pain meds for life?

Discussion in 'Fibromyalgia Main Forum' started by deedeej, Sep 14, 2005.

  1. deedeej

    deedeej New Member

    I read the board on the pain meds and I am in pain every day but because I have marfan and arthritus have not pushed for stronger pain meds. Now I see that I am not alone with my pain and there are so many of you who don't like to tell people about the meds you take or, am so tired of hurting everyday, My doctor is pretty good but is afraid of addictions. My question is. If we have pain everyday and, will have pain everyday for our lifetime, Why would it matter if we were in bed from pain or walking and addicted to pain meds?
    IF there is no cure????
    Why should it matter. The illness is a lifetime so should the meds not be a lifetime too??
    I just want to work without moaning, hurting and complaining.
    Really sore Deedee
  2. sunshine5050

    sunshine5050 New Member

    I SEE YOU HAVE HAD ENOUGH TO. THERE IS NOTHING YOU CAN DO FOR FM. SO IF A LITTLE PAIN MED GETS YOU THROUGH THE DAY WHY NOT. I JUST WISH THEY MADE A PAIN PILL FOR DAY TIME SO WE COULD KEEP GOING AND NOT HAVE TO GO TO BED. I AM LUCKY TO HAVE A JOB THAT IS NOT TO DEMANDING PHSICALLY.I AM IN PAIN DURING THE DAY,BUT I KNOW I CAN TAKE MY ULTRACET WHEN I GET HOME. I TAKE AN ULTRACET AT BED TIME AND I WAKE UP FEELING PRETTY GOOD. I AM GOING TO GET OFF EVERYTHING ELSE. I AM GOING TO EAT DIFFERENT AND EXCERSISE MORE.I HAVE NOTHING TO LOOSE BUT FAT,I HOPE. MY PRAYERS ARE WITH YOU.
    SUNSHINE5050
  3. KJ2003

    KJ2003 New Member

    The truth is, no one in pain should have to suffer. I learned from being on high-end narcotics (MS Contin) and then pulling myself off of them, that there is a big difference between being addicted and needing medication to improve your condition.

    For example, when I pulled myself off of MS Contin, I continued to be in pain and my condition deteriorated...it did not improve with time (several months).

    I'm now on Ultracet and Neurontin and I really don't mind if I do have to be on these medications for the rest of my life. I have no quality of life without treatment and this is something I have come to accept.

    You may want to ask your doctor about Ultram or Ultracet. Both are non-narcotic medications, although they act in the same capacity as a narcotic. They are not scheduled (controlled) drugs, which is why most doctors are more comfortable prescribing them. Plus, Ultram and Ultracet are the #1 prescribed medications for Fibromyalgia patients who experience pain.

    Hope this helps!

    Chin up,

    Kim
  4. Rosiebud

    Rosiebud New Member

    are not addictive if taken for pain - that is what doctors are saying now.

    I started taking a narcotic based med a year ago and my doctor assured me I wouldnt get addicted. I only take it when I am having a really bad relapse and then go on to the lesser pain killers when I get over it.

    I rarely go a day without painkillers but if I'm having a good day I will go for as long as possible without.

    You should speak to your doctor and tell him you will only take the strong meds when its absolutely necessary.

    Good luck

    Rosie
    [This Message was Edited on 09/14/2005]
  5. JLH

    JLH New Member

    This is a much debated topic. And ... I am torn.

    It's according to your age. If I were 70 I would not care to take them for life; however, since I'm younger, I dont want to build up a tolerence for them where they will no longer do their job unless you keep increasing the dosage time and time again.

    If you are truly in pain, they are not supposed to be addictive; however, I do believe that you build up a certain dependence upon them. And you body does too, that's why the same dose, or the same med, will no longer do its job after taking it for a certain time.

    I worry for myself, that if I get cancer, or some other horrific pain condition--like my father did when his leg became so diseased from diabetes that it needed to be amputated, and Oxycotin just barely helped his pain and he had never taken a pain pill in his life.

    I have Lortab to take for my back pain. I try not to take more than 1 per day.

    I'm only 54 and I have many pain-related conditions. What I do if for me, and me only. I do not suggest that anyone else have to follow my thinging--it's just my humble opinion!

    I try to deal with as much pain as possible. I take hot showers that help, use my trustly heating pad every night while watching TV, do bends and stretches, and just try to mentally block it out. When that fails, I pop the pain pill! And ... that usually happens at least once a day!!!

    I don't not yet what I will do for life. It's a big concern of mine that I have not yet figured out. With as many health problems as I have, I really don't think I will live to be very old--especially if I can't lose any weight. So, sometimes I think--why not be comfortable now if I'm going to die young? I don't know what to do. As I said, I'm really conflicted on this matter.

    But when I hurt to the point that I am crying, or about to cry, I can't resist and take a pain pill. Yet, I do endure one heck of a lot of pain before I get to that point. And ... I realize that .. that is not a way to live.

    Maybe I'll get some insight from the rest of the replies to this post.

    Hugs,
    Janet
  6. orachel

    orachel New Member

    ...and very very open and honest post here a few days about what meds people are on. I couldn't believe how generouse people were with information that is really personal. Maybe do a search for "pain"...lol, like that isn't in most posts, but don't remember what it was called, and it was really within last few days. Plus, there were a TON of responses, so number of responses should help u narrow it down.

    I'm new to chronic pain, and kindof in the same boat. I have terrible pain just about all the time. Strongest pain med I'm on is 50mg ultram and 6 mg Zanaflex, plus 1 mg Klonopin to sleep. Its funny, but when pain is bad and I take meds, I literally can't even tell I took anything! I called my doc to make appt to talk abt enhanced pain relief. He told me to go ahead and double ultram to 100mg over phone(not to exceed 400 daily), and that's already started to make a "dent" in pain...still bad, but where getting somewhere! Also, I have asked my therapist at aquatic therapy and my physical medicine doc for referrals to pain mgmt specialists...that usually means a pain clinic. What I have realized is that most of us who do take stronger or narcotic pain meds have gotten them from someone other than their rheumatologist or pcp, so Pain Center or clinic is good place to discuss the levels of your pain to see whats best for you.

    Here's to a low pain day!
    Rachel

  7. orachel

    orachel New Member

    you should see it any second now.
  8. matthewson

    matthewson New Member

    I try not to think ahead anymore and just live day to day. I am thankful everyday that I can at least knock down the pain enough with meds to function and continue to work part-time. I try real hard not to think about the future.

    Hopefully there will be new meds developed in the future that can help us. A lot of research is being done now on new FMS medications. A few new ones are in the works and if my tramadol and neurontin quit working, I am open to trying some new things. Right now, they have been working for a year and 1/2 and I get fairly decent pain relief.

    Take care, Sally