Pain that feels like a sunburn????

Discussion in 'Fibromyalgia Main Forum' started by Annette2, Sep 17, 2003.

  1. Annette2

    Annette2 New Member

    I have this horrible pain on my back near my right shoulder - it feels lik an awful sunburn, but it's not a sunburn. I don't know what it is. I guess it's part of the FMS but can't figure out what type of pain it is and why it's like that. It was driving me crazy at work today - I just wanted to take my clothes off! It almost feels like it's irritated, but there's nothing rubbing it. Any advice or suggestions? Thanks.

    Annette2
  2. tazzycat

    tazzycat New Member

    You know I have that feeling when I take a shower sometimes and the water is not hot but it seems to sting: however, I haven't had just with clothes on. if fibro. has something to do with central nervous system maybe it is nerve endings
  3. fibrotigger

    fibrotigger New Member

    Do you use a heating pad on your back or shoulder? I have a bad habit of using them way too often for way too long and sometimes get that "burned" feeling. My DH tells me all the time how bad my back looks, but sometimes even with heavy duty meds, I still need that heat.

    Just a thought.

    Gentle hugs,
    fibrotigger
  4. opalgem

    opalgem New Member

    I think that I know what you are talking about. Is it like a small area at a time that just kind of burns? That is how I describe it too, like a sunburn. Sometimes I get it in a shoulder, sometimes an area in one leg, etc. My husband worries that it is MS because he gets the "burning" alot and it is a classic MS symptom. I have also read about other FM people that have this symptom as well so I feel it's just another thing the 2 DD share. I have not really found a solution except to wait it out. A cool pack on the spot helps some and a gentle rub in the area. Not much stops it for me though. And yes, the shower makes it sting and I have noticed having the air from a fan blowing to close will also make it sting like crazy.
  5. uddie

    uddie New Member

    Hello Annette2

    I am 61 years old...have lupus...fibro...heart surgery....10 mos later re-wiring of the sternum...and the list goes on and on.....
    I have the burning on the bottoms of my feet and my finger tips...it is so distracting and really hurts at times....I have been able to get NO answers from the docs and I think they truly do not know.....
    I wish you luck and if I find out anything I will let you know...

    Your Friend,
    Uddie
  6. joannie1

    joannie1 New Member

    Does this happen alot to you or did it just begin? Also, have you ever injured this area before? If it keeps happening you should check with your Doctor because there is something called reflex sympathy distrophy that has the same type of pain and discomfort. It is very painful and needs to be treated right away to try to stop this from spreading.
    Just a thought and hoep your feeling better.
    Love,
    Joannie
  7. Annette2

    Annette2 New Member

    To answer a few questions - this has been going on for a long time now. It doesn't bother me when I take a shower. I did not injure the area. I'm seeing my rheumy in a few weeks and will ask her. But I bet she says "I don't know". My husband rubbed Ben-Gay on it this morning before I went to work and so far it feels better. We'll see what happens as the day progresses.

    Annette2
  8. Skylar

    Skylar New Member

    The burning pain is on my mid and upper back, neck, arms to my wrists and on my face. Sometimes it feels like a bad sunburn but there is no redness. When it is really bad it feels like I have gasoline on my skin and it is burning like I been lit with a match. I also get a burning esophagus or windpipe. It feels like I drank gasoline or perhaps a flaming tequila shooter. Even though i don't drink any alcohol or coctails anymore, at least thinking about the tequila shooter makes me think that maybe I had some fun at aparty with some friends. LOL.

    The only thing that I found that works for me to lower the intensity of the burning pain is Neurontin. While the Neurontin is kicking in, I use ice packs on my body to try to trick my head with the burning pain and I eat ice chips for my windpipe. It is very bizarre because when I look at myself in a mirror, there is no redness. When I first starting having this, I would have my husband touch my skin to see if he felt any heat. My skin felt normal to him, but for me it felt like he pressed on a bad sunburn.

    For me, it's been attributed to the fibro. Just another weird pain sensation to deal with from this crazy fibro thing. I hope that this helps. Take good care.
  9. kim840

    kim840 New Member

    Good Morning,

    Wow, I've had times where from my waist down is so painful to touch. A skin sensation. I've just attributed it to FM but it's good to hear others have strange skin sensations too. I'll never get over how bizaar this DD is and how it plays out.

    Glad to hear you've achieved some level of help. Whatever works!

    Marcia
  10. Annette2

    Annette2 New Member

    Well, the Ben-Gay worked temporarily. I take Neurontin and that doesn't help it. Maybe I just have to learn to live with some of the weird sensations I get with this DD. YUK!

    Annette2
  11. Annette2

    Annette2 New Member

    I haven't gone to a chiro. My insurance doesn't cover it. I have been seeing a Nutritionist who is also a chiro and he told me that chiropracty (sp?) doesn't always help FMS. With all my other bills right now I'm not inclined to go for that at this time. I see my rheumy in a week or two and will discuss this with her. I have a lot to discuss with her. :)

    Annette2
  12. njch

    njch New Member

    anette
    I have had burning pain in both my leg from the knee to about 8 inches above for over a year . Now it is in the sides of my hips running down to about the knee. I have had fibromyalgia for some 20 years but never this type of pain from it. It feels like some one is holding a torch to me or just a horrible sunburn. Skin is cool to touch. Have tryed neurotin and P.T., many other things. No sucess. No one wants to relate it to the fibro but do not have any other ideas either.
    I am still looking for answeres. Can't tolerate most pain meds and that is not a good answer anyway.
  13. rdthewave

    rdthewave New Member

    when I have the flu like feelings........which comes and goes. It's as if I have a sunburn ....but it's all over not just in patches. Like I said it mostly happens when i have those flu like feelings.

    Tammy
  14. Tunes

    Tunes New Member

    Hi Annette,

    I get that quite often. I have osteoarthritis and cervical spinal stenosis, an impinged nerve.

    Some one once told me, this hot feeling, sensitive even to blow on, is caused by something going on with a nerve.

    Stood to reason. I generally head for ice, even though touching may be uncomfortable, ice seems to help.

    Take care,
    Tunes
  15. JNoble

    JNoble New Member

    I'm 15 years old, and have had no exposure to sun whatsoever on my back yet. Summers approaching and winter just ended.<BR>
    My back feels like it has a sunburn, but i clearly do not have a sunburn! Its not overwhelmingly painful, but its worrying me, because i have no explanation, and Ive never experienced it. Other symptoms i have right now (that could be completely irrelevant to the back pain) is a big headache, and a sore throat. Ive been sick for a few days now. My headache is most painful when i look right or left.<BR>
    I have had no medical problems, except some broken bones (nowhere near my pains). I haven't taken any needles recently, nothing.<BR>
    <BR>
    Please help, i don't want this to develope into something i cant handle...
  16. Elisa

    Elisa Member

    Hi,<BR>
    <BR>
    I get that too - some say it is a brain injury related symptom.<BR>
    <BR>
    But I noticed it seemed to often be associated with several things for me - food allergies (Celiac), some seafood, and sometimes high inhalant allergies - like mold.<BR>
    <BR>
    Anyway, it takes a few days for it to go away for me - but only if I avoid all things that could be allergens. I started with a list of the most common ones - like corn, soy etc - found online.<BR>
    <BR>
    Anyway, its worth a try.<BR>
    <BR>
    God Bless,<BR>
    <BR>
    Elisabeth
  17. cherylsue

    cherylsue Member

    I would see a doctor and get tested for Lyme Disease. Have you been in the woods lately and been bitten by a tick? If you suspect so, six weeks or so of doxycycline should be of great help. You may need to see a Lyme specialist, but if caught early it can be cured.<BR>
    <BR>
    Just a thought.
  18. Nanie46

    Nanie46 Moderator

    Lyme disease oftens starts as a flu-like illness with sore throat.<BR>
    <BR>
    Headache is a common smptoms also, and it can also cause burning type pain.<BR>
    <BR>
    Read this and make sure you inform your parents of all this info too:<BR>
    <BR>
    <BR>
    http://www.lymepa.org/Basics2007v1.2Rev.pdf<BR>
    <BR>
    <BR>
    http://www.ilads.org/lyme_disease/about_lyme.html<BR>
    <BR>
    <BR>
    http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf<BR>
    <BR>
    <BR>
    for testing...test #188 and #189 western blot IgG and IgM from Igenex lab in CA.....call for free test kit with prepaid fedex label...<BR>
    <BR>
    www.igenex.com<BR>
    <BR>
    <BR>
    http://www.drcharlescrist.com/testing.htm<BR>
    <BR>
    <BR>
    http://www.lymedisease.org/lyme101/coinfections/coinfection.html<BR>
    <BR>
    <BR>
    A great board for people with tick borne diseases like Lyme is www.lymenet.org...click on flash discussion.....sign up for free....click on Medical Questions board.....post your questions and read posts....<BR>
    <BR>
    then go to the Seeking a Doctor Board on lymenet.org and post asking for a Lyme literate MD in your state.<BR>
    <BR>
    If you have lyme, it is much harder to treat if it goes untreated for awhile, so check into this now.<BR>
    <BR>
    Many, many people test Negative on the Lyme screen also called the ELISA...Dr B says in his paper on Lyme treatment, page 7... <BR>
    <BR>
    http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf<BR>
    <BR>
    ...that the ELISA is WORTHLESS, so do not let a Dr rule out Lyme based on just this worthless test.....and that is what they usually do.<BR>
    <BR>
    Many people even have offically CDC negative Western blots, but still have lyme disease.<BR>
    <BR>
    Igenex lab in CA tests for many more bands than other regular labs, so it is possible to uncover some lyme specific bands on their western blot....even if it is CDC negative...those lyme specific bands can be a very important clue!<BR>
    <BR>
    You and your parents have lots of reading to do....good luck!<BR>
    <BR>
    <BR>
    <BR>
    <BR>
    <BR>
    <BR>
  19. MamaT1967

    MamaT1967 New Member

    that's what I call it. I usually get it on my entire back, waist up on whole torso or (rarely) my entire body. Skin is cool to touch, doesn't get red and I haven't found a link to anything specific that causes it. It goes away and compared to some of my other issues I haven't thought about the "whys" too much.
  20. rickj44

    rickj44 Member

    i get the burning on my thighs and under-side of my arms..the skin becomes sensitive, and clothes rubbing on it dont feel very good..i hear the nerves are sensitive , from the Fibro..