Discussion in 'Fibromyalgia Main Forum' started by Rachel_Annette, Aug 19, 2008.

  1. Rachel_Annette

    Rachel_Annette New Member

    Hi, I'm brand new to this. I just started taking lyrica today. I am still questioning whether or not I have FM. I went to my internist yesterday and after talking with her, and she applied pressure to a few points, she said she thought I could have it and prescribed the lyrica. Does anyone have any thoughts for me?
  2. erinwilburn

    erinwilburn New Member

    First of all welcome and I hope you find some answers here.

    Second have you had any bloodwork and tests done other than tender point tests? If not I would. Lyme and Lupus are 2 I had ruled out right away.

    If you have ?'s about Lyrica please look it up here because many of us have been on it. And there are some great posts.


  3. CanBrit

    CanBrit Member


    Can you tell us a little bit more about your symptoms? Were the pressure points above and below the waist?


  4. tandy

    tandy New Member

    I agree with Jeerie~
    Lots of good insights there.

    You should have deffinitly been tested for all the things that may mimic Fibro.
    Everything jeerie mentioned above.
    If all those are ruled out then many times it is a case of Fibromyalgia.

    Be aware that sometimes it takes awhile to get a firm DX.
    It took me 2 yrs of going to 5 different drs./specialists. and LOTS of tests!!
    good luck to you :)

  5. vannafeelbettr

    vannafeelbettr New Member

    Hi Rachel!

    I've recently been diagnosed with FM (had symptoms for a year). My doctor put me on Cymbalta as in recent months I got the depression and anxiety that come with Fibro. Cymbalta was made for Fibro. A month into it, I do notice I am a lot calmer, which is nice, but no relief from pain. I have terrible nerve pain in legs (chronic sciatica) and I heard Lyrica is supposed to help nerve pain. Have you noticed any improvement with your pain yet on the Lyrica??

    Good Luck Kelly
  6. Rachel_Annette

    Rachel_Annette New Member

    My son was also wondering why my internist was so quick to prescribe the Lyrica before tests. When I went to her Monday of this week, I did not know very much about FM. I actually went in to see her because I have severe acid reflux and cramps. My husband went in with me and he actually mentioned to her the way pain moves around my body. I asked her how she determined I had FM, and she said by ruling out other things. I plan to call her next week and ask for more testing
  7. Rachel_Annette

    Rachel_Annette New Member

    Thank you for the welcome. Wow, you have really had some challenges with being pregnant and a baby. I have a new grandbaby boy who is two months old. I love being a grandmother.
    I am really just starting to get educated about everything to do with FM and other things that can have the same symptoms. It sounds like I need tests. I have had none, just her talking to me and pushing on my elbows and knees. It was tender when she pushed.
    I can see that I will have a lot of support here. Thanks again
  8. Rachel_Annette

    Rachel_Annette New Member

    I have lived with pain for a long time. I do better in the warmer months, even though I live in North Florida. We do get some cold weather here though. I frequently get flu-like feelings, aches and pains all over. Other times, a leg, arm, neck, etc, will hurt. And I have chronic contipation, and IBS, acid reflux, hemmoroids. I also have achilles tendonitis that affects my heels and feet, and have to be careful of doing too much, even walking, or they flare up and I get almost crippled. In the winter, I sleep with an electric blanket in my bed, and another on my sofa in the living room to be able to cope with the aches.

    It sounds as though I need to talk with my dr about more tests.
    Thank you for caring and asking about me.
  9. Rachel_Annette

    Rachel_Annette New Member

    I have only been on Lyrica for three days. I think it has helped, but a real test will be this weekend when I will be going to visit my daughter, son-in-law and new grandson who live 3 hrs away. The car ride usually has a bad affect on me, and I will see if the Lyrica helps with it.
    Thank you for writing. i will let you know next week if it is helping me. A little early to tell.
  10. Rachel_Annette

    Rachel_Annette New Member

    I do plan to ask my dr to do the tests that I have not had.
    This is all so new to me. I have put up with symptoms for years and taken pain relievers and stayed home a lot to cope without trying to find a cause. I will be getting some tests hopefully in the near future.
    Have a great weekend
  11. Janalynn

    Janalynn New Member

    Hi Rachel!
    Welcome. Your Dr. probably came to the conclusion that you have FM from your other symptoms as well, IBS etc. - all of which go along with FM. You do need to have blood work done though to rule out other things, RA, Celiac, Vit D deficiency, Lupus, etc. since their symptoms can be very similar to FM.

    See, I already forgot what your follow up posts said (foggy this morning!)Did you say you're seeing your Dr. again? Is she planning on doing more testing or referring you to a rheumatologist for confirmation?

    My doctor (who was brand new to me) suspected FM right away after taking my history and doing a physical exam. She referred me to a rheumatologist who agreed and did blood work which all came back normal. Since it did come back normal a FM diagnosis was born. I remember being so happy (because I had a diagnosis) then the tough year began. I really went through one hell of a year. It was much rougher on me mentally than I ever imagined.

    I have great doctors - well as good as one can expect with a diagnosis which doesn't have a "one fits all" treatment.

    I tried Lyrica and Neurontin which I couldn't take because of side effects. I now take Topamax (same family) usually given to migraine patients. It has helped with my headaches and I 'think' a little bit of my pain - hard to tell.

    I do have to take pain medications because my pain is incredibly hard to live with.

    I also take Lexapro (low level anxiety -now turning into depression)

    I take Soma - a muscle relaxer, which truthfully only helps sometimes, but it's the best one I've tried.

    I was recently given Klonapin to take at night.

    Sleep - GOOD sleep is critical!!! I used to only sleep for a couple of hours at a time and now sleep for sometimes 6 hours at a stretch, which is wonderful! I don't take sleep meds, but many people do.

    The process of treatment for FM is definitely trial and error. As long as you have a doctor who is willing to be part of your team and work with you, you're one step farther than a lot of other people!

    First and foremost, if you're questioning your diagnosis, dig deeper, get another opinion, get the blood work done(which you should anyway).
    A good support system is also essential - we're all here!

    Please keep us posted!

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