Discussion in 'Fibromyalgia Main Forum' started by debugg, Jan 2, 2007.

  1. debugg

    debugg New Member

    Hi All,
    I was diagnosed a few years ago with fibro and I cant believe how much I suffer.. and apparently allot of others too. my doc.'s give me oxi and its so strong but has too many side effects! Ive/they tried to get something that works but theres always a problem with one or the other?side effects or alegic. I dont know what to do now.. I'd like to know what others take? and if its helpful or if your scared of addiction as I am and if it HELPS?! I dont want to take something everyday but I can barely wait 4 hours with out taking a pill!!
    Please some insite for the new fibro girl on the block.. I know the doc's arent straight with me!
    just another fibro suffer
  2. kellyamos

    kellyamos New Member

    Hi Debugg. I am sorry to hear the pain you are going through. I also have Fibromyalgia aa well as RA. I used to take vicodan but it got to where it was not working. I found a great pain specialist a year ago and he prescribed Oxycontin. It helps me tremendously and allows me to have sort or a normal life.

    However everyone reacts differently to meds. What dosage are you taking? Maybe you could try to take a half of pill of the oxycontin. Maybe that will help to alleviate the side effects. I know it is frustrating to find the correct med and dosage to keep us somewhat comfortable.

    Good luck to you and let me know if the half pill helps.

  3. nightngale

    nightngale New Member

    I have only been given Tramadol so far, which really helps me and allows me to drive and get about if I only take 1 pill. This was after I was sure how I reacted to it. I usually only take 1 or 2 a day depending pain levels. Some days more. It doesn't seem to knock me on the but like other meds I took after surgeries. Maybe cause I was taking the max dose. Sometims I do notice that I get cranky when it wears off. Don't worry about addiction so much, you have a legitimate reason to take meds. My doc tried to explain once, well like: a heart patient has to take heart meds, forever, and that is not considered an addiction. You should not have to live in pain.
  4. debugg

    debugg New Member

    Thanks for sharing! I wish I could get over it.. I just keep fighting the paid med's.. I just worry what long terms effects oxicotin and percoset will have on me later.. you know the liver. I just had my first grandchild and I want to be around but I dont want to suffer like heck either.. but my doc's suck too. I need to find a new one but I want to resolve my med issue. Im thinking I could let the oxi go and try taking only percoset and see how that goes. Muscle relaxers help too though.
    Thanks again,
    Please pass on an input :)
  5. debugg

    debugg New Member

    Thanks! Your right I really shoulnt be worried about addiction and I needed to hear that! I just worry long terms on my liver and other organs. you know? Im going to try only percoset and see if I can live with that.. I dont know what Tramalol is but Im going to check it out. Thanks.. I thought Ive taking everything!lol :)
  6. HurtsToMove

    HurtsToMove New Member

    Oxycontin contains oxycodone
    Percocet contains oxycodone and acetaminophen

    For your liver's health, I would think the straight oxy would be better than percocets every 4 hours.

    Most side effects usually wear off within a couple of weeks, so see if you can stick it out that long. Or ask your doctor for a lower dosage.

    Another option would be something like Kadian or Avinza, which is time-release morphine. You only take 1 every 12 or 24 hours.

    Don't worry about addiction. You WILL be dependent upon the medication, just like a diabetic is dependent upon insulin. However, you need the medicine to improve quality of life, where addicts use it to destroy theirs. BIG DIFFERENCE!
  7. unbalanced

    unbalanced New Member

    Hey There Debugg,
    I have suffered for many years with pain, I have a great Dr now & good meds.

    My Dr prescribed me Kadian for 24 hour pain relief. This gets to the deep down pain & is time released, this is something that is taken 1 time a day.

    I was started on a lower mg. but it has gone up twice . So, it will need to be adjusted.

    This med works absolutely great & I don't really have any side effects, & because of being time released, I don't get the loopy feeling.

    However, I still take Norco for breakthrough pain, & Roxicodone too. But I do not have to take nearly as much of either of those as I have in the past!!

    Kadian is a Morhine. So hopefully this isn't something you are allergic to, I wish you the best!!

    Be strong, be healthy, enjoy life!!

  8. iggyangel

    iggyangel New Member

    I have been taking pain meds for a couple of years, and have suffered with guilt and shame for taking them..
    what you said really affected me,,
    that we are not addicted, I am dependent like a diabetic needs insulin.
    you know my doc said that to me as well, but I still fight w/myself about the pills..
    but they give me my life back..
    I actually am finishing my RN degree...
    thank you for your tender words....
  9. ETN

    ETN New Member

    There is a HUGE difference. I am a pharmacy technician but haven't worked in 3 years. It's been very hard adjusting because I loved my job and really miss it. I miss ME. I was always very sympathetic to my customers who would come in in pain and back braces and all of that. I could never understand tho how they did it. Now I am on the other side of the counter now and I know how they feel. I used to take meds only for my asthma most of my life and now it's ridiculous all the meds I take.
    But I do know there is a huge difference. If I hadn't taken my norco, vicodin or whatever I was taking at the time I would not have been able to get out of bed.
    You are not addicted. You need the medication.
    it's so frustrating for ppl that don't understand!!!
    :) hang in there
  10. PVLady

    PVLady New Member

    With a good doctor, I think you can do much better on opiates. I tried MS Contin for 9 months and it stopped my fibro pain cold after years of suffering. At the time I was almost bedridden, and taking MS Contin allowed me to get up, and out of the house. I was moving again.

    Unfortunately, I had to stop it due to side effects. I had no appetite and terrible constipation, also unknown gallbladder disease at the time that made it worse. I went on Subutex.

    FYI - if anyone ever needs to stop opiates please read about Subutex. You can at any time, transition from whatever dose of opiates you take to Subutex and have no withdrawals at all. No tapering, etc.

    I started taking Subutex 1 1/2 yrs ago when I stopped the MS Contin. Since it also controls pain, I stayed on a maintenance dose of 12 mg day. You dissolve this drug under your tongue 3-4 times a day. For me, it has controlled my fibro pain with less side effects. I also take Tylenol and occasional Ultram.

  11. HurtsToMove

    HurtsToMove New Member

    You are quite welcome iggy! I've been where you are and I know the baggage that the opiates carry. But you and I also know that they are the BEST pain relievers on the market. They are being prescribed more and more by compassionate doctors for chronic non-malignant pain.

    Work with your doc and express your concerns, but also know that you are very lucky to have an MD that prescribes necessary meds and doesn't say "take some Aleve".

    Good luck!
  12. shelby319

    shelby319 New Member

    Hi Debugg~

    I was also on the oxycontin and I found it worked pretty good for awhile, but a little loopy, so I had my Dr. decrease it to the 10 mgs twice a day and that worked fine. Then I had surgery and everything changed and I went into a flare to this day, and that was almost 3 months ago now. We are not addicted to our meds, but another drug we have to take on a daily basis, like if your taking blood pressure meds to help keep your blood pressure stable.

    Thats how I feel about our pain meds, not addictive just doing what they are meant to do. I do hope you can find what works best for you though, as it also took me along time to find the right dose or the right med to help me control this pain we all have. I take MS Contin now, and it works quite well for me, but I find any long acting pain med doesn't live up to its full potential, and thats why we need breakthrough meds which my Dr. now doesn't want me to use. He believes the time release should do the trick and I'm now dumb founded by his beliefs!!

    To Unbalanced....that is a strange name, yet it made me laugh as I feel that way most days!! Hehehehe...
    I did want to ask you if your taking the Kadian 24 hrs release, if it works better than the MS Contin every 12 hrs or so, and without any breakthrough meds. But I see you do take those. My reason is because now I'm going to see a pain management Dr. in another week and I was wondering if he would try the Kadian on me as well, but as with any time release med, we still feel we need B/T meds.

    Do you know why or how these drugs actually work in our system where the Dr's don't think we should need any other med for our pain? I was on the Oxy Ir's for breakthrough but now my Dr. thought they were too addictive..afterall..can we get anymore addictive drug than morphine? I just thought that statement was silly as we first off don't get addictive but maybe build up a tolerance to them, but I feel I need something fast acting to get me out of bed in the morning while my Ms Contin is taking affect or I'd be in bed a good hour and a half!!LOL!! If you could answer this for me I would greatly appreciate it.

    Take care and stay pain free, and please don't fear addiction with these pain meds!!
    Gentle hugs,
  13. unbalanced

    unbalanced New Member

    I "Created" Unbalanced because of the way I always felt also!! I do feel much better these days but, have the "unbalanced" days every now & then!

    Answer to your questions: Kadian works really well for me now that I'm on 60mg capsules. When I first started taking it I was on 30mg. It wasn't working as well as my doc thought it should so he put me on the 50mg, then raised it to 60mg & I really don't know why, that mg was working.

    Anyhow, my doc is a pain managment Dr. & tells me that anyone who takes 24 or even 12 hour pain meds need to take something for breakthrough pain!!! Kadian works well for that DEEP DOWN PAIN, but you still have the aches, stabs, & muscle pain.

    If your doc beleives you do not need B/T pain meds. Kadian (at the right dose) probably will work best. Like I said, I don't need to take as many of the other meds since using Kadian. I think everyone should have something for B/T pain, & not have to worry or suffer through pain because of one Drs opinion!!

    Maybe if you talk to your doc & really express that you are having persistent pain with what you're taking he will consider putting you on some sort of Hydrocodone.

    I wish the best of luck to you & sorry for not answering right away!!

    Hoping you All have MORE Pain Free Days!!

  14. shelby319

    shelby319 New Member

    I will do like you said and ask my pain specialist I see this week, about how these drugs actually work in our systems and about my breakthrough pain I have. Which is quite a bit these days as I live in the North East. And also other pain issues.

    The weather is terrible with rain, moldy, chilly and changes everyday, which isn't good for our bodies either!! Since Friday when I told my PCP that the Depakote wasn't working for a breakthrough med, and said I would discuss other options with my "other" Dr., he got a little annoyed and insecure, so he said he would start me up again with some breakthrough meds seeing the pain specialist would more than likely do that anyway!!

    A little strange isn't it? NOW, he agrees to give me something for the extra pain I have? I believe its always best to have another opinion, and apparently he got upset over that, even though he's the one who said I should see a specialist in the first place!!!

    I'm just so glad I found this site and get so much information from it, as it does help us with our options and choices along with who or what to see and do to help ourselves!! Thank you for answering me back, that was so special that you did do that for me, so I'm very greatful to you!!
    Gentle hugs and I hope your feeling fine and pain free today~~~

[ advertisement ]