Oh well Dr. Cheney I have no choice but to fry my brain!

Discussion in 'Fibromyalgia Main Forum' started by judywhit, May 21, 2003.

  1. judywhit

    judywhit New Member

    what a drag. The elavil was working very well for my sleep. I have experienced a very rare side effect from the elavil...to put it bluntly "I can't pee". Doc refuses to give me the klonopin! zma, cal/mag, melatonin does not work so I am breaking down and starting 10mg of Paxil today. Wish me luck on this I hate the potinial withdrawl from hell that I hear about. But, ya have to sleep and I find my brain cells are dying from lack of sleep.
    Any others that read this helped by paxil?
  2. kgg

    kgg New Member

    I never have had paxil, but I know a lot of people who take it. It seems it is the drug of choice for general practitioners. The census I have perceived is that it saved your life or made you feel sick. Many of the people that like it suffer from anxiety attacks and it has helped them. For others it didn't agree with them.

    As we all know, everyone reacts differently on meds. I think there are other comments on paxil, if you do a search on it.

    Blessings- Karen
  3. Plantscaper

    Plantscaper New Member

    Hi Judywhit,

    You may want to try GABA, as a good substitute for Klonopin in a supplement..Klonopin produces GABA, so it essentially calms the nervous system and helps with sleep, "considered a chill pill in the naturopathic world"..See Klutzo's recommmendations of it...I am, also, finding that Calcium, near bedtime, helps a great deal with insomnia..

    I don't think that Paxil would help with sleep, as the SSRIs usually cause insomnia..Doxepin is closely related to Elavil as a tricyclic antidepressant and would be more helpful for sleep than Paxil, if you want to stick with the prescription drugs..

    How's it going with the OLE? I noticed that you stated that you were starting that..might be a wrong time, right now, if you have a lot of insomnia..

    Take Care,
    ~~Amelia~~[This Message was Edited on 05/21/2003]
    [This Message was Edited on 05/21/2003]
  4. AnnetClo

    AnnetClo New Member

    I had the same reaction with effexor. I would go to the john and sit and sit and sit and I could'nt pee, even though my bladder felt ready to explode.

    As for the Paxil, I have taken it several times. My gyno used to prescribe it for me every winter for SADD. I would take it from about October til April or May and then just stop taking it. I never had any bad side effects and it really did help me. I don't know if I just wasn't taking it long enough for it to build up and cause horrible withdrawal, but it never bothered. In fact, my doc just prescribed Paxil CR for me yesterday instead of effexor. So if we're going to fry our brains, at least we'll do it together.

    Good luck to you with the Paxil
  5. judywhit

    judywhit New Member

    thanks for the many responses. Ya know Shaz, I really am thinking that I am depressed. I find very little joy in much anymore. I love, adore my horses and love to ride but have not been out to see my horse in weeks (hubby is taking care of them.) I have a very blessed life with a very caring family. But, I must admit this DD is getting to me! I also am very close if not in perimenopause... I have yet to get this checked out. Anyway my actions are indicating depression. Yesterday in the parking lot of my work I litterely smashed into a co-workers car!!!! I drive school bus! I told the dispatcher what happened and they sent me home. Today i went in and they sent me to ride along while a sub took my route. I feel that I am obsessed with this illness because the symptoms are sucking the life out of me.
    The elevil (tricyclic) like the other meds you mention shaz all cause the same symptoms with the urinary tract (but it was working for the sleep ;(. I have tried every natural supplement in the book for sleep to no avail. My problem is that my brain works all night never shuts up. When I finally start to calm down and fall into the deep hole my body jumps out of it! A sleep study is in order this summer!!! thanks for all your time and imput. I gotta give this one a try...23% of folks find sleep relief on paxil. I hope I am in that percentage.
    plantscrapper: thanks for your concern too. I might do a research into gabba because I like to try natural. As for the OLE.... Wow!!!!!!! One has to be a very strong person to handle the herxes! I had to stop! A note of interest is that my hubby is toughing it out. He has started to get fms symptoms and we both tested positive for hhv-6 virus. He broke out in red pimple like sores from taking the OLE- I am breaking out with the same strange pimples on my body. I think the OLE is pushing this crap out of our system. I have to stop taking until school is out and I can chill all day.

    [This Message was Edited on 05/21/2003]
  6. Missnae1

    Missnae1 New Member

    You might try a search on "paxil withdrawal" before you start taking it. Again, we all react differently to meds, but I agree it's not likely that it will help you sleep.
  7. lucky

    lucky New Member

    As far as I know probably Dyserel (Trazadone) is one of the few antidepressants which really make you sleep if you can take them. They do wonders, but.....again, not everybody can tolerate them. Some people like Xanax to go to sleep, but the usual SSRI's like Zoloft kept me awake all night long.
    So, take care and when you get better sleep, it makes it so much easier to deal with our illnesses.
    Sincerely, Lucky
  8. Tibbiecow

    Tibbiecow New Member

    I was on Nortryptyline, very similar to elavil, very depressed, on HUGE dose. Switched to Zoloft. Almost immediate effects, which is not usual, but can occur. I hope you do well on the Paxil.
    Love, and happy trips to the john (pain meds can impair 'ya here too...)
  9. Chelz

    Chelz New Member

    Judy, I can't understand why a doctor would prescribe an antidepressant like Paxil for sleep. It seems they use these drugs for everyhing from bladder pain to sleep problems. Please be careful with this drug, I was on it and gained so much weight from it that I think it gave me sleep apnea and my teeth grinding increased while on it. I know everyone is different, but please be careful on this one. HUGS, CHELZ
  10. judywhit

    judywhit New Member

    went to doc tonight. i was the one who who made the choice for paxil. I had samples in my bathroom that have been there for 2yrs. In fact they were outdated. on my own I took one today out of desperation. Doc also adheres to Dr. Cheneys theory about frying brain. But, I am desperate. He gave me Busbar to try. He said that he is so tired of doctors shoving ssri's down patients throats and in the same breath they refuse to treat patients with opiods. He said and I agree with him that opiods are pretty benine (sp??) compared to these other drugs. He is a good guy I am just in one of those moods. So for now I am paxil free. except for that 10mdg cap in my system. what a dork! thanks gals. Hi Tibbie!!!
    [This Message was Edited on 05/21/2003]
  11. layinglow

    layinglow New Member

    Judy if your doc agrees with Dr. Chaney's theories, I wonder why he is against klonopin as the drug of choice? Probably because it is a benzo like Xanax and habit forming.
    However, if he is dead set against it have you asked about neurontin, instead, for the same benefit, of slowing the neuron firing, and racing brain, etc.? Many specialists believe neurontin is the drug of choice instead of Chaney's choice of klonopin. They will both keep the brain out of that mini seizure state. From all the research I have been doing on the CNS, the next drugs of choice after klonopin and neurontin are the SSRI's for slowing the activity down.
    First choice on that list was Effexor, then Zoloft (down side 50% have sexual dysfunction with those.)
    Best wishes,'

    Buspar might be good--I would give it a try in your situation. It is an anti-anxiety drug.
    Here's some info on it...I had copied it for a friend.

    Buspirone ( BuSpar ) is an Antianxiety agent, used primarily for relief of mild to moderate anxiety and nervous tension. This drug is useful in treating the elderly, alcoholics, or people that have a history of addiction. Alcohol does not interact in a dangerous manner with Buspirone( BuSpar ) and Buspirone ( BuSpar ) may be useful in reducing alcohol craving. This drug is also useful in the treatment of aggression in developmentally disabled persons over 18 or self-injurious behaviors. Buspirone( BuSpar ) may also be useful in treating hyperactivity in the autistic and may decrease the symptoms of obsessive-compulsive disorder ( OCD. ) It may also help in people with aches, cramps, fatigue, pains, PMS, or sexual dysfunction do to generalized anxiety disorder. Buspirone( BuSpar ) may help decrease the urge for nicotine. Buspirone ( BuSpar ) is not habit-forming. Buspirone ( BuSpar ) is not a benzodiazepine.

    CLASS: Azaspirodecanedione Derivative.
    Generic name: Buspirone Hydrochloride.
    Type: Antianxiety.


    5mg, 10 mg.

    Dosages: Actual dosage must be determined by a physician.

    Start: 5mg 3 times daily.
    Increases: 5mg every 2 to 3 days ( doses every 6 to 8 hours.)
    Maximum: 60 mg in 24 hours.

    Normal dosage:

    If under 18 years of age. DO NOT USE!
    18 to 60 years of age.
    Over 60 years of age.

    Problems with:

    Liver Function: If history of liver problems, decrease dosage and use with caution.
    Kidney Function: If history of kidney problems, decrease dosage 50 to 75% and use with caution.


    Before taking: None.
    While taking: None.

    Take With: With or without food, same time everyday.

    Full Benefits In: Up to three weeks.

    Missed Dose(s): If within one hour take, if over an hour skip and then continue on your normal schedule.
    Never Take a Double Dose!

    If Stop Taking: Do not stop without consulting your physician.

    Overdose symptoms include: Drowsiness, dysphoria, fatigue, nausea / vomiting, paresthesias, or seizures.



    Do not take this drug if you are pregnant. Do not take this drug if planning to become pregnant. Do not take if you are breast-feeding.

    Do not give this drug to children. Only use drug in small doses if over sixty with close monitoring. Keep an eye out for dizziness or weakness to help avoid falling.

    Do not take this drug if you have taken any monoamine oxidase ( MAO ) in the past two weeks.

    Do not use if: You had negative reactions to this drug in the past.

    Inform your doctor if: You had negative reactions to this drug in the past. If you have epilepsy. If you are taking any other prescription or nonprescription drug. If you plan to be under anesthesia or having any surgery in the next few months, also if you will be undergoing any medical tests.


    Buspirone ( Symptoms or Effects )

    Common: Chest pain, excitable, headache, dream disturbances, dizziness, light headedness, nasal congestion, nausea, nervousness, ringing in ears, or sore throat.

    Rare: Confusion, depression, diarrhea, insomnia, movement disorders, numbness / tingling, racing heartbeat / palpitations, tachycardia, dysphoria, restlessness, rigidity, or tremors.

    See physician always: Chest pain, confusion, depression, diarrhea, headaches, insomnia, movement disorders, numbness / tingling, racing heartbeat / palpitations, tachycardia, dysphoria, restlessness, rigidity, sore throat, or tremors.

    See physician if severe: Diarrhea, excitable, insomnia, nausea, nervousness, or ringing in ears .

    See physician NOW: Confusion.

    [This Message was Edited on 05/21/2003]
  12. ZosoLight

    ZosoLight New Member

    I took prozac, then Zoloft for about 8 years to treat depression. They made me so sleepy that I slept about 15 hours a day and they didn't seem to be helping my depression anymore.
    I read "Prozac backlash" and it freaked me out so I was anxious to get off of it. I went off of Zoloft very gradually (3 months!) and tried 5-HTP instead, as the book recommended. This didn't seem to work for me and my depression got much worse.

    Finally after 8 months of hell, I went back on Zoloft and I am glad to be sleeping again. (For the first ten days it kept me awake and I had to take Ambien) I am less depressed and beginning to pursue my interests again. (I am a horse lover too) I still feel like a zombie on Zoloft but don't feel like I have a choice.

    I have a bad reaction to Tricyclics and MAOI's are much too restrictive.

    I wish we had safer options.
  13. judywhit

    judywhit New Member

    thanks for all the good info. Sue, i see you are still hovering around the boards digging at certain things you do not like about our posts. Hmmm, why do you feel the need to do this? I am concerend about you girl. You slammed Anita big time yesterday too. Do I feel like a victim...well sometimes I think I do when my mind is all confussed and I read medical info and it tells me to take this and that I do just as doctor orders and still I feel all out of sorts. I'll tell you what Sue. Today in your spare time please compose the perfect post and perfect heading. I am sure we would all be pleased to read it. I will be looking forward to your honest, thoughtful, funny, politically correct post. I am sure you can do this better than any of us since many of us hold red flags and are living in a world in which we are labled victims.
    [This Message was Edited on 05/22/2003]
  14. judywhit

    judywhit New Member

    for sue. enlighten us please
  15. Mikie

    Mikie Moderator

    Are the next best choice after Klonopin or Neurontin. He says that SSRI's and stimulants will fry the brain. You can read his sister articles on the Klonopin and SSRI's in our library here. Do a search on his name and it will list all his articles. This is just one doc's opinion and I know that many docs use antidepressants. I do not personally believe they should be used unless a person has depression, but some here have gotten help with them.

    Love, Mikie
  16. coyote

    coyote New Member

    No, I don't take it for sleep. In fact, my doctor told me to take it in the morning so it doesn't interfere with my sleep.
    I take Trazedone at bedtime for sleep.[This Message was Edited on 05/23/2003]