Newly diagnosed and wondering what to do...

Discussion in 'Fibromyalgia Main Forum' started by laurakay, Dec 20, 2002.

  1. laurakay

    laurakay New Member

    Hello all,
    I was diagnosed a few months ago with fibromyalgia after suffering many months of pain, dry mouth, and irritable bladder. My family doctor sent me to a rheumatologist who confirmed the diagnosis, but didn't give me many treatment options. I was sent home with a presciption for amitryptaline (though a lower dose than she wanted to give me because I am also on Prozac for anxiety/depression/obsessive-complusive disorder)and told to begin physical therapy and come back in a few months. When I asked her if chiropractic care could help me, she said NO quite emphatically and refused to discuss anything more with me because (her words) "it would be in medical terms." Now, since I have read three or four books on this, and I'm guessing that I probably know close to as much about it as she does, I'm thinking that I should not go back to her. It has been two months, and I have not taken the medication for fear of becoming completely drugged up (I also take Tegretol for a seizure disorder).

    Does anyone have any advice for me about how to better go about this treatment? I'm afraid that the constraints of the HMO are going to keep me from seeing any other doctors.

    Thanks for any advice you have!
    Laura
  2. Mikie

    Mikie Moderator

    Welcome to our board. If you've read several books, you probably DO know more about your illness than this doc. How is your PCP? Can you discuss this with him or her. In HMO's, it's the PCP who is the gatekeeper to seeing other specialists.

    Love, Mikie
  3. kaymac

    kaymac New Member

    I agree with talking this over with your family doc. I am in HMO too and my family dr. sent me to rheum and she was not at all receptive or informative and disagreed with his diagnosis anyway. She blamed it all on my weight and diet! So I went back to family doc and told him all I had read and studied on, and he was willing to work with me on what I had heard or read. He is very understanding, but I admit, taking the meds and the speech of exercise and diet doesn't make me feel a whole lot better. I keep searching too.

    kaymac
  4. teach6

    teach6 New Member

    You can also check right here at this site for support groups. One of the purple buttons at the top of the page will take you there.

    Good luck.

    Barbara
  5. Rumpsonfire

    Rumpsonfire New Member

    I was just recently diagnosed too and I regularly see a chiropractor but it has taken me a while to find a really good one. It only took me two tries to find a physician who Dx me with Fibro and knows his stuff. I highly recomend seeing a Chiropractor because I believe that it keeps my bones and nerves in good health by keeping them all alighned and helps if somthing gets pinched. There are some times where I think that I am having a flare in my arms but it ends up that the upper vertebre are just outta wack. Once he pops them back into place I am set to go. I also have Hypermobility Syndrome so he helps keep things that slide around in place too.

    I really think though that you need to find a different Dr. If she doesn't believe in Chiropractor, she doesn't believe in Fibro. Chiropractors are in the same "world" of medicine as those Dr.'s who believe in Fibro because they both treat the "invisible pain"

    Good luck and don't give up!

    Amanda's Rumpsonfire
  6. Shirl

    Shirl New Member

    Hi Laura, welcome to our world. As for the doctor, I think Kaymac had the best suggestion.

    I rarely go to doctors anymore, so I can't help you. I take supplements almost exclusively for Fibro, and am doing great.

    Again, welcome to the board.

    Shalom,Shirl