Discussion in 'Fibromyalgia Main Forum' started by HURTSALOT2, Jan 11, 2003.


    HURTSALOT2 New Member

    I would like to know if any of you sometimes have numbness and tingling more pronounced sometimes. It seems that just as I think it will go away it comes back. The pain never goes away. Why does it come and go? I am new to this and you know the route, have been from doctor to doctor, test to test to try to get answers to what is wrong with me. Now I have been told that I have Hyprothroidism and possible Fibromyalgia. My current doctor wants me to get the thyroid under control as she feels Hyprothroidism mimics Fibromyalgia. What do you think?
  2. Kathryn

    Kathryn New Member

    I have numbness & tingling in my fingers quite often. The pain will come and go. It seems to go along with your activity level. You will learn not to overdo anything. The holidays are especially rough on most of us. It sounds to me like you have a pretty sharp doctor. I would go along with her plan, at least for awhile. FMS is a fisease of elimination. You pretty much have to eliminate everything else and then have the fibro left over. You can read some articles on the home page here and really learn a lot. The more you know, the more you can guide your doctor into treating you correctly. Good luck to you.
  3. Jaysea

    Jaysea New Member

    There is a theory out there that hypothyroidism causes FM but it could also be the other way around. The first thing my naturopath MD did was start me on thyroid pills. I've had tingling in my toes, fingers and lower legs off and on. It doesn't seem to matter what I'm doing, it just happens. The tips of two fingers on my left hand go numb too. Weird disease.
  4. danisue22

    danisue22 New Member

    Just wanted to thank you for your beautiful reply to my post . I know it was from over doing and letting myself get so tired out. Wanted to know if you live in or around Chicago.I live in Mich City Indiana.I love the pier.I've only been ther 2x but I love to go there and sit and watch the boats out on the lake. My E.mail is if you'd ever like to get together I could take the train in. Let me know what you think, and thanks again for your caring concern...God Bless Danisue
  5. pam_d

    pam_d New Member

    I can't decide if "tingling" or "twitching" should be my middle name?? I have these in varying degrees ALL the time, in varying parts of my my feet, it's pretty constant tingling. Other places, the sensation comes & goes, or migrates to another part of my body. This seems to go with FM for some of us more than others. Magnesium has helped my tingling to an extent, you might try this. Good luck!


    HURTSALOT2 New Member

    Hi Pam,
    Thanks for the information. I will get some and give it a try. You and I will have the same middle name. LOL
    Take care.

    AVONNJ New Member

    Hi Pam,

    I'm new to this message board and have just been lurking and reading the postings.

    Your posting caught my eye because you said you have tingling and twitching all over your body at different times, etc.

    I also have these same sensations. Could you elaborate a bit more on your sensations, what they feel like, etc?

    My "twitching" can be anywhere, but I notice it mostly in my upper arms, thighs, and can "feel" it down to my feet/toes.

    The "tingling", not really numbness, is all over the place. I also have sensations in my chest area.

    These all cause me to not be able to sleep properly. Sometimes I can fall asleep, but not stay alseep, then I feel terrible the next day. I usually take .5 lorazapam, or 5 mg Ambien at bedtime.

    You can post your reply here or email me at



    PS: If anyone else has these symptoms, please let me know. I'd love to connect with people who feel the same way and understand.
  8. KathyM

    KathyM New Member

    Hi, I have been getting numbness/tingling off and on for about two years. I was diagnosed about six months prior to noticing the tingling etc..(2000) Long story short,when I got my diagnosis from a rheumatologist numbness in my hands and feet were happening often. Later on I noticed a burning in my upper back (which occurs off and on),but when it burns it is real bad!!! I was refered to a pain management specialist due to some other problems with elbow/wrist pain too. Soooo, It was suggested I try trigger point injections (which I also get for my headaches)and I do get some relief, but not much. The injections have minimized the severity of the headaches; but the burning in upper back actually seems to be getting worse. My wrists are in constant pain. I have a list started for my next visit with my pain management doctor/neurologist. I hope you get some relief. I was told by my doctor that I have nerve pain/pinched nerve. The burning in my feet has not happened for a while, but for a 3 month period last year I did not walk normal at all!! It's like I didn't want to put all of my weight on my feet. Again, I hope you get some relief, Take Care, Kathy