OPRAH-talking NOW about her thyroid, sleep problems and palpitations

Discussion in 'Fibromyalgia Main Forum' started by ulala, Jan 5, 2009.

  1. ulala

    ulala New Member

    and her weight gain AND exhaustion.
    [This Message was Edited on 01/05/2009]
    [This Message was Edited on 01/05/2009]
  2. stinker56

    stinker56 New Member

    I flipped the TV on and saw her sitting there showing the photos where she was slim and on the cover of her own magazine complaining that she has gained 40 pounds since then and now knows the reason for the weight gain. It is due to her many viewers encouraging her to have her thyroid checked.

    Give me a break, with her money and ability to see any doctor she wants, don't you think that just maybe one of them would have checked out her thyroid long ago??

    She has just eat and gained the weight just like other ordinary people and she can't stand it so now she blames it on some disorder. I am sure there are lots of people in the world who have thyroid disorders that can't even afford to go to the doctor regularly and take care of themselves as they should.

    Maybe I am wrong but I just can't muster up much sympathy for her when there are so many who have so much more cares and troubles in their lives. Think about everyone who doesn't have insurance or money to go to the doctor when they desperately need too.

    Sorry to unload about Oprah. I know there are lots who think she is wonderful but I am not a fan. I didn't watch the whole show but I bet she didn't touch on how there are so many other chronic diseases that need the attention that her show would bring.

  3. munch1958

    munch1958 Member

    Most people don't have any noticable improvement on Synthroid which is what most doctors prescribe. If she has seen a conventional endocrinologist that's all Oprah would have been offered. See stopthethryoidmadness website for more info.

    When I changed from Armour to compounded T3, I dropped 30 pounds in 3 months will almost no effort. I had developed high Reverse T3 levels on Armour. While I think Armour is better than Synthroid, it does cause high reverse T3 according in some people according to board certified endocrinologist Dr Kent Holtorf. He's the creator of the FFC protocol.

    There are many pages in the library here by Dr Holtorf explaining why this happens. Some people just can't convert T4 into T3 which is the active version of the thryoid hormone.

    Unless you've been in someone's shoes -- don't judge them. Only you know how you feel. When we say how bad it is we want someone to believe us. It's the same no matter how much money you have or the access you have to the medical profession!
  4. Mikie

    Mikie Moderator

    Oprah is taking full responsibility for her health. She had been to multiple docs who didn't properly diagnose her thyroid problem. It wasn't until she got Dr. Roysen to help her that they found the problem. She isn't taking any meds now and says she is going back to the basics of a more healthy lifestyle.

    No matter how much money one has, it can still be difficult to find good docs who listen to the patient, care enough, and be willing to do some testing to try to identify problems. Many of us have had the same problems with docs and diagnoses. I'm glad she has found the problem and is using it to try to give important info that may well save lives due to changing lifestyles. Regardless of what illnesses, or genetic tendencies, on has, making healthy changes helps people to live longer and more healthy lives. She had several examples of people on her show who had remained more healthy several years after making these changes.

    I have nothing against Katie Couric nor Oprah but I'm not a huge fan of either. I do, however, give them both credit for using their outreach to help others become more aware of what can helps us prevent illness and get more healthy.

    Love, Mikie
  5. 2sic2mooov

    2sic2mooov New Member

    Just think guys, when you are a celebrity's doc there is NO way you want to be wrong. So if they pinned some dx on her and gave her pharmies to fix her, they all wanted to be right I am sure. Just like us, you know our docs dont want us piping up and asking too many questions, reading TOO much on things and asking them if they are SURE they have it right and maybe might have missed something.You know, so many docs have the whole "god" factor...wanting to be the one that cures or fixes things and some want lots of kudos for doing their job. Just like our docs, they want to fix us and send us on our way. When the "cure" isnt working or there IS no cure, they want to put us on a shelf.
    One thing I actually laughed at was the fact that they talked about getting all the docs together in the same room so they could all look at charts and records and brainstorm...like some freakin' little tea party that would NEVER happen for the general population. In my HMO we wait for months to see a specials. Fancy that we could gather 4-5 at the same time in the same room for an hour. Yeah, right.We can hardly get docs to team within an HMO when they could corrrespond with simple emails or even just look at a pts record to see what another doc or specialist is doing. I go in often and have to backtrack and try to explain what has been going on with other docs in the same building. Not a good idea when you sometimes dont even know what your date of birth is. :)
    I know docs dont have a lot of time when they are pushed to the limit to see a certain number of pts a day. The insurance companies have their hands tied to some degree. But, wouldnt it be nice to have a real team approach to our heath? In 8 years i only saw this when first became ill and the infectious disease doc was running the show and calling the shots. (until they realized that I didnt have anything "deadly or contagious". Then they shoved me back to have my GP deal with it all.)
    Money talks, but even with money...for the most part, you cant BUY your health!
    I do like Oprah, but give me doc Oz anyday!!!!!!!!!!
  6. sleepyinlalaland

    sleepyinlalaland New Member

    the phomena that is OPRAH causes such consternation in me. On the one hand, I do have to credit her openness and honesty, and I also admire her "mission".

    On the other hand...I kinda think she can't accept being merely human.

    She was so intent on psycho-analyzing WHY she is overweight, and what her excuses were in the past. I think maybe now she's hiding under the label of DEPRESSION. Can't she just accept that like MOST people she LIKES to eat and, well, it's hard to stop doing what makes you feel good!

    Her gurus were later on Larry King tonite and one of them made a simple statement about eating and obesity and I think it is true for most people. This is approximately what he said: We overeat because we live in a society with a LOT of food (mostly carbos) and we CAN overeat. Throughout most of history food was either scarce or just adequate so being heavy was limited to Royalty. Our bodies/brains are PROGRAMMED to over-eat if extra food is available; a little extra fat could see one through the next time of scarcity.

    Of course self-discipline and awareness are necessary today for a healthy moderation. But I kinda think Oprah's search for some subterranian REASON is just another distraction.

    Oh yeah and the part about making sure you have an advocate who can speak for you when meeting with your various health specialists AT ONCE so they can all be on the same page...what a fairy tale. (of course obtaining and sharing records with all providers is a good thing to do)

    I guess I shouldn't be so cranky about Oprah. After all it is show biz and the drama helps ratings. But it turns me off.
  7. greatgran

    greatgran Member

    on Larry King last night with Dr. Oz and Bob Green discussing her weight gain. First of all it took 4 doctors to find her thyroid problem . I didn't catch all about the thyroid but from what I heard it was hard to dx . So what about us who don't have the great doctors and money, maybe we are walking around with an undx thyroid problem.

    Anyway, she stated she used the thyroid as an excuse to eat again but with help of the right meds, the docs and her trainer she is going to lose
    the weight she gained.

    Also Bob Green stated behind all the weight gain were ususally emotional issues. Now I know why I am so darn fat, the emotional issues of this darn CFS.

    God Bless,
  8. tut90

    tut90 Member

    You are so right, the part about having an advocate, just blew my mind off. It's bad enough for me, that I don't have health insurance, and in the past when I had the money to buy personal insurance no company would cover the pre-existing conditions. She should be in our shoes for a while, trying to think of ways to pay for all the medications and test that we can't even afford. This is really a joke.

  9. munch1958

    munch1958 Member

    The Mayo Clinic uses the same approach where all the docs get in the same room then discuss and come up with a treatment plan that works for each speciality. I can't say much good about Mayo as I don't know of a single person that went to Mayo who actually was diagnosed or treated for ME/CFS, FM, Lyme and/or endometriosis.

    As far as Oprah goes, in the second part of the interview aired on Tue she states that she is off of all medications. If she truly has a thryoid disorder she would be on some type of meds for the rest of her life. It's not one of those things that you take for a short period of time then quit.

    Possibly they got her TSH (thryoid stimulating hormone) in the right range then told her she wasn't hypothryoid anymore. If she was on the right dose of compounded T3 for example she wouldn't be complaining about her weight. She would have lost it "IF" that was her true problem.

    Doctors who only diagnose and dose by TSH are incredibly ignorant. It's entirely possible to have a low TSH but have an abnormal T3 & T4. If they just look at TSH then cases of hypothryoidism are missed. If your adrenal glands are not checked all the thryoid meds in the world will not help. The adrenals need to get fixed first then the thryoid. This is what I've learned after being hypothryoid for over 30 years.
  10. Mikie

    Mikie Moderator

    I got really tired and started to gain weight. I was dianosed as hypothyroid. I took thyroid hormone and felt much better. After a couple of years, I was taken off the hormone and my thyroid started to produce properly on its own.

    I now test in the "normal" range but I take 25 micrograms of Synthroid every day. It makes the difference between my needing a nap and not needing one, despite being a very low dose. Thank God my docs understand that "normal" isn't etched in stone and the std. for everyone. In fact, the "normal" range has been changed.

    Many of the lab tests, run on a routine basis, miss problems. I think most docs run them and hope something will stand out so they can then run further tests. Problem is that these tests may or may not indicate problems and many docs, and insurance companies, will not delve further to find out what is wrong.

    Love, Mikie
  11. mmztcass

    mmztcass New Member

    On other boards there have been similar discussions. Sometimes I believe with having a thyroid problem can be very hard to find that balance.

    Whatever, I wish Oprah luck.

    Take care... :)
  12. Mikie

    Mikie Moderator

    People think celebrities have the money to get the best care. Some of the most expensive docs are not necessarily the best docs. Just like us, people with money have to find docs willing to look further than the standard tests to determine what is wrong and how to treat it.

    I am reading Suzanne Somers book on bioidentical hormone replacement therapy. She, and her docs, talk a lot about how most Western-trained docs miss a lot of what goes on in our bodies and how our hormones, including thyroid, work with one another to keep our systems in balance.

    One of her biggest points is that we patients have to take responsibility to find good docs and educate ourselves so we know a good doc when we see one. People like Oprah are used to throwing money at their problems. They pay for the best and expect the best. They assume they are getting the best when they pay for it. Ain't necessarily so.

    Love, Mikie
  13. Heyygirl

    Heyygirl New Member

    So, munch 1958, it is great to hear that the t3 alone had such good results for you. How long did it take for you to find the right dose?