Newbie...

Discussion in 'Fibromyalgia Main Forum' started by MissDaphne, Sep 17, 2005.

  1. MissDaphne

    MissDaphne New Member

    Hi All!

    I just wanted to pop in and introduce myself.

    I've been experiencing some trying, and confusing, symptoms for about two years now. I have had every test you could think of...plus some. After a year straight of doctors and specialists I have just been told that it's likely I have Fibromyalgia.

    So now I'm off to a Rheumatologist for the complete work up. Can anyone tell me what will happen when I see him? What kind of tests do they do? And if this is what I have, can they tell me the same day and start meds?

    Have any of you been diagnosed without tender spots? I only ask because I don't think I have any and have talked to a couple different people now who WERE diagnosed without having them either. This confuses me because I thought you had to have at least 11 out of the 18.

    And finally...does anyone here have anything else other than Fibro too? Or are you all 'Fibro only' people?

    Thanks so much for your time and replies!
  2. Rosiebud

    Rosiebud New Member

    I have CFS and Fibro. If you dont have tender spots you may have Chronic Fatigue Syndrome - they both overlap with symptoms.

    Welcome to the board.

    Rosie
  3. spasco

    spasco New Member

    As far as I know, tender points are the first point of dx. When you go to the dr you will be asked ?'s and he/she will ask you to do some gentle bends, perhaps walk back and forth, stand on tiptoes, etc. They will try for the points and see if there are any tender spots. More than likely there will be blood work and xrays.

    If you do not have the tender points, perhaps you have Ankylosing Spondylitis. That is very close to FM, but there is a rheumatoid factor in your blood. If this dr is any good at all, there will be a rheumatoid panel done.

    I also have Crohn's Disease and Osteoarthritis among other things.

    God bless! Stephanie
  4. fivesue

    fivesue New Member

    Glad you found us, and glad you decided to post. Your experience sounds familiar as all of us have doctor stories.

    Best wished with the rheumy...hope he has his act together and can help.

    Again, welcome!

    Sue
  5. BLUEROSE7

    BLUEROSE7 New Member

    Justed wanted to say Hi and Welcome to a GREAT board with lots of caring, understanding and very supportive people.

    You will get and learn lots of info here...

    I wish you good luck with the Rheumatologist and I hope he is a good one. I have FMS and CFS along with other things..

    Hugs & Welcome Aboard
    Bluerose
  6. MissDaphne

    MissDaphne New Member

    Thank you so much for the replies and welcomes. I've been reading thru old posts and getting all the info I can. Some smart folks here! =)

    CFS was first suspected but then he changed his mind to Fibro because I have pain with it. He said you don't experience pain with CFS???

    Thanks again!
  7. Meekah

    Meekah New Member

    Welcome!!! You have come to the right place! This board is full of knowledgible, caring people.

    I was dx in April of this year and I was supposed to be referred to a rheumy by the endo that dx me. (I'm still waiting for the rheumy's call) I have been sick for 10 yrs. though.

    I have Chronic Ftaigue, Anxiety disorder, depression (the last two are controled by Paxil),PTSD and Fibro , to name a few...

    After being told by sooooo many doctors that they can't help me or that it's all in my head, I decided to take my health into my own hands and started seeing a naturaupath. I've been seeing her since May and I really notice a diffrence for the better.

    Hope you find what you're looking for in this board, I know I sure did.

    Hugs and Prayers
    Meekah
  8. rileyearl

    rileyearl New Member

    What a pretty name. The Daphne is my garden is one of my favorites. Your mom must have liked it too.

    I'm sorry you've been feeling so bad. It's such a shock, but also a relief to finally get a real diagnosis. It explains so much that we just thought was weird about us. At least I did. I never knew there were other people out there who always cancelled plans at the last minute or spent the entire weekend in bed in order to go to work on Monday.

    I have fibro, cfs, ibs, low thyroid, depression and on and on. I had a bunch of blood tests recently and will get the results next week.

    I only felt 4 tender spots myself, but when the doctor examined me she found more. I'm don't know if there were 11 or not. I think the doc I saw goes more by in depth questions and blood draws. Not that there's a blood test for fm, but there are about a million other things that happily co-exist in your body with fm. When those other things are addressed, frequently the fm goes to the back burner.

    One thing about fibro is that is will always surprise you with some odd symptom. It's funny, but you'll see here over and over again, that when someone asks if anyone else has had some weird symptom, there are always replies.

    Welcome! I'll look forward to your posts!

    Francie
  9. JPach007

    JPach007 New Member

    Diagnosing the tender spots is actually the main test.

    I have restless leg syndrome, and insomnia, and now most recently, Fibro.

    Good luck to you. Let us know how things progress for you. I think when you're first diagnosed is when you need the most support because you dont want to accept it.

    Hang in there though!

    JPach