Pain Mgt. Doc Said Narcotics Do Not Work with FMS

Discussion in 'Fibromyalgia Main Forum' started by JLH, Apr 8, 2003.

  1. JLH

    JLH New Member

    Went to my second visit with a Pain Management doctor today. She had given me Darvocet on the first visit and sent me to physical therapy.

    When I told her that the PT was killing me and the Darvocet did not help at all, she told me to continue the PT and try the water therapy (which is not covered by insurance) and that she does not give anything stronger than Darvocet for fibro patients. She said narcotics will not work for fibro pain, and sometimes if patients take them for fibro pain, they just get "rebound" pain.

    When I told her that I had other painful back and neck problems such as spinal stenosis, buldging disks, bone spurs, degenerating disks, pinced nerves, etc., she still said that she thought my fibro and Lupus pain were my main problems and Darvocet was it!

    I talked her in to letting me try Neurontin for the nerve pain, hoping it will help.

    Guess I'll be living in pain all my life! I do go to see a neurosurgeon regarding my back in May and I will ask him what he thinks about pain control.

  2. Mikie

    Mikie Moderator

    All pain is in the head regardless of its source. The brain processes pain signals and opiods can calm those pain messages. Our pain is amplified by Substance P in the spinal fluid but that does not affect how our pain can be managed through the use of opiods. Good grief, now I think I've heard everything.

    When my pain was so bad, before the Guai treatment and physical therapy had a chance to work, my Morphine was a God send and I never got high on it. Researchers highly suspect that Klonopin disrupts the pain signals in the brain and acts as a pain killer in addition to treating anxiety, RLS, sensory overload, tinnitus, and sleep enhancer. Neurontin may have similar properties.

    Find a better doc than this.

    Love, Mikie
  3. NewEnglander

    NewEnglander New Member

    Don't give up, that's what my mother keeps telling me. I know how scarey pain is. It makes no sense. But just keep telling the doctor you need help. you have to be your own advocate
    God Bless
    Lisa
  4. blondieangel

    blondieangel New Member

    Hi JLH ~
    I read your post and it just made my blood boil!!!!! What a load of crap! Run, do not walk, far far away from that doc and pain mgmt. clinic! I have everything you listed except Lupus and I have severe disabling chronic myofascial pain and IBS. The FM and CMP began after I was rear-ended on 2/28/00.

    I have been through 3 PT's - all made me SO MUCH WORSE!

    PM CLINIC ARE SET UP TO REHABILITATE YOU - the staff is not equiped to deal w/ chronic incurable pain...I'd be dead or at the ER screaming for relief if not for my narcotic pain meds!

    There is absolutely no reason why, in this day and age, that you should have to suffer. Period!!!!

    I hope you can find a better doc who understands FM!

    Best of Luck to you!!!!!!!
    Love,
    ~B~

  5. Bambi

    Bambi New Member

    (and I use the term very lightly) needs her head
    examined. That's why FMers commit suicide..they
    can't find treatment for their horrid pain! Don't give up! Madwolf is right, she needs to see a judgement!
    Hugs, Bambi
  6. Sandyz

    Sandyz New Member

    I agree with everyone else here, she doesn`t know what the hell she`s talking about. Go to someone else. I finally got put on neurotin, percocet and skelaxin and it has been a miracle for me. I have my life back. I`m up out of bed getting back into life.
    Don`t give up. Someone out there will help you and give you some realistic pain control.
  7. JaciBart

    JaciBart Member

    That is where I was when I started seeing Madwolf, (he is truly a Godsend, we need a zillion more like him, he listens and understands and actually gives you, the patient credit for knowing what you are talking about) my old Doc said the same thing, that opiates do not help fibro people and also he has said to me that no one with fibro needs anything like opiates, that I was his only pt on hydrocodone of all his fibro pts and everyone else was just fine on ultram!!!!!!!!!

    I fired his arse!

    PLease keep looking for a real and caring doc.

    Good luck,
    Jaci
  8. layinglow

    layinglow New Member

    Not much more to say---except don't give up, you needn't be in pain! A new Doctor is in order.
    LL
  9. KayL

    KayL New Member

    telling all the non-believers in the medical profession to spend 24 hours in my body, multiply that by each day of the week, come see me the next day and ask for relief, and THEN we'll see what they have to say about pain relief.

    Karen
  10. KarenL47520

    KarenL47520 New Member

    less than happy about it, having to rely on the pain meds my neurosurgeon gives me for my neck surgery, I continue to have pain and problems but I know very soon those will be cut off as well.

    I have appt with Dr. Oliver next Monday and I had gotten the Health Watch Newsletter and every doctor in that newsletter uses pain meds in their pts. I am taking that newsletter with me to show him and discuss using pain meds. I want to take part in my health care, let him know what I think would be benefital for me and not just blindly let him treat me with what he "thinks" will help. This is my body, it is my pain, he does not feel what I feel.
  11. JLH

    JLH New Member

    Where can I get a copy of the Health Watch Newsletter that you mentioned? I would like to take a copy to my doc, too!

    Thanks, JLH
  12. Mikie

    Mikie Moderator

    Maybe I should go back to school and become a malpractice attorney. Looks like there's plenty of malpractice out there due to failure to treat pain. Mikie the Mouthpiece; I like the sound of it :)

    Thank God for our members here so that we have more than just the ignorant docs to get our info from.

    Love, Mikie
  13. ladydi

    ladydi New Member

    I use to work at a pain clinic. I did paper work for
    insurance ect. But, I was familiar with the docs.

    The doc I saw there for my FM offered to:

    Order me a hospital bed, instead of narcotic

    See at first he tricked me, he asked me if I wanted a narcotic for my FM, well, of course I said yes. That's when he slandered me with his "offer"

    I had nothing more to say to him. His nurse was still in
    the room. If I hadn't worked there I would have probably cursed.

    I feel like you, I guess I'll be living in pain (hell)
    for the rest of my life. I would give up 20 years of good
    health for what a good pain med might do to my organs.

    Diane
  14. Dara

    Dara New Member

    She shouldn't even be in Pain management if that's how she really feels. I am on the pain patch and also take Vicodin for "break thought" pain. However, I will agree that so far no amount of narcotics takes the pain completely away, but it does make it more tolerable.

    Dara
  15. baby-bear

    baby-bear New Member

    use excuses as an excuse NOT to prescribe meds. I hope I made sense on this...also they ARE ignorant!!! I don't think medical schools teach very well on pain and opiods also. Just my two cents. JHL!!! You need to find another doctor and do it fast!!!!!!!!!! This is obsurd... Pammy
  16. KarenL47520

    KarenL47520 New Member

    Pt's guide to CFS and Fibro. It will take you to a page to fill in your mailing addy and it comes to you pretty quickly.
  17. blondieangel

    blondieangel New Member

    The panel of idiots i was made to stand before announced that I was an addict and to go to drug rehab.

    I think this was about 2 years after my rear-ended car accident that left me with with soft tissue injury, left sided neck, back, and hip injury, 3 bulging disc's (which I didn't know until 8 months later because my doctor refused to give me an MRI)I was bedridden the first year with pain and nausea, and the doctors still sent me to PT, & the PT"s STILL made me worse...NIGHTMARE!!!!!!! After the State Disability was up and I was still in severe pain, and panicked, unable to work, my Neurologist proclaimed, "I am now ready to diagnose you with Fibromyalgia". gee, thanks for the tip

    click my name, check my posts...for more info on the hell the 'doctors' put me through...(in addition to the attorney's)

    Listen to YOUR body...my gosh, I WISH I would have had someone advocating for me...I was in too much pain to know what I was doing, and so fragile...please don't do anything that causes you more pain like I did!;-)
    Love,
    Blondie
  18. basket21

    basket21 New Member

    I had a visit with physical medicine and rehab doctor to see if she could suggest anything to help me. During the conversation she said maybe a pain management specialist could suggest some helpful exercise plan I could do at home. She also said pain management "will get you off that morphine". It must be one of their required qualifications or something.
    She also said she couldn't do anything for me.
    Talk about a wasted visit eh?
    take care.......basket21
  19. abjessop

    abjessop New Member

    may be able to learn!!!

    I've had to fire a few dr's over the years for thinking I'm untreatable and not being willing to learn... and I must say, my current dr knows very little about fibro

    BUT if I bring him info showing what has worked for others in this mess, he's only too happy to try it on me (I'm so glad there are message boards like this! gives me lots of ideas!)

    As far as I'm concerned, as long as a dr is open minded, it doesn't matter what he knows or thinks he knows!

    Good luck, the open minded ones seem tobe hard to find.

    abby