Oh no, now I get it--it's from FMS

Discussion in 'Fibromyalgia Main Forum' started by ilovecats94, Mar 8, 2006.

  1. ilovecats94

    ilovecats94 New Member

    I have been complaining of having reflux problems (GERD) and wondering why I was in so much pain. Now I know why, it is because of my FMS... Gee, why didn't I realize that one? Terrible fibro fog lately... :(

    I kept wondering why my refux problems were so very bad and why I was in so very much pain at time, and it just dawned on me that it IS from my FMS.

    Do any of you have GERD and FMS or CFS and GERD? Just was wondering how you deal with it. I know I need a better medicine, but I don't want to go to the doc about it until after my son gets married on 4/2.

    I'm afraid the doc may put me into the hospital thinking it is heart problems and not the reflux, but I'm pretty sure it is reflux with FMS which equals severe pain. :(

    Thanks for letting me vent.

    Hugs to all,
    Faye
  2. KerryK

    KerryK Member

    I am not sure if there is a proven connection between reflux disease and FM, though I believe that for many, reflux is an objective indicator of FM as are other digestive problems.

    I have FMS/CMP and many years before the generalized pain issues began, I suddenly developed very severe reflux. At one point, my internal specialist told me mine was the worst case he had ever seen (based on the ph monitoring results). That doctor was a senior citizen when he told me this. I think all this is consistent with the prevailing theory now that FMS is a central nervous system disorder affecting in part the autonomic nervous system as well.

    I ultimately had to have the stomach operation to stop it since the acid blockers were no longer doing an adequate job.

    Good luck!
  3. ilovecats94

    ilovecats94 New Member

    Thanks, Kerry! I am only on OTC Pepcid AC right now. I haven't gotten with the bigger guns yet. I have had gastroparesis now since 1990, due to nerve damage from diabetes.

    So between Tums, Pepto Bismol, Lortabs, Reglan, and Pepcid AC, that is what I am using, plus diet to try to control this.

    I am realizing how much diet enters into the picture too and have been doing research on the Internet about GERD.

    Most nights I'm up until around 1 AM or so. Sleeping, which I used to look forward to, has become my enemy of pain now, so anytime I can sleep without pain, I'm happy.

    Thanks for answering. :)

    Hugs,
    Faye
  4. KerryK

    KerryK Member

    You could probably eliminate all of the OTC meds you currently use for your stomach and be a lot more comfortable if you start using one of the modern acid blockers. I was on omeprazole for many years, now sold in a newer version as Nexium. Omeprazole is now generic and relatively cheap. Very good drug with few side effects. 24 hr. relief with a single dose. I used it for many years. In fact, it might be cheaper to go that route than use all the stuff you do now. Pepcid is a poor substitute for omeprazole if you have GERD as opposed to routine heartburn. Also, don't believe the rumours that these drugs will make your FMS worse. More likely, poorly controlled nighttime reflux will worsen your FMS issues due to the interrupted sleep. Omeprazole should allow you to sleep better because of better acid control. These were my experiences.

    Good luck. Happy to help.
  5. dani78xo

    dani78xo New Member


    i've had GERD for about four years now,
    it's pretty severe for me, and has gotten worse since i got sick with FMS,
    though i think the increase in GERD pain's been due to meds i've been on.

    i'm taking protonix for it, one or two 40 mg pills a day.
    it's worked for me for a long time =],
    but now that i have FMS i do have to watch what i eat.

    if you have a bad day with the GERD,
    sometimes things like bread or milk help.
    it calms down the acid in the stomach.
    but if it's real severe you might want to see about getting on some medication.
    that's the only way i can get through without making myself terribly sick.

    antacids sometimes help me, but nowhere near as well as the protonix that i'm on.

    i hope you get relief from it soon, GERD is a very unpleasant condition.

    -danielle
  6. Cromwell

    Cromwell New Member

    are admitting that GERD meds may be causing or worsening FM symptoms BYW. Even so I cannot get by without. Prilosec even though OTC is also available on scrip and they just got out a new 10mg one which works just as well unless you are in flare.

    Love Anne C
    [This Message was Edited on 03/09/2006]
  7. mme_curie68

    mme_curie68 New Member

    Some info about the categories of meds for treatment of heartburn -

    Antacids like tums, etc. are acid neutralizers - calcium carbonate competes one for one with hydrochloric acid, your stomach acid.

    Pepcid (famotidine, ranitidine, nizatidine) is a histamine receptor agonist, which means it competes against your stomach by binding to the gatekeepers that allow acid into the stomach so it is an acid reducer.

    The omeprazole drugs (Prilosec, Nexxium, etc.) are the newest class for treatment called proton pump inhibitors. They basically shut down the acid pumps - they are acid inhibitors. They are currently highly favored treatment because they block acid production at the source.

    But there may be another culprit too - Heliobacter pylori is a bacteria that can cause active infection and erosive stomach conditions. It will not go away with symptomatic treatment. There is a blood test to screen for this - if your doc hasn't done it already you may want to ask about it.

    I myself had terrible heartburn that started when I was pregnant this last time. I could only use Tums while I was pregnant, but after I had the baby I switched to Prilosec OTC after my doctor tested me for H. pylori infection, which was negative. It helped tremendously, such that I don't have to take it all the time anymore. Not much worse than waking up burping acid for ruining the night and our precious sleep!

  8. dragon06

    dragon06 New Member

    I have always had stomach and reflux issues. I am currently taking Protonix and it is working very well. I have also taken Prevacid and AciPhex and both work very good as well, just Protonix goes better with my current meds.

    Since I can trace my stomach issues to childhood as well as some FM symptoms then I think there is a good chance they are connected (my doc thinks so too).
  9. crdmkr2004

    crdmkr2004 New Member

    Hi
    I also have acid reflux to the point that I was waking up in the night bring up burning acid and throwing up. My doctor gave me nexium too but I never took it. I went to the Health Food store and started taking Digestive Enzymes. Make sure you speak to someone that is knowledgable in this area as there are different enzymes for different diets. So if you eat alot of fatty foods you would take a different one that if you ate alot of spicy foods, or carbs etc. I also try to eliminate deep fried foods, processed foods like hotdogs, smokies and eat very little chocolate and drink little caffine ?sp, anyways, it has helped me immensely and I think I take enough meds too, so I didn't want to take another one. Just my thoughts and let me know if it helps you.
    Take care
    Sandy
  10. pemaw54

    pemaw54 New Member

    I learn something everytime I get on . Ive had Gerd for about 15 yrs and have been on Prevacid for several yrs and it works great. Before, I was chewing up to 100 over the counter antacid and it still didnt help. Ended up having the endoscope thing and was then put on the Prevacid. Maybe Ive had FMS for all of those yrs and just thought I had a bad back!

    Suzette
  11. cathugs

    cathugs New Member

    my stomach really bothers me because i have acid reflux
    and also the amount of meds. i take makes things worse.
    i have had the endoscopy done several times to have my esophageous dilated. i take prevacid daily and it really helps keep the acid reflux under control.
    [This Message was Edited on 03/14/2006]
  12. ilovecats94

    ilovecats94 New Member

    Well I found out what one thing was causing me major problems was the cinnamon capsules I was taking after dinner every night. I was taking 3 of the 600 mg. capsules and I stopped last night.

    Haven't had hardly any pain at all today and feel so much better. So, I'll just stay the course and see the doc in April to see what he wants to do.

    Then, I'll slowly get back on the cinnamon to see if I can tolerate it. If not, I have a friend who wants my capsules and other bottles. I was using it to lower my blood sugar and cholesterol.

    At one point I was really going through the Pepto Bismol and haven't had to take any of that all day. No pain meds today, nothing. I am still taking the Pepcid AC, Rx dose of 40 mg. a day of it.

    Hugs,
    Faye