Painful Bladder Spasms, need advice.

Discussion in 'Fibromyalgia Main Forum' started by Bronagh, Sep 27, 2005.

  1. Bronagh

    Bronagh New Member


    I think i've talked about this problem before but can any of you really identify with me?

    The spasm wakes me up, not that i get much sleep, my bladder feels so full and heavy that i can hardly walk to the bathroom, i have to hold the bottom of my stomache.
    I dont pass much urine.

    Sometimes i think when i've had a bowel motion (sorry about this)the pressure is gone, i'm really not sure if that is correct.

    I started to drink more water during the day to see if i flush my bladder the problem will improve!!!! so far it has made no difference.

    I've had an ultrasound done two years ago and all is fine, my GP has no answer to it and has not suggested sending me for further investigations.

    I had my first visite with the Rheumy a month ago, he said the problem is linked to Fibro!!!! he could be right but i'm just annoyed in case it is a medical problem because i'm 55 and i'm wondering if Menopause is causing it.

    The pressure pain is very bad and mostly happens during the night.

    This problem started about three years ago, it waxed and waned, i'm hopeing it is caused by Fibro.

    Can any of you identify with me and do you really think it is caused by Fibro?

    Many thanks,


  2. Bronagh

    Bronagh New Member

    Sorry, i forgot to mention that i dont suffer with incontinence with this problem.

    When the bladder spasm wakes me up i dont pass much water.

  3. patches25

    patches25 New Member

    Hi, I wonder if an ob/gyn could help you with that. Maybe they could tell you more since that area is their specialty. E.
  4. EllenComstock

    EllenComstock New Member

    So sorry about the bladder problems. I've had a painful bladder and frequent urination for years. Have you seen a urologist for this? I also have FMS and interstitial cystitis (IC) is a common problem with this. IC is a chronic inflammation of the bladder and is worsened with stress and eating foods high in acid. The acid and stress definitely take its toll on my bladder. My urologist recommended a product called Prelief (it's just calcium and magnesium) and you can get it over the counter.

    If you would like to know more about it, let me know. It's helped my IC about 80%. I wish I had known about this product years ago-it would have saved me from a lot of suffering and sleepless nights. You should probably check this out with a urologist-preferably one who understands FMS if you can.

    Good luck.

  5. Bronagh

    Bronagh New Member

    Yes Ellen, i'd love to hear more about the problem, thank you.

    I haven't got the frequent urination but have all the other symptoms.

    My GP is female, i'm her patient about five years now, my old GP of thirty years retired, i have not much confidence in her.

    I had to push her to send me for an ultrasound on my bladder and when the result showed all was fine she just left it at that, i also had to push her to send to see a Rheumy, HOPELESS!!!!!!

    You would think her being a woman she would have more understanding, she puts all my problems down to weight and smoking.

    I'll give the calcium and magnesium a go, i might not get Prelief here where i live.

    Many thanks for your help.

  6. Bronagh

    Bronagh New Member

    I intend to go further about this problem, i'm due back with Rheumy in a months time so i will go into the problem in detail with him and explain to him that i'm concerned in case it is a medical problem.

    Thank you again for your reply.

  7. Bronagh

    Bronagh New Member

    Thank you Pam.

    Thank you for the link, i find this bladder thing difficult to cope with, its as if my lower half, bottom of stomache is permanently in a spasm:)

  8. Smiffy

    Smiffy Member

    This does sound like interstitial cystitis; please find help now - it can get much worse. I take Elmiron (it coas the bladder wall, but takes about 6 months to work), Detrusitol (UK name) to reduce frequency, Amitriptyline at night to aid sleep, & Prerelief with meals to alkalise them.

    In addition there is an IC diet - no citrus or other acidic fruit, no alcohol, spices, chocolate, fizzy drinks etc. I only ever drink still water or an unsweetened drink made of oats.

    There is an IC Network message board (US) A COB foundation message board(UK) - both are very helpful.

    I believe that IC can be part of the FMS/CFS "illness". For further information about this link, suggested reading is Claudia Craig Marek's 'Fibromyalgia - the first year'.
  9. srobins

    srobins New Member

    I agree with the other posters that this sounds like IC. I have it as well, along with FM, CFS, IBS, ET. I would go to a urologist. Take care.
  10. EllenComstock

    EllenComstock New Member

    Walgreen's carries it-I'm not sure where else. Shopping is difficult for me most days, so I order it from CVS on their website. It's sent directly to my house. It comes in bottles of 120 white tablets for about $12.00. Here is the info my urologist at the Cleveland Clinic gave me: you can take as much of this as you like as it is just calcium and magnesium. It will not effect any meds you are taking. Start with two tablets. You may have to experiment to get the dosage that helps you. You can also take some just before bedtime. I currently take four tablets at each meal as my bladder is so sensitive. If you drink anything between meals like carbonated beverages, tea, coffee, fruit juices, you will need to take a couple then, too.

    I was surprised at some of the foods listed on the high-acid list like mustard and yogurt. If you look up IC on the Internet, you should find a website that has a list of the high-acid foods.

    The goal here is to make your urine more alkaline so it isn't irritating the bladder. This will definitely help your bladder to heal, but remember that you will need to take Prelief daily for it to be the most effective. Prelief also has a website with more info on this product-I think they also have a partial list of high-acid foods.

    I think your doctor is behind the times and certainly not being very thorough. IC is quite common, especially for those of us with FMS. While an ultrasound of your bladder was a good idea, it will not show the inflammation caused by IC.

    Good luck. Let me know if this helps. I've suggested this to several other people here and they were helped like I was. Another suggestion-carry a bottle of Prelief in your purse for when you eat out.

  11. scrappnmom

    scrappnmom Member

    I also have bladder problems. I would feel the urgency to go and have to run to the bathroom. I went to a urologist. He had me see his physical therapist, who measured the strength of the muscles in my pelvic floor, which were very low. I am now doing some pt that is strengthening my pelvic floor and I am not having the urgency to go near as much. The muscles in that area help hold your bladder up and also when they are so weak the bladder spasms and causes the painful, or urgent feeling. The PT said that my muscles were so weak that my bladder had virtually no support from below. She also said that that would cause a lot of my back pain, especially when I stand a long time. It also contributes to the problem of constipation. You should see a urologist. My doc said that urologists know more about this than a gyn. does. Give it a try.

    LISALOO New Member

    Luckily, I got it 95% in control before CFS. You can also take a tsp of baking soda in a glass of water each morning, it helps alkalize the body. I found the two best things for me were a better diet, and the physical therapy, stretches that really helped the pain!
  13. Bronagh

    Bronagh New Member

    Many many thanks to you all, i've gotton more help here than i did from my GP.

    I suppose any brand of calcium and magnesium will do?

    I will follow all of your advice:)

    A strange thing happened today regarding the bladder pressure/spasms, tell me what you think.

    I bought a carton of light cranberry juice yesterday, forgot it was in the fridge, i decided to try it today to see if it would help in any way, i drank a glass mid morning and another after lunch and a small glass around 4:00 before dinner, the pressure fullness spasm has gone, maybe that is just a coincidence, what do you think?

    I dont have the frequent running to the loo at all, my problem happens during the night, the full pressure wakes me and i can barely walk to the bathroom, i have to hold the bottom of my stomache because the pressure is painful and i only pass a small amount of urine, are any of you like that?

    Thank you all for the help, i appreciate it very much.

    ((((((HUGS TO ALL))))))))

  14. dreamharp

    dreamharp New Member

    I get bladder spasms with declining hormones. Some people
    have been helped with Dr. St. Amands protocol with guaifenisen. Many people write that all their bladder conditions improve with the guai protocol. Mine did.
  15. ilovecats94

    ilovecats94 New Member

    I agree with srobins and I would go to a urologist. I have had what you are having and ended up with a urologist. He told me the pain I was having in bed at night was from having so many UTI's.

    When I get up at night frequently, I do usually have to go. But my bladder spasms during night/day started when I quit HRT back in '94. My family doc had me on Buspar, but it didn't help me much at all.

    Finally got on Detrol and that works really well for the spasms during the day, but I still get up a lot at night and nothing has helped that pain feeling like I have to go really bad and it never ends up being as much as I thought.

    I went back on HRT in '97 and quit again around 2001 or so. I started menopause around 39 and am 55 now.

    The bladder seemed to be my only menopause problem. Didn't even have many hot flashes back then.

    I'd see the urologist and see what he/she had to say. But remember, I'm still having the night time problem that you are and I take Detrol before I go to bed.

    Oh well... I just have learned to live with it. I just had another bladder infection on 9/17, after having gone well over a year without any.

  16. Bronagh

    Bronagh New Member

    Yes, i intend going to see a Urologist, might have to go on a waiting list, i'll check it out.

    Thank you all again.

  17. Mareeok

    Mareeok New Member

    ...I suppose any brand of calcium and magnesium will do? "

    That's incorrect. The majority of calcium products on the market make acid WORSE. So IC sufferers should be very careful what calcium suppliment you take. It's the type of calcium that is important. Prelief is calcium glycerophosphate that comes from lymestone. It works immediately on the foods and beverages you consume before the acid gets into your system to cause the problems.

    I worked for the the company that developed Prelief. Quit last May due to RSD/CRPS/FM. Look up the thread here entitled Intersticial Cistitis. There is info there regarding the use of Prelief. I suggest starting with a higher dosage (3,4, or more tablets depending how bad your IC is.

    You will also see info on Prelief on the IC webpage. You can also email me me if you like. the addy is on my profile.
  18. ilovecats94

    ilovecats94 New Member

    There is no email addy on your profile. Just thought you would like to know. Maybe the moderators deleted it?

  19. Mareeok

    Mareeok New Member

    Here it is.

    I deleted it. Thank you I love cats. I didn't know.[This Message was Edited on 09/29/2005]
  20. poodlemommy

    poodlemommy New Member

    i have this too. I saw a specialist and they ran tests showing the spasm in the bladder. He gave me medication that worked really well. It was expensive though and my drug plan got cut off. I didnt like how dry it made my mouth. but it did work. I find my bladder is worse when Im stressed. I just try to relax when I feel the spams coming so it wont last as long or be as intense.

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