Not So Sure About New Specialist Now

Discussion in 'Fibromyalgia Main Forum' started by serenityskyline, May 26, 2010.

  1. serenityskyline

    serenityskyline New Member

    I went to see a new specialist to treat my fibromyaliga three weeks ago and have to go again in a week and a half. However, the Saturday before I saw her I fell and landed on my knee across and bar and ended up with some fluid on my knee. I saw the fill in for my regular doctor and since I already had the appointment scheduled for the specialist I did not need to return for a follow up with her.

    Did not have a bad feeling about the specialist when we left her appointment. However, I was out of work all week with my knee (not out because of my fibromyalgia) and after filing my short term disability for that week I found out exactly how the specialist feels about people with fibromyalgia.

    Now before I get to what she told the STD representative, she filled out the FMLA for me and put that I should only miss one day out of every six weeks. I told my husband she has high hopes for the medicine she changed me over too.

    She told the STD rep that she did not believe that someone with my health condition (Fibromyalgia) should ever be on disability for any reason what so ever!

    So now I am debating if I should continue to see her and see if she helps or just tough it out this next appointment and find someone else.

    SO HARD TO FIND A GOOD DOCTOR FOR FIBROMYAGIA!! I have come to the conclusion really we need a fibromyalgia doctor who has fibromyalgia to understand it at all!!

    God Bless!!!
    [This Message was Edited on 05/26/2010]
  2. Misfit101

    Misfit101 New Member

    Kind of so called specialist is this? Surely not for fibro? If she is a fibro specialist shes way off base. How can anyone predict that someone with this DD would only need one day off every 6 weeks? Shes a psychic as well? Unfortunately she sounds like so many others who dont take their fibro patients seriously. Strictly speaking in a personal try to find another dr. She wouldnt be right for me.
  3. ilovepink4

    ilovepink4 Member

    Find a new doc. You don't want this kind of information polluting your records. It might come back to haunt you.
  4. serenityskyline

    serenityskyline New Member

    she is a muscloskelatal rehabilitation and sports medicine doctor, with a speciality in fibromyalgia. I like the idea of being on a medicine that is "supposed to help my pain and help with all of the weight that i have gained" with this. I told my husband after her disability remark I wondered what she would say about all of the people on here that are on disability because they are so bad off now.

    I understand that I have a lot of days that I have to absolutely force myself to get out of bed and go to work. And still at that it is a constant struggle each and every day. People who don't have it or know someone who has, do not have a clue. She said that she has found out from her fibromyalgia patients that "the more active that someone with fibromyalgia is the better they feel".

    I have been to so many doctors for this and still not found the "right fit" for me.
  5. luckyman

    luckyman New Member

    Continue to work with your present doctor and follow her recomendations to the best of your ability as long as it doesn't make you worse. If the treatments/medications are not helping, very calmly discuss the matter, and ask for other therapies that may be beneficial. Keep a positive attitude and let her know you would like to continue working full time. Be aware that her notes/treatments will become part of your permanent records, so be very careful as this doctor can make it very difficult, as the records will follow you.

    Next, you need to find a new doctor as soon as possible and establish a positive working relationship with him/her. Describe how difficult particular activities are for you. Have a spouse, friend, or family member go with you and they can help the doctor understand. Most doctors want to see evidence, and you need to provide it. I know you may need pain meds NOW, but it is really unlikely that you'll get what you need on your first or second visit. It takes time, trust, and many trials of different medications before most physicians will write out a script for the kind of pain meds that many of us need. Your old records can help you here, as they can show the meds that have already been tried. This will allow the new doc to work the way up the ladder a little quicker. On the other hand, if your old records show you are a depressed drug seeking malingerer, with a probable dx of somatization, all you'll get is a referral to the local psychologist and a script for antidepressants.

    Good luck, we are still fighting a lot of ignorance despite all the research that has been done. I think someone mentioned above to look for a younger doctor who is more likely to be current and not as entrenched as some of their seniors.

    Good Luck!
  6. serenityskyline

    serenityskyline New Member

    I have had fibromyalgia for over 10 years now, so you can imagine the meds tried (including Cymbalta and many others) and the numerous doctors also. The majority of the time I have just had to "tough" it out because nothing helps.

    I have to continue to work full-time because my husband has epilepsy, so he is unable to. He is wonderful though, he does everything around the house for me!!!

    God Bless you all every day!!!

    People do not realize how much life that they take for granted until something like "fibromyalgia" comes along. Just take each day and thank God for the little things. I do!! Especially my 22 month old grandaughter, who can make you "feel better" by just giving you a hug and kiss!!!
  7. kokabean

    kokabean New Member

    Amen sister! I am in the same boat.
  8. serenityskyline

    serenityskyline New Member

    I have decided that I will cancel my follow-up appointment with the specialist, I don't need someone who will cause me more harm than good. Any doctor can prescribe medicine. I will also make the suggestion to my g.p. that she does not send any more fibromyalgia patients there and why.

    It has been flaring really bad lately and I don't need the additional stress that she adds to it.

    The way that she filled out my FMLA is going to cause me issues with days missed with work and so forth of course. Not something that I can get into at this time.

    If you pray please pray for me and a few decisions that I will need to be making.

    God Bless each of you!!!
  9. kellyamos

    kellyamos New Member

    I am so sorry to hear what you are going through. I have FM and RA. I see a Pain Doc and he has given me back my life. I take Oxycontin and Oxycodone for break through pain.

    I know many people do not want to get on narcotics. I was one of them. BUT, if I can take a pill that allows me to continue to work full time and have a somewhat normal life, you bet I am going to take it.

    If you haven't tried a Pain Specialist yet, I highly recommend you at least give it a try. It sounds like you are at your wits end. I was there 5 years ago, but after getting on the Oxycontin, I am able to live somewhat pain free.

    I certainly wish you the best and keep us posted.

    Take care,


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