Discussion in 'Fibromyalgia Main Forum' started by charisma1973, Mar 18, 2003.

  1. charisma1973

    charisma1973 New Member

    How many of you take NSAIDS's daily-vioxx, mobic etc??? Does it work for you? I was on vioxx for a while until I noticed it made my bp skyrocket-they changed me to mobic, and I can't really tell that either have helped. I am really scared of stomach problems that they can cause along with other stuff....what do you think?

  2. jeanderek

    jeanderek New Member

    They don't work for me.. I am currently taking vioxx but only because the doc has ordered me to and still some days I dont because it doesnt do anything for my pain, I have tried celebrex and nothing, tried motrin, ibuprofen, asprin, and nothing. They are hard on your stomach, but the newer ones are suppose to be alittle safer (vioxx,celebrex) Are you using it for fibro or arthritis? if its for fibro forget about it, my doc said it doesnt work on it, if your taking it for arthritis then its suppose to work but I have RA and it doesnt touch it for me. I hope that you feel better soon!

  3. Kathryn

    Kathryn New Member

    but only when my arthritis is acting up. FM is not inflammatory, so the NSAIDS do next to nothing for it.
  4. charisma1973

    charisma1973 New Member

    He has me takin it for fibro..I am taking Lexapro, Mobic, Ultracet, amitriptyline (spelling) and Flexeril (I think-I have the generic) but now I am not on insurance anymore so it is hard to buy all that plus my hormones every month..I can't tell that any of it is helping much. I always have some pain, and I still have my major flare ups......the ultracet gives me a headache and doesn't help anything...I am like everyone else and worried about being labled a "drug seeker" as a friend of mine works in a drs office that doesn't believe in FM/CFS and she told me that is what I would be considered in her office.

    If that is the case I have tons of medicine I can return to them (Lortabs, etc)-if it doesn't work or makes me sick I don't take it.....

    I don't know what to ask for or how to ask for it..when trying new meds how long do you need to take it before you can tell if it will make a difference or not?

    Thanks for the quick reply

  5. jeniwren

    jeniwren New Member

    In all honesty a witch doctor would be better than these things, in my experience. I tried them a good few years ago and all they did was aggrevate my asthma. I had to be admitted to hospital. Did nothing else at all, did NOT alleviate any pain.

  6. charisma1973

    charisma1973 New Member

    I guess I can just educate myself and talk to him about it. He is the one that diagnosed me, so I assumed he knew-apparently he knew more than I did...He is a rheumatologist-should I go somewhere else?

  7. jeanderek

    jeanderek New Member

    Then the best way to go is pain management. I am going now to a pain management doctor and up until I went to see him I was only seeing my PCP and was getting now pain relief what so ever. I was so glad to talk to a doctor who knew how to properly treat pain with the proper pain medications. I took MS contin (time relase morphine) for a month after I started seeing him and it did nothing so my next visit I told him that it wasnt working and he didnt have a problem what so ever giving me another medication. I am now taking Oxycontin which is time released oxycondin which is the same as percocet only time released so it lasts alot longer and now I don't have near as much pain. I hope that you get to feeling better really soon and find some relief. Take care

    [This Message was Edited on 03/18/2003]
  8. catgal

    catgal New Member

    Hi charimsa~~I had alot of difficulty finding an anti-inflammatory that worked and did not cause stomach problems.

    I tried naprosen--I felt no relief, and it ate my stomach up; then vioxx--which helped, but I got internal bleeding and had to stop taking it; next was celebrex--which made me feel funny, gave me a queasy stomach, and was absolutely worthless, and since December have been taking 20mgs of Bextra right after I eat dinner, and I noticed a major improvement the very next morning. Since I took it right after dinner on a full stomach, I haven't had any stomach problems with it; within an hour or less I can begin to feel the muscles & joints in my body relax, and it makes me a little drousy so I sleep better.

    I have FM/CFS, degenerative disc disease with multiple back problems and nerve damage, IBS, severe asthma/allergies, and osteo/psoriatic/rheumatoid arthritis. I take one 20mg pill at night, and in the mornings I am much more flexible, have considerably less stiffness, soreness, achiness, and so far have not had any bad side effects.

    I think taking only one pill at night on a full stomach has been the key to avoiding any stomach distress or daytime sleepiness. I really had problems taking a 10mg pill in the morning (usually on an empty stomach before rushing off to work) and then another 10mg at night. Taking one 20mg pill at night right after dinner did the trick for me.

    Hope you find something that will help you. Your physician should have samples of Bextra so you can try it for a month and see how it works for you. Like the Vioxx & Celebrex, the Bextra is expensive. A 30 day supply of 20mg Bextra costs me around $78 (I don't have insurance). But the relief I get is worth it to me. My doctor gave me a month's supply of samples before I bought it to see how well I did on it. And, I was the one who suggested taking only one 20mg pill at night instead of splitting it up and taking 10mgs in the morning and 10mgs at night. It works better for me like that.

    If you need a good anti-inflammatory you might give this a try by asking your physician to give you some samples of it first. Best Wishes, Carol...
  9. charisma1973

    charisma1973 New Member

    Those are all things that I will talk over with him. It is hard though because like the rest of you I always hear-I'm tired too, I ache/hurt too from everyone, so I get to the point where I start believing how I feel is normal and I shouldn't get help. It took me years to get over that in order to seek help and get a diagnosis-I am not sure how much that has helped or hurt....This board has given me more insight and information and support than I have gotten from any dr., friend or family member.

  10. catgal

    catgal New Member

    my FM/CFS because FM is not an inflammatory disease. I take the Bextra for the back problems and 3 kinds of arthritis I have.

    If you need a narcotic pain reliever for FM, I would also suggest you see a Pain Specialist. They are not as reluctant and paranoid about treating long-term, chronic illnesses with narcotics.

    I have been fortunate in that my physician started me on oxycontin (a time-release narcotic which is oxycodone without any tylenol, aspirin, or anything else in it--just pure oxycodone so it is easy on the liver); percocet for breakthrough pain, soma for a muscle relaxer, klonopin at night for restless legs and sleep, and bextra for the anti-inflammatory. However, he did not give me these medications for FM--he gave them to me for my back problems and severe arthritis(s). None of the doctors and specialists I have ever seen (from age 15 to 53) have ever given any "recognition" to my FM. And that includes over 10 rheumys who repeatedly diagnosed me with the FM/CFS. They would give me nothing but anti-depressants and flexeril which gave me no relief whatsoever--and I was allergic to the flexeril. Soma is the best muscle relaxer I have ever tried, and I can't even remember how many muscle relaxers I've tried over the past 4 decades.

    Now, pain specialists are each different in their approach to treating pain. Some do not treat chronic pain with narcotic pain relievers and instead put you on physical therapy and combinations of other non-narcotic medications. Some pain specialists have no problem treating chronic pain with narcotics and will work with you until they find a medication or combination of medications that work for you.

    But, I would make an appointment with a pain specialist, and when I called--I would ask right then and there if he treats FM and what his approach to treating it is. That way you won't waste any money hoping for one thing and getting another. Know UPFRONT. And if he does believe in and treat FM with pain relievers then make the appointment.

    I saw a pain specialist a month ago as my physician wanted a consult with a pain specialist for documentation in my chart for the narcotic pain meds he was giving me. He wanted "back-up" documentation in case the DEA questioned his monthly prescriptions to me. And also to see if the pain specialist agreed that he was on the right track in prescribing these potent narcotics. The pain specialist I saw was great, took alot of time with me even though I was not his patient, and he had alot of people waiting in his lobby to see him. He was the one who discovered the nerve damage. And even asked me if I thought my medications were strong enough. I said yes, but he went ahead and increased the soma and klonopin anyway because of the nerve damage he discovered.

    When, and if, you see a pain specialist be sure and make a list of all the medications you've tried and how you responded to them so he'll know what not to prescribe and where to start. And even though the pain specialist I saw was excellent with me, he did not acknowledge the FM when I told him I also had Fibromyalgia. He never said a word. Just focused on my back problems which were "evidenced" by x-rays and MRI.

    So be sure when you call for an appointment with a pain specialist (or any provider) to ask upfront if they treat FM and what their approach to treating it is. No sense in wasting your money if they don't believe in or treat FM and/or use an approach that won't suit your needs.

    I hope you get relief soon. We all know how miserable and painful FM can be. Take care, Carol....
    [This Message was Edited on 03/18/2003]
  11. LadyDragon

    LadyDragon New Member

    Hope you find what works for you. Pain Management Specialists in my area will not treat patients with fibromyalgia. Luckily, I have a PCP that cares enough to stay up to date on fibro. research... so, take Soma and Lortab for muscle relaxation and pain.