady Member

    Hi...
    I've lurked around here a little and thought I'd join you all. I have been ill for about 9 yrs and it just seems to keep getting worse. I am so discouraged and tired of being sick and tired!
    I hope to maybe learn from those of you that have the same problems w your health. Thanks for listening.

    Hermit
  2. hermitlady

    hermitlady Member

    I appreciate your replies, I could use some friends who can relate, you know?

    I didn't notice that there is a profile to fill out, I'll check it out, thanks again.
  3. Redwillow

    Redwillow New Member

    I like your name, I often feel like a hermit too. My world has become very isolated.

    Your have come to a nice place and we do understand.

    hugs Marion

  4. hermitlady

    hermitlady Member

    Nice to meet you. I am just really in the middle of a rough patch right now. I've had my depression under control for the last 6 months or so, but it's coming back in full force. I am just so disgusted w feeling so miserable all the time, I feel like I'm 90 yrs old!!
  5. hermitlady

    hermitlady Member

    Just thought I'd bump up to introduce myself to the later posters. I'm in CA, so very often am on my laptop later than others.

    Hope to hear from some new board buddies.
  6. StephieBee

    StephieBee New Member

    I am so sorry about your frustration. We all get frustated.

    Have you had a diagnosis for 9 years or did you just get the dx?

    I started getting syptoms of FM, CFS, RLS and MPS when I was 18 after a car accident. I was finally dx'd at 20 in Feb 2001. They kept insisting my pain was pinched nerves.

    Thankfully, I have gotten past the anger and bitterness of my conditions. It took me a long time. For awhile I was in the 'why me?' stage. I hated the world because I was miserable. I have finally accepted my fate, even though it is not easy to deal with these conditions.

    Its a good thing you found us. This is such a great supportive and informative board. I have learned about different medications and techniques people use to ease their symptoms.

    Hugs,
    Stephanie
  7. hermitlady

    hermitlady Member

    hi, nice to meet you. I have had the fibro diagnosis for 9 yrs and just within the last year I have realized I have CFS also. I have always been so fatigued and blamed it on the meds I've taken over the years. Dr finally formally diagnosed the CFS last spring.

    Just so discouraged right now, I've tried so many things and nothing helps. I even went to an alternative M.D. over the summer and had various treatments out of sheer desperation, but no luck. I did the sugar free/candida diet and took Nystatin to kill of the yeast in my gut. I lost some weight, which was good, but no improvement other than that.

    I just bought some Activive off the internet to try, only been on it for 4 days. I should ask if anyone here has tried it. I can get my money back if it doesn't help, 365 day moneyback guarantee....woo hoo!
  8. blueyegirl57

    blueyegirl57 New Member

    Hi Hermitlady, My name is Nancy and I am new to this site also ~~ I am quite sure we can learn alot, this is a wonderful site. Everyone makes us feel welcome. Also it's nice to know that we are not alone in our pain ~~ hang in there.
    Peace Be With You
  9. rockgor

    rockgor Well-Known Member

    I'm in LA. Have had CFS about 26 years.

    You'll find lots of nice people on this board.
  10. Turnert

    Turnert New Member

    Hermitlady
    >>>>>I just bought some Activive off the internet to try, only been on it for 4 days. I should ask if anyone here has tried it. I can get my money back if it doesn't help, 365 day moneyback guarantee....woo hoo

    Guarantee only if you do not purchase more ie if you buy 3 and 3 mths later buy 3 you are not elegible.

    Re Activive check post by me they are in the only activive threads.
  11. hermitlady

    hermitlady Member

    Thanks for the info. Is your daughter still taking the Activive and has it helped at all? I have searched the internet w no luck on finding anyone who's taken it.
  12. hermitlady

    hermitlady Member

    Just bumping up to see if you're around to answer my above question.....
  13. Turnert

    Turnert New Member

    There is only 1 poster on another site- poster name sunnybrie who said she took it(posts in May/june). She was at 4 weeks and very enthusiastic re activive. No posts After and I cannot link site as a competitor to this site.

    As there hasnt been any more posts re it and she has posted in other forums there recently on the same site I assumed no go.

    My daughter is at 3 mths, i am starting to feel the product is not of help to her as her symptoms appear different and exaggerated by taking the pill. Re the latter all GPs and 2 specialists debunked our thoughts re the pill so we are testing its effect on her ourselves.

    She is off it now so we expect an improvement. I feel any improvement she had was the result of going off it at the same time she started activive.

    So my feel is it probably is of little use at least in her situation.

    I also cannot get the supplier to send me the 2 missing bottles they owe me even though they charged me for 3 but sent 1.

    That is now in my credit card companies' hands.

    If you want to try it by all means do so they reckon an effect to most in early days of use but it was not so with her.

    Best of luck
    Tony


    [This Message was Edited on 04/03/2008]