Discussion in 'Fibromyalgia Main Forum' started by shari1677, Mar 26, 2009.

  1. shari1677

    shari1677 New Member

    Gotta quick question. Can someone please explain to me what their pain with noise is like? I think I have it, but I'm not sure.

    Example: Some noise, feels like an electrical current going through my body - like my insides, muscles, joints are being electrocuted.
  2. Nanie46

    Nanie46 Moderator


    I have a sound sensitivity, especially in the morning. I also have light sensitivity.

    I recently found that the cause of my FMS is a chronic Borrelia burgdorferi infection, so I am now treating it.

    I do get feelings of "electrical current" going through my body, along with other things like pins and needles, stabbing pains, numbness and tingling and sometimes almost a buzzing feeling.

    [This Message was Edited on 03/27/2009]
  3. satchya

    satchya New Member

    My husband always teases me that anyone who didn't know me well would think I have a constant hangover. As soon as the kids get loud (and I have three, so it can get pretty loud), I am in pain. They're sweet kids, though, so they work with me ;) It's an ingrained habit in all of them now that when the t.v. switches from t.v. mode to the wii (the volume goes up automatically for some reason), they all say "Turn it Down!"

    Noise doesn't always effect me (for example the music in my cardio funk class is really, really loud and it doesn't bother me), I think for me when I feel like I can leave or turn it off at any time, I'm okay, if I feel trapped in the same place as the noise or out of control of the noise, then I have a harder time.
  4. Janalynn

    Janalynn New Member

    I've actually tried to explain this to no avail. All I know is that loud noise makes me extremely irritable and I have to cover my ears - it bothers me to the core. VERY hard to describe.

    I've always been sensitive to sudden loud noises - I can't even stand to open those biscuit things that pop open. I have to leave the room when I make my husband do it. WEIRD, huh?

    When I'm already in pain, if someone gets ice out of the fridge door, bangs a pot, opens a bag of chips anything like that - it sends me through the roof!
    People talking over one another - laughing too loud - that bothers me as well.

    There's a girl that sits behind me at work, that laughs SO loudly at the weirdest times, I have actually out of reflex yelled "SHHHH" - how terrible to ask someone to stop laughing!!!

    I feel your noise pain. Just wish I could describe it!
  5. lvjesus

    lvjesus Member

    Here is one possible explanation, and I know for a fact that this has caused my pain at noises sometimes. When there is a loud sudden noise and I get startled, my muscles tense up (like when you jump at a sudden noise) and that makes me hurt.

    A lot of us have problems with sound sensitivity and that is where you hear people saying they are bothered by loud noise - it is like a jack hammer in your brain, really unbearable.

  6. TeaBisqit

    TeaBisqit Member

    It's like having a migraine or a hangover but without the head pain. The sounds HURT. I'm also light sensitive, so I get both, usually without a headache.
  7. AuntTammie

    AuntTammie New Member

    I can't handle opening those biscuit things either....I actually hold my hands way out so that my arms are over my ears when I open them!
  8. lca

    lca New Member

    I just so happen to be reading a book right now titled "Too Loud, Too Bright, Too Fast, Too Tight" by Sharon Heller, Ph.D. I was in Barnes and Noble and the title drew me in like a magnet.
    On the cover reads,
    "What to do if you are sensory defensive in an overstimulating world. Do clothing labels bother you so much that you have to remove them? Do you find many different foods repulsive? Do loud, sudden, or piercing sounds startle you? Do you need to wear sunglasses even on a cloudy day? Do you feel panicky going down an escalator or driving through a tunnel?
    If the answer to many of these questions is yes, you may suffer from sensory defensiveness, a common but often misdiagnosed condition that results from adverse reactions to what most people consider harmless sensations. Development psychologist Sharon Heller, sensory defensive herself, suggests that the best way for sufferers to cope is not psychotherapy or medication but a host of other treatments that tap into the primitive brain.
    "Starting in infancy, sensory defensiveness can become increasingly debilitating as the child with this often undiagnosed condition grows up. In this remarkable book, Dr. Heller educates, comforts, and guides adults who have struggled for a lifetime with overwhelming sensations from their body and environment-sensations they could neither understand nor control."
    It starts out with a check list of symptoms. I have most but not all of them. Mainly I am bright light and sound sensitive. I was suprised and actually excited to read that Chronic Fatigue Syndrome and Fibromyalgia were probably responsible for this condition. I'm only half way through the book, hoping to get to the part that offers ideas for helping strategies. I'm tired of being trapped in a world of lights, sound, and clothing that normals don't give a second thought to. It's not right and it's not natural to flinch at every little thing in life. I can completely sympathize with you. I hope this book will have answers we are desparately looking for.
    Just as an example of how sound sensitive I am, when I put lotion on my hands, I have to wrap the plastic bottle in a towel to snap the cap shut to muffle the snapping sound. At night the light sensitivity seems worse and watching TV is almost impossible and I always feel on the verge of a seizure.
    [This Message was Edited on 03/28/2009]
  9. Clay2

    Clay2 New Member

    We used to have someone here who knew a lot about this subject. Her posts were fascinating. There are a lot of ways your brain can go wrong with noise, some of which can be helped with therapy.
  10. charlenef

    charlenef New Member

    check out the hyperacusis network website I have hyperacusis but they explain other sound sensitivity also
  11. TaniaF

    TaniaF Member

    After numerous visits to several specialists--two confirmed that I had "migraine syndrome" (a neuro and opthamoligist). Check it out on google--you don't have to have a headache to have the symptoms of this syndrome. At first I thought they were nuts, but the more I read, my symptoms fit the syndrome.

    I also think many with FM & CFS will experience these sensitivities.

  12. Didoe

    Didoe New Member

    here's a not so quick answer--great question, thought i was only one with this problem

    between ptsd and fibro, loud sudden and intense noises are felt all over, but more than the actual immediate discomfort is the after effect--it feels like a truck hit me although nothing touched me.
    I have to take the subway 2x a day and the screeching of trains on tracks as they turn and brake sometimes is worse than a knife thru my ears. I have to cover my ears the pain is so strong and I see no one else is bothred--people sit reading, listening to their music as if the horrid sounds arent even happening.
  13. ephemera

    ephemera New Member


    I've had sensory overload for about 5 years now. It is by far the worst of my problems - worse than CFS exhaustion or my FM pain (8+ years), worse than my brain fog or my multiple chemical sensitivity (MCS). It has the largest & most devastating impact on my life.

    My electrical impulses & vibrations developed soon after back surgery. I suddenly felt like a tuning fork responding to common sounds like hairdryers or computers. I was able to handle the pain as the sensations were short lived & ended when the noise stopped.

    My pain soon increased & changed into shooting pains down the spine. MCS developed around this time & my vision started to give me problems, sort of telescoping images far to near or near to far. The combination of sounds & vibrations causes sudden balance problems, nausea, headaches, extreme pain & confusion, etc. So much of this is interwoven & lasts for a long time, sometimes hours.

    My absolute worst sounds involve motion (like helicopters) or very loud noises like lawn mowers, leaf blowers, etc. Everywhere I go I take headphones & ear plugs. If noises happen close by in my neighborhood I head to the basement until they're over. I don't get pain if the noises are far away. Proximity really is the key for me.

    I'm not on this board as much as I used to be due to dealing with other medical problems. I've seen lots of docs & been told I'm the worst sensory case they've seen.

    If you're into doing research on line, lots of info is out there. I just wish a scientist was doing advanced work & ready to annouce a breakthrough.

    At the suggestion of a doctor I tried CBT therapy for my sensory overload. The CBT trained PhD therapist never saw any patients like me, but by my 2nd session he said it became obvious to him just how much there is in the world for patients to physically, not just emotionally respond to.

    I hope in some way you find some relief.
  14. ironspine

    ironspine New Member

    My eardrums feel like someone hammered them when there is a loud noise-talking, TV, rattling, my sons' toys...I always have to have the TV remote so I can turn down or up the TV (stupid commercials always blast away..)
  15. MG_ATL

    MG_ATL New Member

    Hope this helps.

    PITATOO Member

    It is not a constant with me. I think if I am in a flare noise really bothers me as I'm even more super sensitive, to sounds, light, smells etc.
  17. AuntTammie

    AuntTammie New Member

    Thanks for the links - I have had never heard of misophonia before, but wow - I definitely have it.....noises can really bother me a lot
  18. ilovepink4

    ilovepink4 Member

    i didn't have many problems with this except I can't handle large groups with their roaring noise or my boys roughhousing in the made me very anxious...

    but, on my last dentist checkup, the florescent bulbs over head made me get that those waves of roaring in my ears that you get when you have a high fever...I couldn't look at those was too overwhelming...

    so, they gave me the big sunglasses they put on people with cataracts that can't be exposed to bright light....i felt dumb but much better...

    so, maybe this is just going to get worse over time since it didn't bother me before...
    Oh, i used to get exhausted from going to church....and didn't know if it was the lights or the sound of the priest in the microphone puffing his p's....or the way the sounds bounced off the walls but, it just wiped me out!
  19. loto

    loto Member

    My sensitivity to loud noises is a lot like yours. It just makes me really irritable! And, there's a lady that sits across from me at work that has the loudest, most irritating voice I've ever heard in my life! And she'll practically yell into the phone or into the other room to call out for someone else. I just want to SCREAM at her!!!!!!! It got so bad I requested a partition to be put up between us (even tho that doesn't do much for the noise) so I wouldn't have to look at her all the time! Just her loud voice makes me not like her at all. (well, not totally true, she's done many other things that made me not like her)
    Anyway, it's so frustrating!

  20. loto

    loto Member

    How did you find out the Borrelia burgdorferi caused your FM?

    I tested negative for Lyme, but that was present in my blood when I had the western blot test done.

    So, my doctor didn't say anything about that and I didn't pursue it any further. Just wondering if I should???