Discussion in 'Fibromyalgia Main Forum' started by dsames, Mar 14, 2007.

  1. dsames

    dsames New Member

    How many of you have tried nurotin (sp) and did it help.
    I will be starting that tomorrow.

  2. hugs4evry1

    hugs4evry1 New Member

    Or Gabapentin?

    What was the drug prescribed for? Which symptoms?

    This can be a very dangerous drug as many are and should be used only to treat specific symptoms.


    Nancy B
  3. dafoefan

    dafoefan New Member

    I have fibromyalgia and had numb hands and feet. It eliminated that for me, and also helps with pain. It is a subtle drug, at least for me. I noticed about a month into it that something was different and realized it could only be the neurontin. It is available in generic now, which is helpful on the budget.

    I'm curious what is so dangerous about it, as the poster mentioned. It is a fairly common FM med. Please elaborate if possible.
  4. Slayadragon

    Slayadragon New Member

    I experimented with it a long time ago for my mild manic-depression, but didn't find it worked very well for that.

    However, mcondon is one of Dr. Paul Cheney's patients, and he said that Dr. Cheney says that Neurontin can be useful for sleep.

    Dr. Cheney's sleep recommendation is designed to calm the "agitated exhaustion" that plagues many CfS sufferers. (If you don't know intuitively what "agitated exhuastion" is, you likely don't have it and this is not the remedy for you.)

    The main component is the benzodiazapine tranquilizer Klonopin, between .5 mg and 2 mg before bedtime.

    A second frequently added ingredient is the tricyclic antidepressant doxepin, between 1 and 10 drops of the liquid. (The dose for antidepression use is something like a minimum of 15 drops, I think.)

    Mcondon says that a little bit of Neurontin can make the protocol even more effective.

    I am already taking Lamictal, which (like Neurontin) is an anticonvulsant. I don't know if the Neurontin might be helpful to me or not.

    It could be an interesting adjunct for others, though.


  5. JLH

    JLH New Member

    I have been taking Neurontin (generic is Gabapentin) for a few years.

    It has proven to be very beneficial to me.

    Neurotin and Cymbalta have both helped by fibro pain immensely.

    Hope it helps you, too.


  6. minkanyrose

    minkanyrose New Member

    It has helped me with numbness in legs and painful charlie horses in my calfs and buttock as they say everyone is different but I f I forget to take it I know the pain comes back.

    I am on 600 mg 3x a day.
    no side effects I have noticed. I went through many meds before I found one that worked what works for one may not work for another.

    Hope you find what works for you.
    have a great day Brenda
  7. mary124

    mary124 New Member

    I use to take Neurontin- till I started taking Topamax. Doctor told me that I shouldn't take both at same time.
  8. marybliss

    marybliss New Member

    one of the side effects is pancreatitis which i have normally. neurontin made this much worse. the pain specialist wasn't on the ball with this one. found it doped me out enormously. lost more independance than usual. not able to drive at all and required constant looking after.mandi
  9. dsames

    dsames New Member

    Thank you for your replies.

    To the poster who said it was a very dangerous drug, and wondered what I was taking it for. It was prescribed for my unrelenting pain of FM I have tried Cymbalta, had bad reactions to that, then we tried Lyrica, worked great the 1st week, but when we increased the dosage, started having side effects, very dizzy, loss of balance, had to hold onto the walls when walking , cut it back to 1 dose, felt better, had been trying professional samples, when the Dr. gave me a prescription, and I found out that 30 pills would be 70.00 a month, wasn't able to afford that.
    The pharmacist said the properties of Lyrica was very similar to Neurontin so I start that to night.

    I seem to be very sensistive to meds, as I know many FM'ers are. I am almost afraid to try a new one. Have been thinking all day that I really don't want to try this, however....I don't want that nasty pain all the time, with no sleep.

    I am very anxious to see the rheumy, which will be another 4 weeks yet. Hopefully, there will be some help there.
    Have a great evening.
  10. hugs4evry1

    hugs4evry1 New Member

    You might want to do an internet search for 'Gabapentin class action lawsuit' before beginning this medication for pain.

    As other posters have mentioned, it can help some. It's often given to help damaged nerves and it makes sense that it could help someone with numb hands and feet.

    But it's a serious drug and can cause hallucinations both auditory and visual. It has caused many people some serious side effects, my daughter included.


    Nancy B
  11. LuvQuilting

    LuvQuilting New Member

    since July of '06 for chronic throat muscle pain. It has helped that tremondously but hasn't done much for my other muscle pain. I'm not sure why. I take 200mg in A.M., 200mg. in the afternoon and 300mg at night. It's been wonderful to help me sleep but it can make me tired during the day. Luckily I have a lot of natural energy to offset that. I hope it works for you.

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