OKAY I AM CONCERNED... PLEASE ANSWER!!!!!

Discussion in 'Fibromyalgia Main Forum' started by pamela, Jan 21, 2003.

  1. pamela

    pamela New Member

    Hi everybody..I have been gone a while...just had foot and knee surgery Dec. 19th 2002. So I have been sort of out...Anyway I was reading the post on this page today about butt pain. I had posted a post about 5-6 months ago about the all of a sudden anal pain that comes on. I have this wierd anal pain that just all of a sudden starts and gets worse and worse and worse to the point your in the floor with unbearable pain and then after 10-20 minutes it goes away like nothing happened. Then I pass gas usually afterwards. So...I read the article today that Judywhitt posted and I got scared. ENDOMETRIOSIS!!!! Something else....(and I already have had my entire colon scoped May 2002 and also had my yearly pap and exam dec. 5th 2002)I do have really bad menstral periods...with heavy bleeding just the first 2 days and cramps and major body aches, headaches and fatigue. I do have FMS so all of you should know. I'm suppost to get my tube tied this year. I only have one tube and NO children ever!!! Please respond and tell me what you think about all of a sudden anal pain. Thank you alot, Pamela
  2. Ness

    Ness New Member

    I have had this weird pain on and off forever.....I have talked to many women who get it..I think it is just something that happens..and yes it HURTS......and gas usually follows..must be trapped gas that builds up..and the pressure causes the pain.

    If you are real concerned I would check with you Gyn Doc.

    Peace to you
    Ness
    [This Message was Edited on 01/21/2003]
  3. judywhit

    judywhit New Member

    Hi, it's Judywhit. I did not mean to scare anyone just wanted to explain my bum pain in hope that it helps someone else. My periods are TERRIBLE! Alot like what you have explaned. endo is very common especially in those of us who have heavy periods and alot of clotting. Yes, at times my bum pain is a shooting pain and that is very painful. But mostly it was a throbbing, pulling ache. Get to an OBGYN that does lazer surgery and have him or her do the surgery. This is the only way you will know if you have the endo. It is a very painless precedure. My doc also told me to have my hubby get fixed rather than get my tubes tied because if you have endo this can make it worse. Read all you can about this disease you will find that it is so common in the rectal area. Hope you find your answer.
  4. judywhit

    judywhit New Member

    Adhesions



    One of the many complications that can arise from endometriosis is the formation of adhesions. These bands of scar tissue can bind organs to other structures, block the tubes causing infertility, and cause immense pain even after the endo itself has been removed surgically. Adhesions present a special problem concerning treatment as well. The hormonal methods of treating endo have no effect on the adhesions, so the only method of treating them is with surgery. Often, a woman will have to have additional surgeries to remove adhesions formed from her previous surgeries to remove endo. This can start a sort of viscious circle, with adhesions forming during surgery and then needing subsequent surgery, which in turn can cause more adhesions, to remove them.

    The most common sites for adhesions are the pelvic organs. Often the ovaries and tubes are involved. Additionally, the adhesions can form over top of an endo lesion. This can increase pressure and pain as well as make the lesion difficult to visualize during surgery. Pelvic adhesions are more frequently found with moderate to severe endo, but can also occur with milder endo. Since adhesions are probably formed due to irritation from the endo lesions bleeding or rubbing against the surfaces of organs, it makes sense that there are usually more severe adhesions when the endo is denser and more proliferative. The number and density of the adhesions are frequently factors considered in the assignment of a stage number two endo.
    Of the other sites adhesions are found, the bowels are by far the most frequent. Adhesions on the bowel can cause a set of symptoms all their own. These may include pain, nausea, irritable bowel syndrome, and occasionally intestinal blockage. The pain may mainfest itself after exercise, during pelvic exams, or completely unsolicited. Most people describe the pain caused by adhesions as "pulling" or "stabbing" whereas they describe endo pains as "burning" or "pinching". Adhesions can, however, be found wherever there is endo. This can lead to adhesions forming on or near the diaphragm or the organs in the abdomen. Occasionally adhesions are even found on the lungs, but this is rare.
    There are now several treatments that can be used during surgery to prevent the formation of adhesions. These have included the infusion of certain solutions into the pelvic cavity through the laparoscope, insertion of pieces of material such as Gore-Tex into the area, or the application of a methylcellulse barrier during surgery. These barriers are degradable and are absorbed by the body a couple of weeks after surgery. Most of the adhesions formed as a result of surgical irritation will form within this time period. The methylcellulose barrier acts to keep the surfaces from rubbing together post-surgically, and then it dissolves and is absorbed when it is no longer needed. These are marketed under the names Interceed and Surgicel, and they have proven to be very effective in reducing post-surgical adhesion formation. However, once adhesions have formed, the only method for treating them is more surgery. Fortunately, the development of surgery through the laparoscope and new adhesion barriers can reduce the chances of adhesions forming in the first place.



  5. pamela

    pamela New Member

    Well, can the endo surgery be performed in one day and then I could go back to work in a few days? I have always been scared of endo surgery. I have always had very painful and heavy periods. It just seems lately with the onset of FMS it has gotten worse. Today I don't feel well so I will keep this short. Again thanks for responding. I have been in the brain fog clouds today. Must have been something I ate last night. That is usually when I feel this way. God Bless Everyone Forever!!!!!!!!!! Pamela
  6. tandy

    tandy New Member

    You said you were going to have your tube tied???Have your GYN look around at the same time for Endo. I'd tell the Dr (if you have'nt already)That you get bad cramps,heavy bleeding etc... Those are all symptoms of endo,along with others.You very well could have it~ and the surgery is'nt too bad.But you'll need more than a day in my opinion~I've had the surgery 3 times so far,and each time it seems easier...but I still would say that you need 3-5 days to feel totally back to normal.(not that you'll be back to NORMAL.....having FM,you'll still feel like crudd!)Good luck on this! I have alot of the butt pain too.Its very annoying and painful.
    Best regards,
    Tracey
  7. pamela

    pamela New Member

    MUCH BETTER. WELL SO THE DOC. CAN TIE MY ONE TUBE AND ALSO LOOK AROUND? OKAY I AM GOING TO TELL HIM ABOUT THE BUTT PAIN AND HE ALREADY KNOWS THE MENSTRAL PAIN. HE PUT ME ON THE ESTROGEN PATCH. SO NEXT CYCLE I WILL TRY IT AND SEE. IF THE PATCH WORKS I WONDER IF THAT MEANS ITS LACK OF ESTROGEN AND NOT ENDO. OH WELL. LIFE HAS SO MUCH TO DEAL WITH. THANKS AGAIN...PAMELA HAVE A GREAT DAY!!!
  8. pam_d

    pam_d New Member

    I'm a Pamela, too. The exact pain you describe (and you describe it very well) is something I, my husband, and even my 13-year-old daughter have suffered occasionally. We've also discussed this with friends (obviously you've gotta be close friends!) and I think this is actually quite a common problem...not FM related. I think whoever called them rectal spasms is correct. I tend to get them in the middle of the night, my husband does, too, and they are horrible; I've had them bad enough to take a vicodin on occasion (and I'm someone who does not even take pain meds for FM) to get through it....you'll also see me rocking back & forth in a fetal position on the couch.

    I'm not saying not to follow through with your gynecological concerns, you should check out anything you are concerned about.....but don't worry unduly, I think this "butt pain" is a lot more common than we think & affects both sexes.

    Good luck,
    Pam
  9. Milo83

    Milo83 New Member

    Ok, I also get this, but rarely..Luckily, it's only about 3-4 times a year & yes, it is usually followed by gas..
    I never told anyone but my husband..Always thought it was just due to gas...
    Take Care.......Donna
  10. tandy

    tandy New Member

    mine is not related to gas!!at all.
    Mine is sometimes internal/anal pain,can be sharp.Other times its my tailbone area and my whole bottom will throb!!! Its terrible~I use heat and pain killers.I'd prolly do a shot of something if it were in the house!! The very warm baths help too. Pam~ yes the dr should be able to do that.(the two mentioned together)Acually I had just had my tubes done the year before I got the DX of endo. My mentrual pain became very bad,blackout type cramps,with diareah,and on a few occasions I'd have blood in my urine but no sign of infection.(so a couple different drs did'nt know what was going on.It turned out to be the endo on my bladder.) also pam....I think it was a hormonal patch or something your Dr gave you for increased PMS???a pill?? When I first complained of these worsening symptoms-I was put on the birth control just to see if that would help with the pain and symptoms.(It did'nt help at all~)Thats when he suggested a Laproscopy to have a look inside. I really did'nt want to have the surgery(I'm a chicken)So I asked him how sure he was that I had something going on.He said 98%.Well that was enough for me~ The procedure is'nt bad.The pain from the very small incision can be pretty sore for a couple days. I'd want to know myself~ If your having bothersome pain and increased PMS,heavy bleeding,have it checked out-your going in for a tubal anyway and its no more added pain.It'll take your dr 10 more minutes!
    Keep us updated~
    Warm regards,
    Tracey
  11. 2BPainfree

    2BPainfree New Member

    Very P-a-i-n-f-u-l!!!!!!

    I don't think these are related to "just" endo as my husband has had them also. But man, when they hit I jump right off the potty! Like a knife right up the wazoo! Is this what everyone is referring too?

    Endo.... I could be a posterchild for severe endo. 5 surgery's and still having problems, I'm actually having surgery again this Thursday to release ahesions and cut out any left over implants Ultrsound showed small amt of blood in my abd where I am having excruciating pain.

    I have slowly been picked apart, pc by pc. Now have a total hysterectomy at 38 yrs. I've been through it all even flying to orgeon to see a world famous specialist...this darn stuff STILL keeps coming back. I think the adhesions are causing the most pain now.

    My story is not that uncommon with women who have suffered severe endo, total hysterectomy and the endo still returns (yes, been on all types of hormones)

    As far as using interceed for reducing adhesions...the most recent studies have shown interceed may actually cause MORE adhesions because the adhesions are "Clinging" to it. The opposite of what it was suppose to do.

    The company that makes interceed has just come out with a new product which is a gel (like motor oil my surgeon said, LOL!) It will be interesting to see Thursday if the adhesions have grown on the old type of interceed
    They will be using the new stuff this time.

    As far as lasering goes...depending on the severity of the implants, laser is actually not the best method for removal. According to Dr. Redwine who is a worldwide authority on endo..he says the best way to ensure all the disease has been removed is by cutting it out not by ablation. I totally agree.

    The first two surgeries I had were each 4 hours worth, (YES..4 hours)of laser ablation. Each time the endo would come back within 8 months.

    The next surgeries were a combo of removing ovaries one by one, adhesions and then a hysterectomy...oh and I had ovary tissue grow back twice!!

    When you have severe disease the recovery can be very painful. This may not be the case with everyone, but certainly don't be surprised if you do have alot of pain. I would take at least a week off from work just in case (if you can)

    I wish I had known then what I know now....I would have gone straight to Dr. Redwine in Bend Oregon to have all the disease removed by cutting it out. I feel the severe adhesions in part came about from so much lasering.

    Just my opinion.

    Susan B.
  12. RedB

    RedB New Member

    Another reason for severe anal pain is an anal fissure. Basically, this is a cut on the muscle that stretches when you potty. It has nothing to do with FM, and does not really sound like anything that any of you are experiencing, but I know it can be different for different people.

    In my case, I was examined and diagnosed by a surgeon, and I put off the surgery for months. Shouldn't have done that. Surgery was fine, and completely solved the problem.
  13. pamela

    pamela New Member

    I WILL DEFINITELY MENTION EVERY THING TO MY GYN. WHEN I GO BACK. I'M GOING TO HAVE THIS HOPEFULLY THE WEEKEND BEFORE MEMORIAL DAY SO I GET AN EXTRA DAY OFF. WELL I WILL KEEP YOU ALL POSTED. THANKS AGAIN!!!! PAMELA
  14. s43

    s43 New Member

    I suffer it to not very often so does my Husband and he hasnt got fibro, so i dont think itsfibro related.Sounds like abuild up of gas or so i have always thought.Do you feel like bearing down.It seems more common than i thought. Hugs Sharon
  15. Chrissy2

    Chrissy2 New Member

    Hi there, everyone -

    I have also experienced pain in my lower back\sciatic area. It is common for me to get it before and during my period. This last time was the absolute worst for me. The Sunday before last, I bent down and OUCH!! Out went my back. A few days prior to this, I had started getting intermittent sharp pain in my lower left abdomen. By Sunday night, I was crawling on the floor to get to the bathroom. I missed almost a week of work.
    My family doc prescribed pain pills, which did nothing for me except help me sleep. I saw my chiropractor, who hooked me up to the machine that sends small amounts of electricity to the pain areas (forgot what that's called). That only helped for about 2 hours afterwards. The heating pad helped a little. Hot showers directed right at the lower back helped the best.
    By Friday my period (which was late) finally broke. Near the end of my period, the pain finally eased to the point where I could walk with only moderate pain. I think I might have endo. I will make an appt with my gyne soon.

    Thanks for listening - I'll be praying for all of us :eek:)

    Chrissy