Pain level 12 on a scale of 1-10!!!

Discussion in 'Fibromyalgia Main Forum' started by Tigger57, Jan 7, 2006.

  1. Tigger57

    Tigger57 New Member

    As the title said, my pain level has been about a 12 on a scale of 1-10. This is the most pain that I have been it yet.

    I can't lie down because my back hurts so much... especially my shoulder blades and neck.

    I can't lie down on my side because the muscles in my arms hurt so much that I can't even touch them.

    I have no pain meds except the patch that I'm on that doesn't seem to be working.

    I see my rheumy and my PCP this week. She (the PCP) seems to pawning a lot of stuff off on the rheumy. He seems to think that it really can't be that bad. Can I just kick him really hard to show him what pain feels like?

    Hugs,
    Tigger
  2. MamaR

    MamaR New Member

    I have been where you are...in pain and the doc doesn't want to give any pain relief.

    I will tell you from my experience...it is probably time to talk to as many people as you can...look in phone book...whatever... to try to find a doc that specializes in fibro. Because your doc must not really care that you are in pain!

    I know in my phone book yellow pages...there are advertisements... and some say that they treat fibromyalgia.

    I was about ready to try one of them...when someone directed me to the doc I have now.

    It is So VERY frustrating to feel like there is nobody that wants to help!!! I know the feeling.

    I wish you could find one to help you.


    MamaR
  3. Cromwell

    Cromwell New Member

    ...you are in this amount of pain-are you able to get into the bath for a soak with epsom salts? When this type of pain kicks in, I know.......

    Hugz
    Crom
  4. Tigger57

    Tigger57 New Member

    I AM seeing the doctor that is recommended for fibro. It that's the best I get, I give up.

    Even the hot baths with epsom salts isn't helping. I walk like I'm about 90 and today's new symptom is the soles of my feel.

    I'm sorry if I offend anyone, but this just plain sucks. I have to work because I need the money, but even that isn't covering the bills. I'm not sure what to do at this moment. I would go hide under my blanket in bed, but it hurts too much to lie down. So, instead, I'll sit here and eventually fall asleep until one of the dogs wakes me to go out. Then I'll come back here and fall asleep again.

    Tigger

  5. toots2

    toots2 New Member

    Look for a pain specialist. Don't mess with rheumy's, family physicians, at least that's been my experience. I am on a low dose of morphine and feel better than I have in years. No high, no problems with it at all, and I haven't had to ever increase my dosage. Please find a pain specialist who understands pain and wants to help you. Toots
  6. Tigger57

    Tigger57 New Member

    not by much. I did nothing yesterday. Today I have to get laundry done or I have nothing to wear to work.

    Work. That seems to be part of the problem. By the time I leave there and drive home through stupid traffic on the highway, I cry and limp the rest of the way.

    Hugs,
    Tigger
  7. Sheila1366

    Sheila1366 New Member

    I agree about making a spot for you that is as soft as you can make it.No pressure on yor body is what you need.I use everything Ican that is soft and fluffy to wrap around my body when I sit in my big comfy chair.I put one of those body pillows behind my back with a heating pad and losts of blankets cause usally I am freezing when I hurt like you are now. Also cupping your hands over yor nose is a good idea,my dr. even told me that was a good thing to do to help you relax. And I know that in baby nurseries in some hospitals they do the same thing with a blanket covering some of the babies head and allowing them to breath in warm air that gently relaxes them so they can sleep.I did the same thing with both my girls and I do it for myself.

    It's a shame you have nothing strong enough in your medicine cabinet to help you right now.You have got to get with a doctor that really understand this kind of pain and is going to treat you respectfully.When a patient is in pain and the dr. doesn't treat it I find that very humilating and belittling.If they believed you they would treat you.Its obvious your dr. is out of touch with the real problems associated with FM.

    I hope you get better very soon,
    Sheila
  8. IntuneJune

    IntuneJune New Member

    Would you mind "giving up" the name of your rheumy??

    My son is on a flight on his way home after a year in Iraq. We were supposed to be talking to him now only to find out he has been delay until Saturday in the wee hours of the morning.

    Fondly,
    June
  9. jake123

    jake123 New Member

    I was diagnosed with polymyositis also. My rheumy (not the one who diagnosed me) looked at me and said people with polymyositis do not have pain. Bada-boom. What about people with FM and polymyositis. The doctor who diagnosed me gave me pain medication and even gave me pain shots.
  10. JLH

    JLH New Member

    I can really sympathize with you, Tigger. I am in the same boat that you are.

    I been in bed or my recliner all week, then today had to take my Mother out for her birthday today (she is 76). My daughter drove, thank goodness, then we had to go to walmart and were in there for 4 hours!

    I'm ready to die, my bones, joints, and muscles all hurt soooooooo terribly badly.

    Really hope you feel better soon.

    Much love,
    Janet'
  11. mystic14u2

    mystic14u2 New Member

    I don't know where you live, but going to a Arthritis or Rheumotologist would be your best bet. There are also Doctors now that specialize in Fibro/CMS. Severe pain can cause depression. You need treatment for depression, there are some good studies utilizing Cymbalta for FMS. You also need to care for the pain with a combination of Oxycontin and vicodin for break through pain. You also need some form of muscle relaxant. Join a health club that has a jacuzzi. You need to do some mild exercising regularily and soak in the jacuzzi for not more than 15 minutes. The jacuzzi needs to be at least 90 degrees.

    Hugs to you,
    Mystic14u2
  12. Adl123

    Adl123 New Member

    Dear Tigger,
    I'm so sorry you are in such bqd pain.
    I just want you to know tht I'm praying for you. I wish there were more I could do to help.
    Here's hooping your Dr. will help you this time.
    Hugs,
    Terry
  13. Tigger57

    Tigger57 New Member

    The rheumy did give me some pain meds and muscle relaxers. He didn't want to give me the muscle relaxers because I'm on a lot of meds that make me sleepy. He's afraid of me falling asleep and not waking up.

    I'm also coming off the patch because it hasn't been doing anything for me... which shows how tolerant I am of meds.

    No, I'm not seeing Dr. D'Arcy... frankly I did see him twice and thought he was an idiot. He told me that I needed to lose weight and I'd feel better. He's lucky I didn't punch him.

    I see Dr. Reardon. He's based in Warwick, but also goes to North Providence, East Greenwich, and Middletown. He's very wonderful and caring... not just of your pain, but of the "whole being". I know I may have eluded earlier that he might not be that great... that's not true... I was just in pain and needed someone to blame.

    I'm still in horrible pain and I'm very depressed. My brother and I sat down yesterday and he finally realized that I earn $600 a month less than I make to pay my MAJOR bills... not including food, gas for car or anything else.

    It's just to ironic to know that I'm working and in so much pain and still am not getting anywhere. There are days (like the last few) where I say "why bother". I guess I bother to have a roof over my head and a bed to sleep in.

    In addition to all of this crap, my rheumy wants me to see a renal (kidney) doctor because of the swelling that's in my body. He figures I've got a good 20 pounds of fluid in me right now and they isn't helping the pain at all. I'm on a diuretic, but my legs look like an elephants. I can't believe how deformed I look sometimes.

    Oh well.
    Tigger