Opinions needed

Discussion in 'Fibromyalgia Main Forum' started by footballmom, Feb 27, 2007.

  1. footballmom

    footballmom New Member

    Hello everyone. I recently returned to work after being on STD for several months. I was diagnosed with FMS last march but as most of us, I've had this darn disease for many years. My Rhuemy tells me that he doesn't think I should be working. I agree but of course I'm stubborn and to be honest I feel almost Human right now. I know it won't last but am determined to try and work. Last week I went to my Primary doctor because I had a UTI and needed antibiotics. I can talk much better to my primary than I can to my Rheumy. The Rheumy is a good doctor but his bed side manner has a lot to be desired. Any way I told my primary what the other doctor said and asked his opinion on LTD and SDI. You see the Rheumy tells me I shouldn't work yet doesn't come out and say that he would back me up for LTD or SDI. My primary pretty much blew me off, he said that he doesn't think I could get disability for FMS although I have herniated discs, degenerative disc disease, arthritis in my spine, intersticial cystitis (sp)also. I was very discouraged. He also said I was too young. I'll be 48.

    Any thoughts would be appreciated.


  2. NyroFan

    NyroFan New Member


    It is good to hear from you again. I am so sorry that you are having all of those problems right now.

    If I were you with these problems I would try the SSD route. It takes so long (usually) and you might have to stop working before you file and make sure your doc puts in writing that you have all of that wrong.

    Good luck with it, Tess.

    Wishing you the best,

  3. KMD90603

    KMD90603 New Member

    First of all, I'm sorry you are having such a struggle with your illness. It sounds like your rheumy is right as far as not working. You've got a lot going on with your health, and depending on the job, it may only make it worse. However, it also sounds like you might want a second opinion. Has your rheumy outright said no about backing up your disability claim? If not, then you may want to ask him if he'd be willing to fill out the necessary papers. As far as your primary doctor though, it seems he is just looking at the fact that you are young and basing his judgement off of that, which outright sucks. I'm 24, so I can definitely relate to the frustration of not being taken seriously due to age. But, I only have ME/CFS going on. You have other health issues besides the FMS.

    In conclusion, I suggest you get a third opinion. You need a physician who is going to back you up and support you in your decision to file for disability.

  4. AllWXRider

    AllWXRider New Member

    My mom [71] has FM, I have CFS. We both have Epstein-Barr virus. Her doctor won't check her for anything else.

    My mom has had great success with systemic enzymes. She started with the Walmart "Rexall" enzymes and worked up to 7/day. It was at 6 / day that they started to help her. No herxing just plainly felt better. Getting up use to take a full 30 seconds, now it's ~5 seconds. She is helping my dad plant trees!

    "Forbearance" is also having help with Virastop. Its made by Enzymedica. My mom is going to try these next.

    Per William Wong N.D., systemic enzymes also dissolve scar tissue (perhaps you have some with the herniated disc), dissolve fibrin blockages that cause ischemic pain in FM, dissolve the isoprin coating of viruses, cleanse the blood, reduce inflammation...

    Enzymes don't seem to help me so much, but I found from a hair analysis that I have lots of the toxic metals: Lead, Cadmium, antimony and arsenic. Lead weakens the immune system. Cadmium interferes with the thyroid hormones. Arsenic shuts down enzymes, that's why it was a neurotoxin from WWI.

    I'm chelating these metals out.

    Cranberry is a great herb for UTI: it keeps the E. Coli bacteria from sticking to the bladder.

    Tumeric (curcurmin) inhibits EBV from growing.
  5. Shalala

    Shalala New Member

    Is there some reason you didn't try again with an atty?
  6. TerryS

    TerryS Member

    Hi Tess!

    Please talk to your rheumy and see if he'll support your disability. Sounds to me like he will since he's said that you "shouldn't be working". From what I have read, SS really gives a lot of weight to what your specialist says. And does your PCP agree that you are disabled? Just because he thinks you won't get the SSDI doesn't mean anything. He just needs to be in agreement with the disability.

    And, you're not too young. I've heard from a lot of people in their 30s and 40s that got SSDI (some of them even got it on the first try). From what I've heard, you need to have supportive documentation from your specialist. Also, you need to have all your medical records and other paperwork in hand when you go for your appointment.

    I had my PCP fill out a functional capacity evaluation. In it he states that I would be able to stand or walk less than 2 hours per day, that I could sit about 2 hours per day, that because of my dizziness I should not crawl, climb, be around moving equipment, drive, etc. He said that I have trouble grasping, typing, and writing sometimes because of FM pain and stiffnes in my hands.

    I am 46 years old with FM/CFS. I am on LTD based on my primary care physician's statement, but my LTD company wants documentation supporting my disability from my rheumy. They have also forced me to file for SSDI.

    I am seeing my rheumy this Friday. I am taking in the forms that my PCP filled out, along with statements from my family members, in hopes that my rheumy's statement will be thorough and supporting. My rheumy doesn't deny my disability at all, but he insists he can cure me and doesn't want to see me disabled. What I say to that is BRING ON THE CURE!!! While I'm waiting on his cure, I need him to support my disability...we'll see.

    By the way, I have gotten incredible relief from my pain (which was excruciating and made me feel almost suicidal) with Lyrica...have you tried it??? Now my biggest issues are the almost constant dizziness and fatigue...oh, well!

    Hope this helps somehow.

  7. Shalala

    Shalala New Member

    Gosh ... you would think this LTD and SSDI is coming out of their dern pockets!!! WE PAY INTO IT and your DR gets paid to take care of you.

    I am frightened because I am on STD and FMLA and the FMLA is only for 12 weeks and once you use it up ... IT'S CURTAINS for your JOB protection. So I am in a real dilema too ... I hope this Neuro I am to see Mar 1st diagnoses (confirms diagnosis) me and will back me for LTD. I hope my PCP will back me on the LTD too. My LTD sucks (50%) but it is better than nadda ;-) I am 53.

    I will probably be going back to work in a week or so unless the Neuro says otherwise. I may go back PT for a while to see how it goes? I will have to talk to the DRs and my boss. I don't think I can handle a full day yet. But I am bored sitting here. You can only watch so many old movies ... lol.

    (((((((((( Hang in there Tess )))))))))
  8. Shalala

    Shalala New Member

    I like your advice and your spunk. ;-) I wish I had some of it. I give up too easily or just "accept" things. I think we all need to champion our own cause and let the DRs now how we feel.

    You mention Lyrica ... I am taking that (for one week now) and I think I am a little better. I am also taking skelaxin among other goodies. I got a free trial week of Lyrica and am afraid when I go to get it refilled it is going to $cost a bundle$. I had to go off Cymbalta because of the cost (it wasn't helping me that much either). I also went on Ambien (sleep) and that has helped. I forgot what it was like to sleep all night.
  9. TerryS

    TerryS Member

    I don't know how much the Lyrica costs...my insurance covers most of it. All I know is that I was in horrible pain 24/7 and the Lyrica immediately knocked out the worst of it. What a relief! However, the Lyrica makes me feel "intoxicated". Better to feel drunk than suicidal!

    And don't ever just give up...that's what THEY want you to do! I'll fight my insurance company over $5.00...I swear I will!!! I've got nothing else to do all day now anyhow, so I'll fight 'em!!! It's OUR money, not theirs!

  10. footballmom

    footballmom New Member

    Thanks everyone for your comments. Sorry it took a while for me to respond. I have a side note about working....

    Friday was a horrible day for me at work......it wasn't so much about the pain, it was about the "fog" I made so many error's it wasn't even funny.....my boss must have caught 3 or 4 things that I did wrong. Stuff that never happens to me. I have a very detail orriented job and making errors is unacceptable. Ifelt so stuped. I've been stressing about this all weekend. I wonder of LTD insurance companies as SSDI take the fibro fog symptom seriously.
  11. Shalala

    Shalala New Member

    Hi Tess ... sounds like you and I are in the same boat hun. I think I am going to have to go for LTD. I have been off on STD and scheduled to return to work in a week. Even though I feel "rested" I still hurt. I know I am not going to be able to handle it when I return. I do customer service and it is very fast paced and you have to read off a monitor, etc. I can't afford to go on LTD (50% of pay) but I can't afford to get fired either. 50% pay is better than zero. My worry is ... I hear that even though we pay for this LTD insurance ... it is very hard to "get it". I also read somewhere you can get an atty if you are turned down. There again ... how do you survive financially while all of this wrangling is going on? BUT ... on 50% of my pay I think I will just slide in under the amount to apply for SSD. I also read that then you can apply for the SSD while on the LTD? I have to check this out more. I wonder if on LTD you still have your insurance coverage? Lots to check out and consider.

    Good luck Tess

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