hi all, i have had fibromyalgia and ME/CFS,for many years now.its been that long, that i no longer count the years. anyway,on tuesday this week,i went to see the rheumatologist who first diagnosed me with these conditions,as ive been having some new conditions that are showing themselves now. he said to me, that people who have fibromyalgia,most definately have under lying illnesses,that have yet to show themselves up. the last time he saw me,i was in a really bad way,very over weight and considering starting to use a electrical wheel chair,as i was,nt able to walk safely outdoors. all these years later it was discovered that amitriptyline was the cause of my weight problem,fuzzy brain ,and difficulties with breathing,plus the swollen tongue,and feelings of suffocating at night. but even after coming off amitriptyline tablets,and losing massive amounts of weight,the fibromyalgia pain remained in my body. this new appointment that i went to this week, was for a new problem that has come to visit me,and its to do with my fingers on the left hand. i am a right handed person,but have for the past 3 months been troubled at work while using the left hand.i also have the stiff spine,as always. the rheumy did hear a massive click,when i turned my head,so we know something is going on there too. ive had blood work done and both of my hands have been x-rayed.i get the results in 4 weeks time. the rheumy said that he believes i have wear and tear of the fingers,and by crikey i have been a grafter in my youth,so im not suprised by that. he was amazed that i still do my part time job,as was mentioned earlier because ,,,people with fibro often have illnesses that are developing ,and havent yet shown themselves up yet. i told him that what ive learned with my fibromyalgia is this. either the constant daily pain will make me go insane,or i can try to push the thought of the pain to one side (which is extremely hard to do),and focus on my job,and hobbies. ive chose to focus on my job and hobbies ,as im not ready to give in to this horrible condition just yet. anti inflamatory pills help,but do flare up my asthma, and make it difficult to breathe properly.so i limit myself to when i take those.which is only if the pain is in my neck,head and jaw. the fibro does still flare up, and crash my body, if i am stressed,and at the moment its the tax credits people who are making this happen to me,but thats another story,here in the uk at the moment. i know ive developed hay fever, and all the rest that goes with it,and now we are looking to see if i have arthritis of the hands. so this fibro and ME/CFS are not all in the mind.they are conditions that are telling us,something new is going wrong in our body,and most tests arent yet revealing what that something is. as regards why our pain signals are always switched to ON,my belief is that our brains could be affected ,as regards having migraine attack damage ,caused by having that condition for most of our lives. we know that in migraine attacks that our blood vessels become narrow,and we take medication to make them swell,so that the blood can get through to the brain properly. dont let constant daily pain drive you mad,and dont let people think you have a imaginary illness either.else that would drive you mad too. its a real illness that is saying,we have underlying conditions going on,and they need checking out. take care all,love fran.