No Respect from Doctors

Discussion in 'Fibromyalgia Main Forum' started by hsainty, Dec 21, 2005.

  1. hsainty

    hsainty New Member

    Hi all, I suffer from M.E which leaves me unable to do the things I used to do as I have no energy. When I go to the doctors they seem to be laughing at the illness, does anybody have the same problem?
  2. tansy

    tansy New Member

    Hi Hsainty and Welcome.

    I suspect you are going to get lots of replies to this post because sadly this happens to a lot of us.

    It was always bad in the city where I live but since the psychologisers have had so much influence here in the UK, it's even worse. Every local PWME I've asked about finding a new GP tell me they don't know of any and to let them know if I find one.

    Our health system is different to that in the US; in theory there's choice, in practice there's very little. The local Hospital Trust is no better, though I have seen a few good ones, they're just in the wrong specialities. Suggestions for Tx were made but refused by the GPs I'm registered with.

    I had a GP appt today, thought I was seeing one and ended up seeing another, the receptionist had made a mistake. This was the doctor who ignored my cervical spine issues, left me with profound insomnia because I cannot tolerate the ADs he hands out to PWME as if their smarties, and refused referrals. And that's just a small part of how he neglects any patients Dx with ME or CFS including me.

    We spoke about a few things; he was his usual distant but smiling self, not listening, and dolling out his usual verbal pats on the head. The only thing that changed his expression and attitude was when he asked after my son, they belong to the same rugby club and he hadn't seen him there this season. When I told him why that at least did get through to him.

    What an afternoon!

    So it's back to self treating and relying on one overworked specialist whose consultations, tests, and Tx, I have to self fund 100%. He has too many patients and undertandably not enough time to deal with non ME and borreliosis/lyme problems.

    love, Tansy[This Message was Edited on 12/21/2005]
  3. minimonkey

    minimonkey New Member

    Yes, this happens all the time. Most mainstream doctors rely entirely on what they have been taught in medical school, and that means little or incorrect information about these various conditions. Frustrating, yes, but not entirely the doctors' fault... they are doing what they have been taught to do.

    In some ways fm/cfs/etc *are* wastebasket diagnoses -- not because they don't exist, but because doctors tend to throw anything and everything they can't otherwise diagnose into this category, thus perpetuating the confusion. And yes, this can lead to ignoring very diagonosable and treatable conditions -- it happens all the time.

    Keep searching -- there are docs out there who either know about your condition, or who are willing to learn and work with you... there's no reason to stop searching for someone who can help!
  4. sharon5650

    sharon5650 New Member

    Yes I know exactly what you mean, I just went to the gyno last week, I felt so sad when I walked out.. I wanted some help with something..and when I mentioned the fibro and chronic fatigue, he almost rushed me out...He told me to ask my Family doctor, my family doctor told me to speak to my reumy, who told me nothing is wrong...to speak to my physciatrist...who actually is the best, well, besides my ENT..who I see the most for the throat infections all the time. I feel so humiliated with all of this, what are we all going to do? this is not acceptable anymore...we are being treated like animals...even they are treated better. sharon5650
  5. GwenGlo

    GwenGlo New Member

    ...of a doctor. I gave up mentioning any problem I have because I know that his answer will be...one of two things.
    'it is your age' (don't remind me) or
    'it is part of the package' (meaning chronic fatigue)
    He has NEVER said to me 'how are you today'?
    I now only go when I need prescriptions.
    The rest of the time I try to treat myself but I'm not very good at it because my condition is not improving.
    I cannot get another doctor because in the area I live (Ontario, Canada) there are people who have no family doctor...45,000 to be exact.
    Oh yes, did I mention we have free medical 'care'?
    Gwen
  6. LittleBluestem

    LittleBluestem New Member

    Don't pay another medical practioner until you know they will offer you some help. Interview the doc and/or the staff before making an appointment. If they say that they treat M.E., ask what type of treatments. If they say antidepressants or exercise or anything else that sounds stupid, keep looking.
  7. alaska3355

    alaska3355 New Member

    We had a good one last week. My son had a blood test (I was researching Addison's, which he doesn't have) and later the nurse (?) called back to tell us that his triglycerides were high. She said he should start exercising and lose weight. My husband said, he can't lose any more weight, he's lost 25 pounds already. After he hung up, he got mad. She hadn't even looked at his chart, or the person, before telling him to lose weight. Someone could get hurt with that bad information! My husband did call and let them know about it, which will help prevent future mistakes (I hope)....
  8. jakeg

    jakeg New Member

    I had one that just may top them all. He told me that my FM is and was caused by my smoking 1 1/2 packs a day and my drinking 0 to 24 oz of beer a day. Needless to say I reported him to the medical board and my insurance carrier. This doc knows what FM is but just doesn't care to treat people that have it.
  9. justjanelle

    justjanelle New Member

    I had to see an orthopedic surgeon due to a badly broken foot that's going to require surgery after New Year.

    He had a disgusting smirk as he was reading down through the "new patient" info where you list any medical conditions -- since I don't have any conditions I find particularly funny, I can only assume he's another one who either "doesn't believe in FM" or thinks it's a psychological issue rather than a physical one.

    Unfortunately, I'm told he's the best doctor in town to fix the multiple problems with the broken foot. So I'm stuck. But at least I don't have to have him as my regular physician!

    Best wishes,
    Janelle
  10. rockgor

    rockgor Well-Known Member

    Although you can see the effects.

    Saw a documentary on Obsessive Compulsive Disorder. Patient kept trying to make a phone call. She would punch 3 or 4 numbers, hang up, start over, try again, over and over.

    What as the cause? Was it a real disease? Is there a test?

    It was real to the patient who had to give up practicing medicine.
  11. hsainty

    hsainty New Member

    Thanks for all the replies its good to see other have it and its not just in my head
  12. jake123

    jake123 New Member

    Along this same line, I saw my neurologist last week and told him of my last visit to rheumatologist.
    The first doctor came in (he is a doctor who is there to get his specialty in rheum.) and went over my chart and talked to me at least 15 minutes and examined my hands which were my chief complaint and noted that I needed some pain medication and a bone density test.
    Then the regular rheumy came in read my chart did no examination asked if I was taking calcium. Said I needed a bone density test. And I don't think pain medication is necessary for this patient.
    The rheumy is fired. The neuro gave me the name of a new one and gave me a prescription for Skelaxin which is working out really well.
    I told the first doctor that I needed something for pain so I could do the things I use to do.
  13. KittyCat

    KittyCat New Member

    I'm trying to find a new doctor now. The office I have been with for the past 5 years was great UNTIL my NP left a month or so ago. She was so sweet and kind and understanding. Now the doctor sees more of the patients, and he was unbelievably rude and mean to me the last time I went. I don't know why he turned on me. I was trying to get him to fill out my paperwork for my disability application (State and SSA). He refused saying I need to see a Psychiatrist. Maybe so, but there's no excuse for the rudeness. I left his office in tears and asked the medical assistant for a copy of my records. She was very nice and provided them for me. She even told me not to worry about paying my co-pay. How do we go about finding a good and compassionate doctor that will treat us with some kindness?