Newly Diagnosed

Discussion in 'Fibromyalgia Main Forum' started by noenergy, Feb 3, 2006.

  1. noenergy

    noenergy New Member

    Hi, I am new to the board and this will be my first post. I have learned a lot from everyone here. I hope this doesn't sound mean but it feels good to hear all of you talking about the same symptoms I have but could not get a doctor to listen to me or even take the time to narrow it down with tests. I guess a person can't really relate unless thet also feel the pain we feel almost daily. I have had this illness for many years (probably the late eightys) but was not actually diagnosed the first of 2005. The doctors would always just give me a muscle relaxer and maybe some motrin and say I should feel better in a few days. One doctor actually said "he couldn't see the forest for the trees", whatever that was supposed to mean. So for many years I just gave up on all doctors.

    My problem is getting the doctor I am seeing now to give me something to help with the pain and the fatigue. She keeps saying I don't need pain pills since they are a downer and with my depression it could make it worse and I don't need anything for fatigue since I could become addicted it.
    I think to myself then why am I coming to you every month if you refuse to treat my symptoms. What is the use.

    Please help me, how do I expain to my doctor the hell I am going thru and I would prefer addiction over the pain and fatigue I feel on a daily basis.

  2. MamaR

    MamaR New Member

    I would try my very hardest to find another doc...because it is clear that she is not going to help you.

    I would try to see a Rhuematologist...if possible.

    I went through this for years....but you will find help if you keep searching. That is what I had to do.

    I thought at times that I couldn't keep going, but there are alot of people on here...and maybe someone lives in your area.

    Best wishes to you.....MamaR

  3. Pianowoman

    Pianowoman New Member

    It's always good to have new people but I'm sorry that you are having such a hard time. Most of us can relate in some way to what you are going through. You mention you are depressed; are you being treated for that? Many find that anti-depressants help the symtoms. Also, are you sleeping? Many of us have a sleep disorder and find that getting something to help swith sleep can make a difference.

    Educate yourself; that is crucial. If you keep reading you will find many things that have helped others here. If you really find that your Doctor is not helping, maybe you will have to look for a Doc. who believes in these diseases and can help you more.

    Good Luck.
    Kathy



  4. AnneTheresa

    AnneTheresa Member

    Welcome to the board!

    Perhaps you could ask your doctor for a referral to a pain management specialist. This is what I did and although my primary doctor was/is not in favour of painkillers, he will prescribe for me under advisement of a specialist.

    I hope you get some relief soon.
  5. lovethesun

    lovethesun New Member

    unfortunatelt I have no energy too.Sohello again and goodbye-got to go
  6. futurehope

    futurehope New Member

    Since so many people have helped me, maybe I can help a little.

    I take Klonapin for my Panic Attacks, but it also helps me sleep. I have done alot of reading on this board and alot of people say that Klonapin helps alot with their pain. It is somewhat addictive (it is a benzo). Please do a search and a guarantee you will hear SO MANY wonderful posts about Klonapin.

    Definately, find a different Doctor. I am still trying to get thru to someone that will help too, so I know how you feel. Find a person that will run several tests on you.

    Hope this helps a little,
    Love and Prayers,
    Brenda
  7. pirtpain

    pirtpain New Member

    DITTO with MAMAR!! Find someone else. I may take along time but a Rheumy is best, and a phychiatrist will help with the depression. That doc will never come to her senses!!

    PIRT
  8. noenergy

    noenergy New Member

    Good Morning Everyone!

    I want to say a special Thanks to, pirtpain, msmoody, futurehopes, lovethesub, annetheresa, pianowoman, and mamaR. I hope I didn't miss anyone and if I did please know I sincerely appreciate every one of your replies.

    It just feels so nice to finally have someone who understands what you are going thru. There are times I wonder if my own family even cares. It's kinda like they would rather not hear anything about how I feel or the pain I'm going thru. They just keep asking for me to give that last little drop of energy I might have, so it will make their day a bit easier. You know I honestly would do anything that I am able to, for anyone, but please all I ask in return, is that they at least try to understand what I'm going thru. I cannot count the nights I've cried myself to sleep due to the pain and depression. What really hurts is hubby says he thinks it's just a premenopause thing and my grown children will just blow it off with, (I see mom's having another one of her days!!!) Many nights I actually pray that the Dear Lord would have pity on my soul and allow me to just go to sleep and never have to wake up again, after all what do we have to wake-up to??

    I am currently on Cymbalta 60mg, one in the morning and one at bedtime. This has helped a lot with the depression. I also take Lyrica 75mg morning & bedtime and Ultracet 37.5/325 (2 every 6 hours) these seem to make me very sick, so I haven't been taking them as perscribed.

    It seems to me if a person doesn't have visible wounds or something that can be outwardly seen, then the doctors, family, friends and everyone else for that fact, just doesn't take you seriously about how bad you feel. If I hear one more time, "But, you look well", I thinl I will scream! Just cause I may look well... doesn't mean that I feel well. I know my body better than anyone, I know what is right for me and I know when something is terribly wrong with me, and I'm saying there is something terribly wrong with me, but no one listens or cares, why is that...?
  9. Sheila1366

    Sheila1366 New Member

    That is why she won'y treat your pain.I have depression and my reheumy. completely understand my pain and the need to treat my pain along with depression.

    Because of some people do take these meds. just to get high it has made us that really hurt suffer.

    If I were you I would call around and find me a new dr.Pain makes you more depressed and I can't believe that stupid dr. couldn't make that connection.

    Honey, you get a new dr.Be sure it is a reheumy.Call ahead and ask to speak to a nurse.Ask if they treat FM pain with medication and treat fatigue.My reheumy. gave my daughter provigil just so she can work.

    This just makes me so mad.I wish I could go with you to that dr. and give her a talking to.She is afraid of being watched by the FDA.SHe cares more about making them happy than treating her patient.But let me tell you this,if a drug company wants to come in a dr.'s office and feed the whole staff steak dinners and give them gifts.The dr.'s and drug companies are best buds.If a dr. can get a free gift just by listening to a pharm.drug pusher he will glady take that gift and then never use the medicine.No tellinghow many steak dinners and gifts these dr.'s have been giving from the companies that are making new and better pain meds. and medication to help fatigue like provigil.I use to work for a surgical group.And these reps. would just sit in the break room waiting for dr.'s to sit if only for 2 minutes and bam he giets a gift.Insurance companies and dr.'s have a good thing going on.Sorry I got off the topic but it just makes me mad how this whole medical care treatment in this country is so bad.But it is far better than others and I guess for that I am thankful.It just makes me mad to see someone not getting the proper help they need.Get on the phone and shop around.

    Take care,
    Sheila
  10. noenergy

    noenergy New Member

    Shelia,

    I love you! You said it all. She even mentioned that several of the pain meds & medicines used for fatigue have a very high street value. I really don't care how much they are selling for on the streets, but in my opinion doctors like her are the very reason some people have to turn to the streets and what makes them so high.

    Why does a doctor diagnose you with Fibromyalgia and then refuse to treat your pain and fatigue. What is the point in being diagnosed in the first place. The diagnosis alone should be proof enough that I need some relief.

    Anyway I could rant and rave forever and it wouldn't change a thing, but I do appreciate your reply and I wish you could go to the doctor with me too!

    A Big HUG to you for caring!
  11. ritatheresa

    ritatheresa New Member

    That describes me too NO ENERGY!!!

    I just wanted to say hi to you!!! I hope you are able to find what you need and deserve.

    Take care, Ritatheresa