Now this is wierd.....

Discussion in 'Fibromyalgia Main Forum' started by COOKIEMONSTER, Apr 29, 2003.

  1. COOKIEMONSTER

    COOKIEMONSTER New Member

    For all of you that have had to deal with Fibro it seems forever, this question is directed to you.

    When I was first diagnosed with Fibro, I remember that I would only have severe pain around my menstrual cyle. Now it seems that I am in pain on a daily basis.

    My questions are:

    When I first started with pain just around my period, was this just the beginning stage of Fibro?

    Will my condition continue to go downhill or is there hope for me?

    The reason for my questions is that lately my hips, legs, knees and ankles have been killing me, without excluding my upper extremities, which are not as severe. The funny thing is that the pain tops off after about 6 hours and then I have this itchy feeling all over my body that I can't scratch cuz it's inside of my skin.

    Does this happen to anyone or can someone tell me whats happening to me?



  2. Dayle

    Dayle New Member

    that itching is actually a mild form of PAIN. Itching is just how our brains preceive it. Interesting!!!!
    Love,,,Day
  3. loopyloo

    loopyloo New Member

    My ME started from the ankle hurting then seamed to work its way up every few months to my knees and ankles then hips as well then shoulders as well then hands arms back neck hands head ect but it did get worse as it went on and took me 5 years of seeing diffrent doctors specialist examinations and medicals to get diagnosed i new some thing was wrong its getting people who think because you look ok you are ok, when your not, your in pain but they can't see the pain,
    getting diagnosed is half the battle the second half is progressing from day to day when you feel like poo (sorry cant swear the s word is what i mean) and explaining to other people who dont understand just dont get it, and dont understand it

    good luck Loopyloo xx

  4. sue7

    sue7 New Member

    I first got sick when I was about 34 years old. All of a sudden I began to go thru' premature menopause at 34!!! I am now 52 and am happy that I haven't had to deal with periods for all these years, but I get that itchiness that you talk about whenever it gets really hot and humid. It is so bad that I can't hardly stand it!!! It's like I am allergic to my own sweat! I think there is a link between Fibro and reproductive problems. My daughter has symptoms of Fibro too and for years she has only been able to concieve once which ended up as a tubal, therefore last spring we lost our baby! I really believe all this is environmental and our bodies are reacting to pollution and lack of much needed vitamins in our food. Check out my message on MSM. I think it will help you! sue7
  5. sue7

    sue7 New Member

    I first got sick when I was about 34 years old. All of a sudden I began to go thru' premature menopause at 34!!! I am now 52 and am happy that I haven't had to deal with periods for all these years, but I get that itchiness that you talk about whenever it gets really hot and humid. It is so bad that I can't hardly stand it!!! It's like I am allergic to my own sweat! I think there is a link between Fibro and reproductive problems. My daughter has symptoms of Fibro too and for years she has only been able to concieve once which ended up as a tubal, therefore last spring we lost our baby! I really believe all this is environmental and our bodies are reacting to pollution and lack of much needed vitamins in our food. Check out my message on MSM. I think it will help you! sue7
  6. ForeverFlaring

    ForeverFlaring New Member

    I have never had any problems with my reproductive organs. I never had a cramp in my life until I was in labor. You would have thought the gates of hell opened up in front of me during labor. My periods are usually pretty heavy but only last 3 days tops. No cramps, no spotting...easy as pie. Now that u all hate me, I think I might go lay down :)
  7. PAT

    PAT New Member

    I absolutely have A LOT more pain during the premenstrual time which for me can be a whole week and sometimes nearly two weeks before I start.
    I get the crazy itching, but I have always related it to Ultram. On the days that I take 3 doses of Ultram I have the itching everywhere; and no rash. And a lot of the time my skin hurts too.
    Patti G
  8. spazmonkey

    spazmonkey New Member

    type in a search on this website for Dr. Roby. There has already been alot of discussion about him. But he believes that are pain is due to some hormone allergy. Most of the patients that claim they have fibro, hes found have similiar traits:
    they all started their periods at a young age, and they have lots of hair in places they shouldn't (ex: chin, upper lip, line down to the navel, you get the picture). I have these traits (i always thought it was the italian side of me). It's worth checking it out. he's in Austin but treats people all over the world. All you need to do is get your lab work done at home and go see him once a year for about 4-5 hours and he'll fill prescriptions online. If homeopathy does not work im trying him out...
  9. ~Cel~

    ~Cel~ New Member

    Hi Cookiemonster (very cool name, by the way),

    Thank you for asking this question. I've been dx for a little over a month now and of all the questions that have gone through my head, that is the one I was most afraid to ask. We all know that everyone is different and will have a different course with this DD, but it is only natural to wonder about the future. I'm 30 years old and already, going shopping is somewhat of a chore now. Only last year, my boyfriend and I used to go on lovely nature walks for hours ... now walking around in a supermarket for an hour tires me out and makes my legs stiffen up. Getting a doctor's appointment means having to wait a minimum of 3 months to get in, and in the meantime you worry and have to deal with the pain.

    I would love to have a second child and with all that I have read, I am wondering if maybe now would be the ideal time, while my symptoms are still "mild" and all my internal organs are working properly. I would hate to wait to feel better and find that that time never comes. I am not being negative, just realistically considering my options. It's a scary thing to consider.

    Taking things one day at a time is the way to go, but that's harder on some days, isn't it?

    Hugs,

    Celine
  10. Lendi

    Lendi New Member

    My rheumy said that I was as bad as I was gonna get. And, I thought yeah, right. I had already progressed, gotten better and was progressing again. So, I think it can get worse, depending on many factors like nutrition, enviornment and how well we take care of ourselves. Interesting about the itching. I always know where a new pain is gonna hit because I itch first, get a "zinger" then have the achy pain which has an underlying knot in the muscle. New places always start out itching. I'm glad, sad to know that I'm not the only one.