Not Yet Diagnosed - Have Questions

Discussion in 'Fibromyalgia Main Forum' started by BRYANM, Mar 16, 2003.

  1. BRYANM

    BRYANM New Member

    I have not been diagnosed with FM, however, all symptoms fit. I have had ulcerative colitis for 5 years and have had 3 flare-ups, the last one not as bad as the other 2. Hospitalized for a week on those. The last flare just ended. I'm 45 years old and weigh 175. Lost 40 pounds last year on a low carb diet.

    About a year ago, I started having headaches, dull eye pain and extreme fatigue several times a day that required a nap. After awakening, I would feel worse with muscle pain, a stronger headache and a feeling of internal shakiness. This occurs almost daily, regardless of when I eat. The internal shakiness now exists all the time. I cannot sleep at night without Ambien. Most mornings when I wake up, I feel like I have not slept and I ache all over, in the points indicating FM with some worse than others. I have arthritis in my hips. My neck and shoulders ache continuously. After a day of working in the yard, I ache for the entire next day.

    I've been tested recently for Celiac Disease and the results were negative. More recently, I have numbness in three fingers of both hands, the middle, ring and little, with shooting numbness from my arms to them. This is most all the time but worse when laying down. Additionally, when I stand up from bending or laying down, I usually will have a fallout, like low blood pressure.

    I've been to a rheumatoligist and she has now referred me to a neurologist. Appointment on the 26th.

    Can anyone tell me if these symptoms sound like FM? It's sometimes hard to be objective when looking for an answer.
    Any answers would be greatly appreciated.
  2. Shirl

    Shirl New Member

    Hi Bryan, welcome to the board. some of your symptoms sound like Fibro, others don't. You really need a doctor to diagnosis you for this.

    The muscle pain, the sleeping but not resting (no stage four sleep) is sure sounds like Fibro too.

    We are not doctors around here, but we are the 'victums' of these two illnesses! FM/CFS is so hard to diagnose that it takes some time to get it all together and find a doctor that is willing to really take an interest and work with you to rule out other ailments first.

    Others will be here soon to share their opinions with you too.

    Again, welcome to the board, and hope we hear from you often. Good luck with the doctors.

    Shalom, Shirl
  3. shoobacat

    shoobacat New Member

    The classic FMS patient has up to 18 tender point locations which can be identified by any physician in the field of Arthritis or Rheuatism. For more information on FMS visit fmnetnews.com - this site lists the tender point locations. My physical therapist diagnosed me (I had already been diagnosed for CFS for many years).

    I was sent to several neurologists in the process of being diagnosed. I've now found that when seeking a physician I ask when setting up the appointment to speak to a nurse on staff, and then I ask what the doctors treatment protocol is for my illness. If they don't have a protocol then the Doctor most likely will just be a waste of money. (I spent almost $10,000 at Mayo before finding out they don't diagnose or treat CFS or FM).

    Also, see if you can find a FM support group in your area, local hospitals are a good resource or else look on the web. Support Group leaders are a great source of information.

    Best of Luck!
    Rebecca

  4. Mattie52Texas

    Mattie52Texas New Member

    I have the internal shakiness you speak about also. I have not been diagnosed either. My problem is I live in small community with not much in a way of physicians.

    We have a neurologist but he does not take my medical insurance.

    I am still researching however.

    Back to the internal shakiness I have been experiencing this with this latest flare up I am presently in. Also am experiencing extreme anxiety almost to the point that I feel like I am having a heart attack. The internal shakiness feels almost like heart palpitations and I experience those sometimes also.

    My other symptoms are classic, neck pain, shoulder pain, just generalized body aches. Irritable bowel syndrome, on occasion my jaw feels like it will lock up, and sometimes it flares up in my hips, legs and I have even had flare ups in my feet.

    I have the classic migraines also, sinus problems, pain behind my eye, and my breast hurt.

    I am 50 and have already gone thru menopause and am presently on HRT, which I will not give up because of the hot flashes although I am well aware of the recent controversy.

    What else can I say about myself except that this is my first time posting on this board but I have come in and read messages quite often. It has been very helpful and sometimes in reading these posts I feel like I am reading my own story. For the most part it is a comfort to read some of your posts because at least I know that I am truly not going crazy.

    Many Blessings, Mattie.



  5. lch937

    lch937 New Member

    hi mattie

    I am new to the site as well. Been checking it out for a few days - mostly on the depression and candida sites. I have been experiencing internal shakes, anxiety, chest pain, trouble sleeping and have been having chronic daily headaches for about 6 months. My Dr. mentioned FM as a diagnosis once,(that is why I am checking out this site) but I did not have much pain in the trigger areas. Anyways they are now thinking depression. I am not sure what my problem is - I am reseaching. Good Luck to you and welcome to the board. It is a geat place to share info.

    Laura
  6. lch937

    lch937 New Member

    hi mattie

    I am new to the site as well. Been checking it out for a few days - mostly on the depression and candida sites. I have been experiencing internal shakes, anxiety, chest pain, trouble sleeping and have been having chronic daily headaches for about 6 months. My Dr. mentioned FM as a diagnosis once,(that is why I am checking out this site) but I did not have much pain in the trigger areas. Anyways they are now thinking depression. I am not sure what my problem is - I am reseaching. Good Luck to you and welcome to the board. It is a geat place to share info.

    Laura
  7. layinglow

    layinglow New Member

    BRYAN--hi and welcome to the board! Your rheumatologist is following the typical path, referring you to a neurologist. Fibromyalgia and Chronic Fatigue are diagnosed after other possible causes for your symptoms are excluded. You do have symptoms of Fibro, but they can be symptoms of other ailments as well and should be investigated. Best wishes!

    MATTIE-Welcome to the board, also. I live in a rural area in Texas, and make a days drive to see a Fibro/Chronic Fatigue Specialist. Where do you live in Texas?

    LL