Newbie--in need of encouragement

Discussion in 'Fibromyalgia Main Forum' started by kholmes, Aug 9, 2003.

  1. kholmes

    kholmes New Member

    Hello, everyone. No official CFS diagnosis yet, but I'm having a bad relapse, after struggling off and on with this DD for about twelve years. I was able to work full-time and keep up exercise and other activities. Now, I'm feeling terrible, and can barely make it out to the grocery store. Does anyone else find that mornings aren't so bad, but you feel awful by three or four in the afternoon?
    It's frightening, and of course, doctors can find nothing wrong with me. I'd appreciate any comforting words--and hugs! I've been "lurking" at this site for quite a while, and posting an occasional message, but thought I would introduce myself. I GREATLY appreciate the love, wisdom, and encouragement on this site!
    Right now, thank heavens for computers, tv, supportive family and friends, and the occasional, blissful sleep.
  2. nancyw

    nancyw New Member

    Hello and welcome to this site! I was just dx'd with fibro back in January, but have probably had this since age 2 (now 47) or at least sine 1982 (car accident). Nobody was ever able to put the pieces together before and everything I had was always from "stress". I have always been a morning person, but I really lose my zing early - about the same time as you stated. My muscles pains have been pretty stable lately, but I have to be very careful not to over do. One doc explained to me that your energy level is like a bank account; you only have so much deposited that you can draw from. You have to be careful to use your energy wisely and be mindful of the fact that you only have so much to spend. I kind of liked that analogy. I've only been coming to this site since January and I have really found a wealth of information and helpful advise. I always feel much better knowing nobody is going to tell me I'm just lazy. Best wishes to you and hope to see more of your posts!
  3. imagin

    imagin New Member

    hi! welcome! i was just diagnosed with FM so i have the pain and fatigue worse in the morning, but then it gets a little better at noon, and then back to being tired and hurting at about 4. it's a vicious cycle. :) but i'm glad you're here and hope you get as much helpful advice as i have! :)
  4. teach6

    teach6 New Member

    I have both CFS and FM. For me it usually takes a little while for me to wake up and get going in the mornings, But I do get very fatigued in the afternoons. I solve that by taking a nap in the afternoon. I often sleep for between 1 and 2 hours. Sometimes I don't fall asleep, but I do get a good rest.

    Have you gone to a CFS specialist? You can look for one by clicking on Doctor Referral at the top of this page. Then click on Co-Cure's good doc list. There is a list of docs who treat CFS and FM, arranged by states.

    If there is no one from your area you might also try a local support group for suggestions. There is a link for that also.

    Good luck. There are things that can be done to help you feel better including getting a good night's sleep.


  5. elaine_p

    elaine_p New Member

    I have morning energy and thought I was an oddity! I get fatigued by 10, though, so anything I want done has to get done before then or it might not get done that day.

    Right now I take 2 naps a day (arg!!! It was only 1 for 5 years), and even with that I may not be able to do anything productive in the afternoons.

    Good luck!
  6. Iggy_RN

    Iggy_RN New Member

    Glad to have you here! Until I was dx'd, w/FM and Mycoplasma pneumonaie, and degenerative disc disease about 3 months ago, It seemed more painful and horrible to not know for sure what was wrong w/me. I probably should of seen a rheumetologist years ago, and I could of saved myself and maybe taken better care of myself. You are right, you are going to find such compassion, wisdom, experience, and love and even disagreement every now and then. This site is a blessing for all of us, and Im glad you made yourself known! That is the only way to help yourself and others, speak out and support one another. I came to this board the day I was dx'd. They say this DD is not progressive, but I know for me, the flares have definitely been much worse and longer as years go by, I think we do get worse w/our flares, just my opinion, Welcome again and God bless, Iggy
  7. sofy

    sofy New Member

    The only thing I can tell you is I never know what tomorrow will bring but I always have a plan for a good day and a fall back for the down days.

    I have been coming here for almost a year and the info here has been very helpful. I knew so little and didnt know a direction to go. Keep reading EVERYTHING and eventually we will find the right answer for ourselves.

    I was sleeping 20 hrs a day and thought I would have to give up my drivers license. I now have some really good days and can drive short distances so life is much improved.
  8. Shirl

    Shirl New Member

    Hi, welcome to the board. Can't relate to thee nice mornings you are having, but I do have FM not CFS. Mornings are the worst for me, evenings I am totally normal.

    Glad you found us, and I know you will receive a lot of help, support, and make some great friends here.

    Again, welcome..............

    Shalom, Shirl