NEWLY DIAGNOSED W/ POSSIBLE FMS

Discussion in 'Fibromyalgia Main Forum' started by beckylrn, Dec 12, 2006.

  1. beckylrn

    beckylrn New Member

    i went to see a rheumatologist today that i have seen in the past. although my labs are pending (in the past i had elevated c reactive protein and sed rate) the nurse said he will probably diagnose me w/ fibro. im not sure what to do now, since i have a pathetic primary doc ( i have been on 5mg vicodin for at least 2 years solid). my pain is out of control and i am tired of feeling like this. i work full time as an rn (sometimes i cant even get out of the car when i get home) but i have no idea what to do now. i am sick of feeling guilty, have to practically beg for the two tablets of vicodin he gives me a day, and i am just feeling very discouraged and desparate for something to change. i just cannot live like this anymore and i have no idea how much longer my body will let me do my job (i work in a hospital taking care of cardiac/medical patients) when i am off of work, most of the time it takes me at least a day and a half to recover to where i can do normal activities. i have seriously never had depression problems in the past, but i am soooo depressed now. i am on celexa (recently started this) but i dont think it is working yet. does anyone have advice on what i should do? thanks.
  2. Pianowoman

    Pianowoman New Member

    Welcome to the board! As a fellow RN, I understand many of your issues. I eventually had to stop working but that doesn't mean you have to.

    There is lots of help and support on this board so I hope you can take a while and read some posts. You can search things at the top left of this page.

    If your Rhenmatologist won't help with your pain and other issues, try to get a referral to a pain clinic. Are you sleeping? That is a problem for a lot of us and we often need help to get a decent sleep. There is nothing wrong with that and you should ask if it's a problem.

    Many of us have had bouts of depression. Who wouldn't with all we have to put up with? Sometimes the ADs help with the pain.

    Is there any way that you could request a transfer to another area that has less physical work. I know all of Nursing is stressful but if you still can work, maybe something different would help.

    I hope you can find some things that help and there are many. There is hope so hang in there.

    Kathy

  3. Susan07

    Susan07 New Member

    Sorry you had to come here but welcome aboard!

    This is the best place for ideas, help and knowing that there are more just like you.

    If you enjoy taking a bath you might want to try the following:

    very warm bath water
    2 cups Epsom salts
    8 oz Hydrogen Peroxide

    Soak yourself then get ready to go to bed. It will relax you and possibly help you go to sleep.

    The thing I do which helps me the most is Tai Chi. I bought a tape with David Carridine and do 4 - 6 repetitions of 7 movements called "Opening the Gates". It helps to get my blood moving in the morning.

    I finally had to quit work this past August after dealing with the pain off and on for 30 years. The past 10 were semi-bad, the last 5 years were yuck, the last year horrible - felt like I was going to pass out.

    Hope some of this helps.

    Take care,
    Susan07
  4. PVLady

    PVLady New Member

    There are very good doctors out there for fibro. You did not post where you live so other members can give you possible referrals to a good doctor.

    I am in S. Calif and there are several excellent doctors here. If I knew before what I know now, I would try to see a doctor who looks for hidden viruses and stealth infections causing the fibro - (infectious disease specialist).

    I recently saw a panel of three doctors here in Torrance CA discussing how they treat CFS and Fibromyalgia. They are on cable tv Healthbeat this week. The list is so long and treatments depend on your lab results.

    If you are in S. Calif I can recommend a few good doctors.