pain and no diagnosis

Discussion in 'Fibromyalgia Main Forum' started by mrenee, Oct 17, 2002.

  1. mrenee

    mrenee New Member

    I always get pains in my arms,legs,shoulders,back,neck,chest,etc. I have been to see my doctor SEVERAL times. I have had x-rays,a CT scan, an MRI,blood tests,etc. he is trying to tell me that I have arthritis in my shoulder, but I know that I don't. I know that I have fibro. but it is hard to tell my Dr. I belong to an HMO and to go to any specialist you have to be referred by your Dr. I really think that I need to see a rhuematologist or nuerologist. My left arm has been hurting for a couple of days it is a deep pain. I have also had an echo. to rule out heart problems. It's so hard when I have pain in my left arm like this because I am a little worried that I could be having a heart attack or something. I hate having this pain and the Dr. acts like I am a hypocondriac because I am always coming in for something and I am only 33 years old. He has also tried to blame it on stress. I really have to go in and make him refer me to a specialist. I just wanted to vent.
  2. mrenee

    mrenee New Member

    I always get pains in my arms,legs,shoulders,back,neck,chest,etc. I have been to see my doctor SEVERAL times. I have had x-rays,a CT scan, an MRI,blood tests,etc. he is trying to tell me that I have arthritis in my shoulder, but I know that I don't. I know that I have fibro. but it is hard to tell my Dr. I belong to an HMO and to go to any specialist you have to be referred by your Dr. I really think that I need to see a rhuematologist or nuerologist. My left arm has been hurting for a couple of days it is a deep pain. I have also had an echo. to rule out heart problems. It's so hard when I have pain in my left arm like this because I am a little worried that I could be having a heart attack or something. I hate having this pain and the Dr. acts like I am a hypocondriac because I am always coming in for something and I am only 33 years old. He has also tried to blame it on stress. I really have to go in and make him refer me to a specialist. I just wanted to vent.
  3. karen2002

    karen2002 New Member

    You do need to ask your physician to refer you to a rheumy. You might try calling a few, ahead of time, and asking if they treat FM/CFS patients. When you get the name of one who does....ask you physician if he will refer you to that rheumy. This will save you time, money, and frustration of seeing another Doc--who does not find Fibro a valid diagnosis. Have you looked at the "Good Doctors List", on this site? My primary was a disbeliever---and I kicked him to the curb....and found another physician who does treat FM/CFS...after all what use was the unbelieving Doc going to serve. Since I have FM/CFS...it needed to be considered in any medical treatment I receive. I am using a D.O. from the Good Doctors List, as my Primary now--He treats with conventional meds, supplements, and alt. meds and methods. I am extremely happy to have received a diagnosis, as well as this great care. You don't have to put up with unsympathetic Docs...
    Best Wishes,
    Karen
    [This Message was Edited on 10/17/2002]
  4. fp3657@aol.com

    fp3657@aol.com New Member

    the first thing i would do is go to a rhumetologist.... second... stress can cause fibro....but if your doc dont listen to u find one that will and keep going until u do find one that will, i went to many doc's until i found ones that will listen and u feel comfortable with ... they r out their,, it's well worth the $10.00 co-pay or what ever yours is to keep going until some one listens to you and understands,,, i was in the same boat and didnt give up,,, until i wound and excellent arthritist rumetologist, and and good hmo primary,,,i hadand still have same symtoms but have been diagnosed w/ fibro/cfs,ibs,osteoarthritis
    dont give up....
  5. poodlegirl

    poodlegirl New Member

    I am 30 y/o. I know I have CFS but I am like you trying to get it dx'ed is a different story. Red tape of the hmo. Tired of the pain, I completely understand. Do you have any other symptoms?
  6. kats1978

    kats1978 New Member

    I know that many of us really don't kow wat to do anymore but have you tried a different type of doctor, maybe a intrest?
  7. mrenee

    mrenee New Member

    I have headaches all the time. Muscle aches and pains. pinching pains in fingers and toes. head pains,numbness,all kinds of aches and pains. It gets very annoying I try to ignore it most of the time. But sometimes I am just too tired and in too much pain to ignore it. It comes and goes. I am going to see if I can go to a rhuematologist that I found on the good doctor list. He is near where I live. If I can see him then I will take his diagnosis to my Dr. Maybe then he will refer me to a specialist in my HMO. I will have to pay the bill to see the rheumatologist so I can get a diagnosis. I am tired of wondering what is wrong and ignoring it. Oh I also have IBS, which I have had for a long time. My mother has MVP, and I have started having symptoms of this, but they did an Echo. and said that it was normal. I just wonder who read the Echo. This is all just very frustrating. Especially for me with 3 sons, I have to be busy and sometimes I can't. My husband and sons don't understand. I think sometimes my husband thinks that I am exaggerating or that it's all in my head. Thanks for replying to my post.