Not sure if we belong here

Discussion in 'Fibromyalgia Main Forum' started by ChrisNewton, Mar 19, 2006.

  1. ChrisNewton

    ChrisNewton New Member

    Hi
    I am Chris, my husband Colin has not been well for over 3 years. He has been diagnosed with celiac disease, hashimoto's, psoriasis and sleep apnea. He is now 47.


    What is left, now that we have all his autoimmune illnesses are back in their boxes, is what seems to be CFS. He has an appointment in May to see an immunologist about this.

    I read some of your storys and it seems that your fatigue can be very debilitating. Colin sleeps 10 hours a day most days; up to 15 hours if he has done physical labour; he is worse with rain and cold weather; we are now managing his joint pain; but he still gets hot when he has a flare.

    He is able to work full time at an office job, but I doubt that he could do it if it was manual labour.

    Does this sound like we belong here?

    Thank you for listening
    Chris
  2. Jane_Canuck

    Jane_Canuck New Member

    hi and welcome!

    Of course you belong here! I am so sorry to hear of your hubby but you will find here that we all can relate to this!

    I recommend reading the book What your doctor won't tell you about fibromyalgia, by doc paul st armand. In mmy fibrofart moment if I do not have the title and author 100% right go to guaidoc.com his book and right spelling of his name is there. lol

    It is helping alot of people on this board and is pin pointing alot of things for myself with this danged disease too.

    Research old posts and ask lots of questions! There are many helpful folks here.

    Happy first day of spring! Brenda
  3. GwenGlo

    GwenGlo New Member

    I think the best thing we can all do for ourselves is become informed.

    The internet is loaded with good information especially the ones which are 'associations'. For example the CFIDS Associaton of America or ones similar to the website which sponsors this message board.

    In my opinion there is no substitute for being fully informed about our afflictions especially when we go to see 'specialists'.

    Blessings to you and welcome. Gwen

  4. victoria

    victoria New Member

    CFIDS & Fibro are a little bit different for everyone it seems... there are a lot of variations on symptoms and what seems to work, there doesn't seem to be one answer for all yet.

    BTW, has he been tested for Lyme? My teen son started showing up with many of my physical symptoms at 16 - he has had 2 positive Lyme tests and is currently on abx... he also gets a fever at times, has joint/muscle aches that migrate as well as certain places where it always is... mental fog, sleeps 12+ hours & awakens unrefreshed, etc...

    just a thought - if he hasn't already been tested, you may want to rule out some of the stealth pathogens like Lyme & other tick diseases plus mycoplasma, c. pneumonii, etc... they are cell-wall deficient and can hide out in the body within tissue & blood cells.

    In fact from what I'm reading we may never really get rid of them totally thru treatment, but just keep them in remittance - like herpes infections (like h. zoster/chickenpox).

    All the best,
    Victoria
  5. ilovecats94

    ilovecats94 New Member

    I'm sorry to hear about your husband. I have FMS and as it is my husband does work full time and does all the errands and grocery shopping. We have a cleaning girl to come in every other week.

    I knew I had to quit cleaning as it was exhausting me and putting me in flares. I couldn't live that way. Now I'm like a slug and I can't do much of anything. It just affects me emotionally, physically, mentally...

    Good luck to your husband and wecome to our support group.

    Hugs,
    Faye

  6. skierchik

    skierchik New Member

    Absolutely, you belong here, however, I'm sorry that your husband is sick. I, too have CFS/FM and two autoimmune diseases, but am doing really well.

    Reading this board will be very helpful to you and your husband. The thing that helped me the most is reading about CFS. I started at our local library. This empowered me to find answers even though doctors weren't giving me any. You may have to search for a long time to find a good doctor, but don't give up...they're out there.

    Welcome!!

    skierchik
  7. RockiAZ

    RockiAZ New Member

    Sorry to hear about all your troubles. I know this must be hard on you as well. Please feel free to join us anytime - we are very glad to have you.

    I sincerely hope you get some answers at Colin's next doctor appointment in May.

    Live, Laugh, Love,
    Rocki

  8. halo52208

    halo52208 New Member

    Anybody is welcomed here. I can't tell you how much this board has helped me, even with things that have nothing to do with my illness.

    I'm glad you found us and you will enjoy it, I promise.

    Halo