Discussion in 'Fibromyalgia Main Forum' started by babygirl44, Jan 21, 2007.

  1. babygirl44

    babygirl44 New Member

    Hello I am afraid because I stay in so much pain and have for 3 years now and been on pain pills for 2 but don't they sooner are later kill you.
    I have tried not taking them and boy about 7 to 8 hours later I'm in so much pain and as the hours go by it gets worse and worse.
    What is the longest anyone has had to take them? I have sever FMS ( I was Dig. 3 years ago always stayed sick, hurt all over, ran fever all the time, but no one knew until 3 years ago.
    It ust to come and go now it's all the time 24/7) I also have several disc touching nerves in my back, had open heart surgery in 05 so now due to the cutting of nerves and braking of ribs the pain in my upper torso is %&%&&.

    But I'm scared of all the pain pills and I'm on a very strong dosage and they don't work that well anymore.Can some one give me info on this.
  2. fibro-chick

    fibro-chick New Member

    according to my doctor he has several patients that have been pain for 20 or more years. and a number of them have been on methadone for about 20 years. don't have any problems resulting from being on pain killers. you might want to talk to your doctor.
  3. kriket

    kriket New Member

    I honestly don't know what to tell you. Wish I could give you some advice, but I am just stumped on this one. Maybe someone can answer your question.

  4. ilovecats94

    ilovecats94 New Member

    I've been taking Lortabs for almost 2 years. I usually don't take over 3 a day. I don't have any disc problems that I know of. Just normal FMS pains.

    I do think a person develops a dependence to the pain meds. I know that if I don't take one I get really tired and sleepy and don't feel right, so I know I'm dependent.

    BTW, profanity in any form is not allowed on the site. Even the random letters and numbers and figures you have used isn't allowed, just thought you would want to know so you can edit your post and delete that and use a better word there.

    Take care,
  5. skikat

    skikat New Member

    i hope this helps. i have fibro(seveere case) also myositis, and 2 other diseases. i am a public speaker. i just have to pace myself as to when i can do these thins but i make sure that it is only for one meeting at a time. i have and aam now. been on painkillers for over 40 years. i have been on narcotics for over 8 years including morphine and percocet and codine. yu name it, i have taken it. i also take lyrica. and xanax. i would rather do this than have no life at all. and i WOULD have no life at all otherwise. i cant say what for you to do but i know what decisions i have made, and that is to live the best that i can with these diseases that there is no cure for. at first the pain meds made me groggy or sleepy. after a while, i got used to them. now i can go shopping for a couple of hours or out to dinner. garden a little too. at leaast it is a life. please do as your doctors tell you and get more than one opinion. hope this helps
  6. janie056

    janie056 New Member

    I feel the same as you at times. I've been taking some type of medication for many years. I wish I could give you some info but I too am looking for answers. Hopefully someone in the medical field can give us both some answers.
    I am not sure what %&%&&& stands for and I can't seem to find anything on the rule boards about using these symbols, but I'm sure many if not all of us have said a swear or two at time. OMG!
    I'm sorry but the last thing you want or need is someone telling you the rule board stating you cannot use symbols!
    You are feeling bad enough and if someone could please point this out on the rules, since I can't find it I would appreciate it.
    Lots of picking lately.

    Sorry and hope today you feel a bit better and get some answers.

    PS. This is all I could find on the rule boards.

    Use of explicit, obscene, vulgar, or abusive language will not be tolerated.
    [This Message was Edited on 01/22/2007]
  7. janie056

    janie056 New Member

    Bumping for rules I cannot find with regards to profanity, which I am still searching for.

  8. PepperGirl52

    PepperGirl52 New Member

    First off, I agree with Janie-forget about the usage of symbols! How could ANYONE know what you meant to say?? That is just as redundant as it comes!! It's so laughable, it's down right stupid!

    Anyway, to answer your question, I have been on methadone for almost 2 years now. I've been told by several doctors, including my rhematologist as well as pain managment doc that it is a very safe med. Vicodin, which has Tylenol in it, and other meds with Tylenol, can eventually harm your liver. Meds with lots of ibuprofen-type meds can eventually harm your kidneys, and too much aspirin in someone with a sensitive stomach can cause you to develop ulcers, and bleed out.

    You have to take the risk factors and weigh them against your own sensitivities, as well as what YOU need to keep yourself sane and comfortable!! I don't enjoy being on 8 different meds, but when I come down to picking which ones to stop, I just can't figure that one out, either, because they all serve a purpose in helping this pain.

    I, too, have degenerative discs, and have had FOUR back surgeries, including 3 fusions with hardware. So, I know what you're talking about. The back pain and the fibro aggrivate eachother in a way that people who don't have both could never know!

    Yes, the alternative means, like TENs will help, ice, heat, etc. But those are short-acting, and superficial. You need long-acting, systemic relief that stays in your system and works against the pain you're suffering. A good PM doc, or even a good internal medicine doc-which I have-can help you determine what's best for you. Having heart problems puts you in a whole other ball field, too.

    Good luck! And don't worry about using symbols-I've seen people say much worse here, and they didn't get kicked off! Someone woke up on the wrong side of the bed!! LOL!! PG
  9. NyroFan

    NyroFan New Member


    IMHO, but I would call doc and get something very strong for your pain. Why suffer?

  10. Mini4Me

    Mini4Me New Member

    Talk to your doc about your fears and google the meds you're on to find out about long term effects.

    I plan to be on heavy duty painkillers the rest of my life, and I'm not afraid. I'd be more afraid if I had to face the rest of my life without them.
  11. u34rb

    u34rb New Member


    What you are describing seems to be 'pain amplification'. This means that you take pain killers for the pain and the pain increases. So you take more and the pain gets worse, and so on.

    I've been there. I gave up the strongest dose of dihydrocodeine in ten days by taking a teaspoon of evening primrose oil each nightime. Get it in liquid form, capsules are too expensive. I hope that this helps.

    You can kick this pain and the dependance on drugs. I'm not offended that you use symbols to explain your frustration. I hope that you continue to post on this board on your own terms.
  12. Cromwell

    Cromwell New Member

    See my new post recommending a book that discusses pain meds and how to use them very safely.

    I think it would help you overcome your fears and really get some relief. It tells you what is safe dosage and how "more is not better" with some drugs etc.

    Please try and get a copy of that book as it will tell you all you need to know straight from a pain specialist.

    Love Annie Cromwell (I got my copy from the library)
  13. janie056

    janie056 New Member

    How are you tonight? Thanks for the response about symbols. I guess some people have a problem with them.

    Take Care,

  14. babygirl44

    babygirl44 New Member

    Thank you

    You all don't know how it made me feel to read all the responses and the symbols meaning very frustrated. u34rb what is primrose? and I take 10/500 lortab and have for 2 years so i figure the same dose for 2 years its just not working any more.the doc i have is not all that in pain mang. department but her thats all i could find that would just keep me from loosing my mind.

    For about a year i couldn' find a doc that would keep me pain free so i was doing good just to find this one.I'm not worried about the symbol ting any of you who have felt near the pain i have understand and thank you all for having my back skikat 40 years that makes me feel better 10s unit i have 2 of them metadone i tought that was for getting off of pain killers.
    A lot of docs in my neck of the woods in Tx don't believe in naroco my rhuemy doesn't give them and he is in dallas 2 hours away there is not one here.but hearing 20 -40 years makes me feel much better rust me i want to stay pain free a any cost the pain is unbareable 80% of the time.BUT I WANT TO SAY THANK YOU THANK YOU THANK YOU TO ALL OF YOU , YOU MADE MY DAY I STILL WANT TO KNOW WHATPRIMROSE IS AND I DON'T THINK THE MORE I TAKE IT'S BEEN 2 YEARS my doc says i've just been taking it to long so i'm open to any ideals he will give me what ever i want to try. SORRY IT TOOK SO LONG TO REPLY.
  15. u34rb

    u34rb New Member


    You can find out about evening primrose oil at:

    If you can find it in liquid form it's cheaper than in capsules. I took one teaspoon each night. After about one or two weeks you could try reducing the pain meds, until you are off them completely!

    It does take will power, but it's really worth it. I hope that it works for you.
  16. JLH

    JLH New Member

    I hate to hear that you stay in so much pain, because I am in the same shape! I am almost homebound due to the severe pain.

    A major source of all my pain is a pinched nerve in my low back that is inoperable.

    Can surgery help any of your back/nerve problems?

    Have you tried Neurotin or Lyrica for your nerve pain? I am on Neurotin and it really helps--doesn't get rid of it, but helps! Lyrica is a much newer drug for neuropathy pain and may work better.

    Anti-depressants are also known to help chronic pain. I am on Cymbalta, which was approved for diabetics for neuropathy pain. I am also diabetic and have neuropathy pain as well as my fibro and back pain .... and joint pain from arthritis and lupus .....

    If your Lortab 10 is not working as well as it used to, you can also take 600 mg of Motrin (or generic ibuprofen) inbetween your doses of Lortab.

    Don't worry about your pain pills killing you. You can develop a dependence upon them, as others have already mentioned. This means that the same dose will no longer help you and you keep needing more and more to relieve the pain. Some times, you need to change to a differene type of narcotic to get pain relief.

    That's why docs try to discourage the long-term use of narcotics.

    Have you tried any physical therapy which involved working in warm water or whirlpools? It may help you.

    I would not try a TENS unit without checking with your cardiologist. I also have heart problems, and I don't think I can use one because I have a dual chamber pacemaker.

    I certainly hope that you find a way to manage your pain. I do know from all of my pain problems that the more you keep moving, the better you feel. The longer I sit, or stay put in one position, the harder and more painful it is to get up and move and walk, etc.

    Keep us posted on how things are going.

  17. babygirl44

    babygirl44 New Member

    Thanks u34rb

    yes jlh i have tried Lyrica and Neurotin and anti-depressants made
    me more sluggish than i already am but i ahd soloft didn't like it felt like a zombie Lrica for me seem to speed my heart up took it again with out taking anything else to make sure and it was it neurotin i was leaning to one side put pain was still there.
    Thanks for all of your help
  18. babygirl44

    babygirl44 New Member

    Thanks u34rb

    yes jlh i have tried Lyrica and Neurotin and anti-depressants made
    me more sluggish than i already am but i ahd soloft didn't like it felt like a zombie Lrica for me seem to speed my heart up took it again with out taking anything else to make sure and it was it neurotin i was leaning to one side put pain was still there.
    Thanks for all of your help
  19. u34rb

    u34rb New Member


    You say you are "sluggish" and like a "zombie". If you are taking codeine based meds, or other opiods, then you may well be a little constipated. So any oil like evening primrose will help. So too may cod liver oil, which would also be a good source of omega just in case you don't have regular access to fresh fish.

  20. Aghllw

    Aghllw New Member

    I just wanted to let you know that you are not alone. I personally have never heard of someone dying due to long term narcotic pain pills if taken correclty. You also have to be careful of the other meds that you take with them. For me, I couldn't imagine my life without my pain meds. I take 2 Norco (10/325) and 2 Oxycontin (20 mgs)per day with a muscle relaxer. If you haven't tried a long acting pain med like Oxycontin, I would urge you to try it or at least talk with your dr about it. I love it!! And, they are used for long term, chronic pain.

    I have a dr here in Dallas, Dr. John East. He is a Pain Management dr and I absolutely love him! He is very good at pin-pointing the probs and getting you on the best meds for you. He is aggressive in treatment (i.e. injections, therapy, etc) however, very careful in the amounts and types of meds he gives you. He is in Carrollton.

    I have several herniated discs all the way down that they are calling Degenerative Disc Disease. I am actually having surgery on my C5-C6 (discectomy w/fusion) on February 7th!! Have 4 discs in a row that are terrible, but my surgeon says 1 at a time cause the others may never need any intervention!!! I know this will not take care of the pain that I feel from the Fibro and other probs, but I am hopeful that I will regain the use of my right arm!!

    God Bless you!!! Stay positive and never be afraid to ask a question here or at your drs office! You have a right to play a key role in your own recovery/treatment!! It is YOUR Body!!

    XOXOXOXOX ;-),


    [This Message was Edited on 01/23/2007]

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