Newly diagnosed and new to Message Board

Discussion in 'Fibromyalgia Main Forum' started by bmadan, Nov 5, 2006.

  1. bmadan

    bmadan New Member

    Hello, I have been recently diagnosed with FM and as I work with my doctors to determine that I infact have FM and not anything else, I have a question for other FM sufferers.

    About a month ago, I expierenced about 5 days of this fluttering lightheadedness feeling that kept reoccuring every 3-5 minutes and lasted all day and night for about 5 days. I went to the ER, had a normal EKG and although my blood pressure and glucose levels were off (usually normal)they couldn't find out what it was.

    Since then, every so often I experience the same little fluttering feeling. I am going to visit with the cardiologist anyway, to make sure it's not my heart, but wondered if anyone else had ever felt the same symptom and if their doctor figured out what it was.

    Thank you for any input you can give me...and for this message board. It seems full of great advice I can use to help myself feel better. Thanks again.

  2. lptopcat

    lptopcat New Member

    and Welcome. I am pretty new here myself, dx earlier this year.

    I have not had those fluttering feelings, so I can't help with that.

    Just wanted to welcome you. I have found this board to be very informative with lots of great people. Hope to visit with you again, soon.

    [This Message was Edited on 11/05/2006]
  3. kriket

    kriket New Member

    I also have the fluttering and light-headed feeling sometimes, but don't know what it is. I take toprol for rapid heart rate though. Good idea to go on to the cardiologist and make sure it's not your heart.

  4. hugs4evry1

    hugs4evry1 New Member

    Just wanted to stop in and say welcome to our board. I'm sorry you had to find us and that you're ill, but glad that you did.

    I'm not sure either on your fluttery symptoms but it's good that you're seeking treatment.


    Nancy B
  5. EllenComstock

    EllenComstock New Member

    Although I am sorry you are in the same boat we are. I, too, used to have the fluttery feeling you describe. At least I think we are talking about the same thing. Is it heart palpitations that come and go suddenly? I also would feel very lightheaded and would have to lie down. The episodes lasted anywhere from a minute to two hours. As I got older, the episodes increased in frequency.

    After years of suffering from this, a heart specialist determined that I had a defect in the electrical system of my heart. I had EKG's for years that showed normal, but they have to do the EKG while you are having the palpitations to catch it and determine where in the heart the defect is (not always easy to do-I had to wear a halter monitor for a month). This is a pretty common problem.

    I had outpatient surger four years ago (they burned the defective areas with a laser they threaded through a vein in my lef) and haven't had any problems since.

    Of course, this could certainly be another problem but it might be worth looking into. Good luck.

  6. bmadan

    bmadan New Member

    for all the information. You guys are so sweet.

    Ellen, my EKG's (have had 2) come back normal, and I wore the holter monitor for a 24 hour period. The cardiologist that I am going to is one of those eltro-cardiologist (or something like that). Hopefully he will figure out exactly what is going on.

    Thanks for all the info and sharing your expierences with me.


[ advertisement ]