nexavir, where do you get it? -Pharmacy, which?

Discussion in 'Fibromyalgia Main Forum' started by LISALOO, Jun 14, 2006.

  1. LISALOO

    LISALOO New Member

    Walgreens couldn't findit on their computer. Where do you get this from?

    Thanks!
    [This Message was Edited on 06/14/2006]
  2. serenety

    serenety New Member

    I just typed nexavir in the toolbar 7 it came up with a few links, try it.
    Hugs Serenety
  3. serenety

    serenety New Member

    If you don`t find me asking but what is nexavir & what is it used for?
    Hugs Serenty
  4. serenety

    serenety New Member

    Lisaloo for the explanation. I`d never heard of it.
    Hugs Serenety.
  5. ulala

    ulala New Member

    Information for Patients - Direct Purchase of Nexavir®
    This information is provided solely as a courtesy to patients.
    Nexco Pharma is not affiliated with Custom Prescription Shoppe.
    As a service to patients who have obtained a prescription from their physician and are seeking a pharmacy to have their prescription filled, Nexco Pharma is able to provide the following information for The Custom Prescription Shoppe (CPS), a mail-order pharmacy that maintains an inventory of Nexavir ® and is able to fill your subscription upon receipt of the following:

    Patient should fax or email the following information to CPS:
    Patient Name, shipping address, and phone number to contact patient in the event of questions (email is optional)
    Patient Date of Birth
    Existing medical conditions and drug allergy information
    Physician's name, phone and fax
    Credit Card information – (VISA, MC, American Express, or Discovery) including Authorization Number on the card
    Patients must have their physician
    fax or phone prescription directly to CPS.
    Patient provided copies cannot be accepted.
    Custom Prescription Shoppe
    Nexavir Orders
    1313 E. Maple St. Suite #101
    Bellingham, WA 98225

    Fax: (360) 685-4243
    Phone: (360) 685-4242
    Toll-free: (866) 241-4927


  6. LISALOO

    LISALOO New Member

    Thanks, does anyone get it not directly from the company?

    Trying to get cost lower. Don't think my ins. will cover if not from a covered pharmacy.
    [This Message was Edited on 06/16/2006]
  7. ulala

    ulala New Member

    office in Torrance, Calif. He is an FFC doctor. 310-375-2705. Closed on Fridays.

    Hope this helps.
    [This Message was Edited on 06/16/2006]
  8. LdyM

    LdyM New Member

    Yes, Kent Holtorf does prescribe it. You buy it and the needles right at his office. They just called it liver extract. His FFC is called The Hormone and Longevity Center, so don't let that be confusing.

    I was on it for three months, but had to quit his center as I do not have insurance that will cover anything there.

    **LdyM
  9. ulala

    ulala New Member

    I had purchased a bottle of the liver extract about six weeks ago and when I called to get another bottle I asked about the Nexavir. They had just gotten it in.

    It is expensive, I don't remember the price. My insurance doesn't cover anything there either, so I have stopped going. They gave me forms to fill out for the compounded meds that I paid out of pocket for to submit to my insurance. I don't know if insurance will pay for compounded meds.
  10. LdyM

    LdyM New Member

    Hi, Do you remember if the Nexavir is more expensive than their "liver extract" was? It's a shame we had to stop going isn't it.

    **LdyM
  11. LdyM

    LdyM New Member

    Yeah, Holtorf's office seems to be way different than the other FFCs I've heard discribed. Some good, some bad.

    **LdyM
  12. ulala

    ulala New Member

    than the liver extract. I would have to look to see how much the liver extract was, but it was quite a bit less than his price for Nexavir. I remember finding the price of Nexavir from the pharmacy that sells it and it was less expensive than what Holtorf sold it for. I don't like being taken advantage of.

    I would try to get a Rx from a doctor and buy it directly from the pharmacy instead of their office.

    I think Dr. Holtorf is very good but very expensive. I had a follow-up telephone visit with him and was billed $285.00. My first visit with him, with an IV and three bottles of supplements was almost $800.00. Luckily my insurance paid for the labs. They wanted me to buy more supplements but I declined.

    I don't know where the closest FFC is besides their office. Did you see Dr. Holtorf? I think there is another doctor there who doesn't charge quite so much.

    What is your opinion of them?

    I think when treating a group of people who are generally disabled and unable to work that they should be more concerned with how the patient is supposed to pay these high prices.

    Where do you live? What doctor do you see now?
  13. LdyM

    LdyM New Member

    That's too bad about the price of Nexavir!

    Yes, I did see Dr. Holtorf himself and after a few visits saw the NP Deedee White instead to save $. There are two other Md's there, and I've heard favorable things about Dr. Whiteman, but do not know if he is less expensive.

    I am not seeing anyone now really, just limping along with my Kaiser Insurance. Now wouldn't it be miraculous if I could get a Nexavir scrip from backward, conservative Kaiser.

    I've recently started looking into Len Ochs, Ph.D.'s "LENS" treatment. "LOW ENERGY NEUROFEEDBACK SYSTEM". My brother is dating someone who also has CFIDS and is making a remarkable recovery.

    We'll see. I'm not sure I want to spend anymore of my savings on treatments at this point. I spent about $5,500 over eight months with Kent Holtorf with no improvement whatsoever. Although I must say that if I had had decent insurance we could have done more testing and gotten the causes pinpointed. He was aware that I only had Kaiser and did what he could for me.

    Actually I was disappointed in my treatment there. I researched throughly and considered such a long time before I took this giant step and well, nothing much came of it before I ran out of money. I had such high hopes.

    On the other hand, if I hadn't tried it I would always be wondering if it would have worked for me as it has others. Holtorf is a hormone specialist and my hormones weren't really in that bad of shape and as I said, he was never able to do the extensive viral testing needed.

    I live in L.A., so there is not another FFC anywhere near. I think Holtorf's office has a California monopoly.

    Where do you live ulala? Amazing to me that the phone consult was as much as an office visit. $285!!

    **LdyM

    [This Message was Edited on 06/20/2006]
  14. ulala

    ulala New Member

    you can only be treated by Kaiser doctors?

    I see a doctor who is really good and willing to try different things. She is in the 6300 block of Wilshire. She is an endocrnologist and treats FM.

    I also couldn't believe that a telephone interview was $285.00. I used a telephone recorder when I talked to him because otherwise I would have gotten off the phone and been lucky if I remembered one thing he said. He covers so many different things.

    I haven't hard about the LENS treatment but will do a search to see if I find anything about it.

    You should try to get a Rx for Nexavir. Did Dr. Holtorf test you for viruses? Mine were extremely high. If you get the Rx then you can get the Nexavir from the pharmacy.

    Let me know what you decide to do. I live in Brentwood.
  15. LdyM

    LdyM New Member

    So, I just attempt to be grateful that I have Health Ins. at all. Perhaps I will give it a go and see if my Kaiser Dr. will give me a prescription for Nexavir. Can't hurt to try, but first I have to come up with the ENERGY! Thank you for the encouragement. I am keeping all the pharmacy information you posted.

    I have CFIDS, not FM, but would still be interested in knowing the endo on Wilshire that you are seeing. Happy you found someone who is open minded.

    Yes, things were pretty much a blur when Holtorf was talking. I know it's me though, just too much to absorb. And no, he did not get to do the viral testing, due to my lack of insurance. That's probably why we didn't get anywhere. He was guessing as best he could, as my symptomology is viral.

    Here are a couple of websites regarding Dr. Ochs and LENS. 'Center for Neurofunctiong' and 'OchsLabs'. He answered my email personally regarding a LENS practitioner in this area. There is one in Ventura. I'm in Los Feliz.

    There is also a book (available anywhere) 'The Healing Power of Neurofeedback' by Dr. Stephen Larsen, which I am now reading. I may do this treatment when I can. I have such horrible problems with sleep and some anxiety now also, since I became ill.

    I will keep you posted ulala and please do the same, although don't expect much real news soon, as it now takes me forever to get things accomplished. But I won't forget.

    **LdyM
    [This Message was Edited on 06/20/2006]
  16. LdyM

    LdyM New Member

    With J. Teitelbaum taking over as FFC Medical Director from K. Holtorf, perhaps that will unlock CA to be open to additional FFCs. I noticed on their website that 'The Hormone and Longevity Center' is now listed as an "affiliate" office.

    With our huge California population, we are lacking FFC's and I would like having the option of trying another doctor in their system in the future. (One like Dr. J. in Cleveland or Dr. Sharpe.) I also may be relocating to the Northern S.F. Bay Area in a couple of years and perhaps there would be one in No. CA by that time.

    Just a thought.. I do think Teitelbaum will improve things though.

    Take care and do let me know who your Wilshire doctor is.

    **LdyM


    [This Message was Edited on 06/20/2006]
  17. ulala

    ulala New Member

    or the politics of the FFC. It would be nice to have more FFC's around, maybe they would compete for patients and lower their prices.

    Can you see an infectious disease doctor at Kaiser and have them test you for Epstein Barr, HHV-6, CMV etc? Have you tried Valtrex? What viruses do you have? Did you try the porcupine extract that Holtorf sells? I used one bottle and did feel that it helped a little.

    Let me know what you decide to do.
    [This Message was Edited on 02/05/2007]
  18. LdyM

    LdyM New Member

    and the Kaiser suggestions! Sometimes I just give up on Kaiser and figure they cannot help me at all. I takes fight to work with them and I appreciate the encouragement.

    Quick answers: Not tested for viruses, have not taken Valtrex, Porcupine extract was not mentioned.

    Preoccupied with elderly mother in No.Cal.'s health crisis at present. Brother there is handling it, but need to get up to see her and help ASAP. Car broke down Friday.

    Soooo, it will be an even longer while before I act on anything, but will keep in touch.

    Thanks again and love reading all your posts, **LdyM
  19. LdyM

    LdyM New Member

    Do the bump.
  20. Diana333

    Diana333 Member

    The Village Pharmacy in Houston, Texas is the only Parma y that sells it. It's been on back order for months.
    Phil Pylant is the compounding pharmacist.