Oh my Lord....this doc has got to go!!!!!!!!!!!!!!!!!.

Discussion in 'Fibromyalgia Main Forum' started by kadywill, Nov 12, 2002.

  1. kadywill

    kadywill New Member

    He set up this big appointment today for my husband and I to discuss with him the panel of hepatologist's findings about my liver biopsy. Well, we walked in and he just looked at us, waiting for US to tell HIM why we were there. He said, "I still think we need to send your biopsy results to UNC for further review." I looked at him and said, "But didn't you already do that? That's why we came all this way to see you today." He looked again in my file and told me that he wrote them a letter, but hadn't received any information and he looked really confused. Then he started telling me that I had another diagnosis altogether from the one he told me about a couple of weeks ago when he read my biopsy results. I told him that my husband took the afternoon off and that I was in a lot of back pain and the hour-long trip was very hard on me. He was flustered cause he hadn't done his homework and he didn't have a clue why he called us to come in. I just bowed my head and closed my eyes 'cause I was NOT in the mood for his bull---- and I KNEW that he was clueless. I walked out saying that I was NOT paying for this visit and that I should charge HIM! He said for me to call him if I hadn't heard from him in a week about the specialist's findings....I laughed at him and left. My husband KNEW I was too pissed to be spoken to, so we drove the hour-long trip home in silence. What a day! So, I have cirrhosis. Why? Don't know. What am I gonna do? I don't know. How long before a transplant is needed? I don't know. Where did he get his license? I don't know. All that money, discomfort, worry, time, and insomnia was for nothing.........
    [This Message was Edited on 11/12/2002]
  2. kadywill

    kadywill New Member

    He set up this big appointment today for my husband and I to discuss with him the panel of hepatologist's findings about my liver biopsy. Well, we walked in and he just looked at us, waiting for US to tell HIM why we were there. He said, "I still think we need to send your biopsy results to UNC for further review." I looked at him and said, "But didn't you already do that? That's why we came all this way to see you today." He looked again in my file and told me that he wrote them a letter, but hadn't received any information and he looked really confused. Then he started telling me that I had another diagnosis altogether from the one he told me about a couple of weeks ago when he read my biopsy results. I told him that my husband took the afternoon off and that I was in a lot of back pain and the hour-long trip was very hard on me. He was flustered cause he hadn't done his homework and he didn't have a clue why he called us to come in. I just bowed my head and closed my eyes 'cause I was NOT in the mood for his bull---- and I KNEW that he was clueless. I walked out saying that I was NOT paying for this visit and that I should charge HIM! He said for me to call him if I hadn't heard from him in a week about the specialist's findings....I laughed at him and left. My husband KNEW I was too pissed to be spoken to, so we drove the hour-long trip home in silence. What a day! So, I have cirrhosis. Why? Don't know. What am I gonna do? I don't know. How long before a transplant is needed? I don't know. Where did he get his license? I don't know. All that money, discomfort, worry, time, and insomnia was for nothing.........
    [This Message was Edited on 11/12/2002]
  3. granmama

    granmama New Member

    Bless your heart, what an experience.
    I'm somewhat confused. Was the cirrhosis the other dx he gave you at this appointment or are you still waiting for that?
    I was one of the lucky ones that got a negative cirrhosis report from my liver biopsy. But my iron is starting to build up again, so soon I will have to be phlebotomized again. HH can cause cirrhosis of the liver and lead to liver cancer.
    What stage of cirrhosis was diagnosed?
    Please keep us informed.
    granmama
  4. kadywill

    kadywill New Member

    about the cirrhosis two weeks ago and wanted to start me on a drug called Ursodiol or Actigall. It is used in Primary Biliary Cirrhosis. It is also used to dissolve gallstones. He wanted to wait until the specialists reviewed the biopsy before starting this drug. Today, he said, "Well, I don't usually treat a fatty liver, but you DO need to watch your diet." I said that he had told me I didn't have a fatty liver and I went on to tell him what he HAD said. Then he wrote out a script for the Urso......I said I wasn't about to take it. What a crazy man! Then he remembered the original diagnosis and said that he didn't know how long I'd had the scarring and scar tissue so he couldn't tell me how long before I'd need treatment or surgery. I know no more now than I did going in today.

    Love,
    Kady
  5. HOUSEOFBLUES

    HOUSEOFBLUES New Member

    So sorry to hear about your experience today.
    Sounds like your Doc was in a Fibro Fog himself or somebody in that office screwed up and gave him the wrong folder!
    I go thru the same "----" with my doctors too.
    I have to remind my primary Doc of things every time I go to him. Then he starts shufflin' thru my files and finally says: "oh. yes. That's right!" and gives me this sheepish grin.....
    My Rheumy is so slow he keeps me waiting in his office for a whole Hour before he finally walks in. And then all he does is ask me how I feel and scribbles in his file and says: " ok. See you in two months."
    I think these guys all went to the same school and took the same subject; mainly "taking up space"....lol....

    LOVE,
    HOUSEOFBLUES
  6. cupimick

    cupimick Member

    I am, so sorry to hear what that dr put you through. I agree you should not pay for that visit and call your insurance co because I bet he will bill for it. On top of everything you do not need this aggravation , thank goodness you have your hubby there to lean on. We are both lucky to have wonderful hubbys . I will keep you in my prayers.

    Love,

    Deanna
  7. clueless

    clueless New Member

    It`s too bad there are so many doctors who don`t have a clue!My husband had a very badly diseased gall bladder removed and the common bile duct was impacted with gall stones. He kept having very bad sick spells(vomiting and pain) untl a specialist gave him ursodiol. It stopped the sick spells. Now for some reason just today he had his script. filled and it was urso. We are confused so I was surprised to see your post tonite. I called the druggist who was a foreigner and I could not understand him very well but he said the urso was for the liver and then said "Oh! wait a minute ,guess what it is the same med."I am in the same quandry you are only in my case it is over a druggist instead of a doctor. FIRST-they should be able to speak good plain English SECOND- I don`t appreciate his so called jest when we are talking about a medicine!! Oh! My! our medical syste including the ones dispensing drugs needs an over-haul! Sorry you had such a miserable day. Anyone should`nt have to go thru ignorant things like that!!
  8. karen2002

    karen2002 New Member

    I think this one is disposable! I have met quite a few, as of late. It just isn't worth it to put such important things in the hands of the inept. I know it's hard starting all over with the case history, transferring files, etc., but you and your health are worth it.
    Let go of the anger and stress, hold on to the disbelief, and take action when you catch your breath to correct this problem.
    Karen
  9. HOUSEOFBLUES

    HOUSEOFBLUES New Member

    Check out this web site: FAMILY PRACTICE NOTEBOOK.COM
    It's got a lot of info.....

    LOVE,
    HOUSEOFBLUES