Open Medicine Institute

Discussion in 'Fibromyalgia Main Forum' started by Raidtank, Aug 23, 2012.

  1. Raidtank

    Raidtank New Member

    Can anyone give me their experience with Open Medicine Institute and Dr. Andreas Kolgenik? I was told he would accept me as a patient. Been thru the ringer lately. Just came back from UCSF MS Center. Was told I do not have MS at this time, but a brain full of non-specific lesions, high chronic active EBV (for years now), with horrible bouts of fatigue/joint & muscle pain, and now the last year neurological symptoms that mimic MS. Diagnoses have been unknown inflammatory condition, encephalopathy, fibromyalgia and various others. Come to the conclusion myself I most likely have CFS/ME, but most doctors don't know S!!t about it. Any advice would be appreciated.
  2. happycfs

    happycfs Member

    Dr. Andreas Kolgenik is very real, and very kind. He is sincerely a fierce force in this community. I have seen him myself, and I have sent friends to him. Nobody has been disappointed. The biggest downside with him, is the biggest downside with most specialists: the price. He is expensive, and says that he will one day in the near future accept insurance, but he does not accept it now. If you can afford it, you will likely find a renewed hope through him for sure! He is fighting this battle for us!
  3. Raidtank

    Raidtank New Member

    Thank you for the info. I have a patient advocate through my insurance, I will fight them for reimbursement. Have any clue how expensive? Or should I even ask that? We are ok in the $ department, I just so want to get better. Been fighting this for over 10 years now. I remember asking years back when they said I had chronic epstein barr/fatigue if I could take anti-virals and was told no by a doc and a neuro doc. Now I see they are using anti-virals pretty successfully, so frustrating.