Parotid Gland to Klutzo from Jan

Discussion in 'Fibromyalgia Main Forum' started by JP, Nov 4, 2002.

  1. JP

    JP New Member


    Hi Klutzo,

    I am not a doc and I can share a wee bit of parotid information due to my experience with parotid problems. As you know, the parotid is a salivary gland and some of the clinical symptoms arise from obstruction, infection and tumors.

    I experience obstruction. I went to a specialist the first time it was blocked. It can be quite painful. The specialist conducted tests and a CT and determined that my body was forming stones in the gland. They usually cause partial obstruction and sometimes a complete block. He also said that my oral anatomy was abnormal, consistent with small ducts, resulting in a possible chronic condition.

    I can have the ducts dilated (enlarged) which would be a temporary solution. I choose to use a warm compress, lemon drops, or other sour long lasting hard candies and ample water intake. If the gland gets infected or completely blocked, I seek medical attention. Believe me, you know when this happens.

    You can also have a secondary infection of the salivary glands from nearby lymph nodes. Lymph nodes also enlarge due to tumors and inflammation. Benign and malignant salivary gland tumors usually show up as a painless enlargement. As I understand it, malignant tumors can grow quite quickly and can also be painful.

    There are autoimmune disorders that affect the salivary glands too. I believe that Sjogren's syndrome is one of the diseases where the immune system attacks the salivary glands. Diabetics can also have swelling in the parotid glands and other salivary glands.

    So, many causes, many reasons. Your best bet is to see a specialist (ENT) to help you with this problem.

    I hope this is useful...jan


  2. JP

    JP New Member


    Hi Klutzo,

    I am not a doc and I can share a wee bit of parotid information due to my experience with parotid problems. As you know, the parotid is a salivary gland and some of the clinical symptoms arise from obstruction, infection and tumors.

    I experience obstruction. I went to a specialist the first time it was blocked. It can be quite painful. The specialist conducted tests and a CT and determined that my body was forming stones in the gland. They usually cause partial obstruction and sometimes a complete block. He also said that my oral anatomy was abnormal, consistent with small ducts, resulting in a possible chronic condition.

    I can have the ducts dilated (enlarged) which would be a temporary solution. I choose to use a warm compress, lemon drops, or other sour long lasting hard candies and ample water intake. If the gland gets infected or completely blocked, I seek medical attention. Believe me, you know when this happens.

    You can also have a secondary infection of the salivary glands from nearby lymph nodes. Lymph nodes also enlarge due to tumors and inflammation. Benign and malignant salivary gland tumors usually show up as a painless enlargement. As I understand it, malignant tumors can grow quite quickly and can also be painful.

    There are autoimmune disorders that affect the salivary glands too. I believe that Sjogren's syndrome is one of the diseases where the immune system attacks the salivary glands. Diabetics can also have swelling in the parotid glands and other salivary glands.

    So, many causes, many reasons. Your best bet is to see a specialist (ENT) to help you with this problem.

    I hope this is useful...jan


  3. klutzo

    klutzo New Member

    I did see an ENT, and all he did was scare the he** out of me and then dismiss me with a prescription for an acid blocker (which I did not fill).
    My parotid enlargement is mostly painless now, but I would never have even noticed it if it had not hurt so much in the beginning. It is only noticeable with feeling around my neck and noticing one side feels larger than the other. It's not big enough to see. The stabbing pains are what got my attention. The first 3 docs who looked couldn't even find what I was talking about.
    Then I took an hGH secretagogue for 2 months and that is when it enlarged just enough for my doc to feel it. hGH makes tumors grow, and that is why I'm scared. I'll ask the PCP when I see her again in December.
    These conventional docs always wait until it's completely broken and then try to fix it. What a poor way to run people's health care.
    Thanks for the info,
    Klutzo
    [This Message was Edited on 11/04/2002]
  4. JP

    JP New Member

    Hi Klutzo,

    Do you have an opportunity to see another ENT and request pictures and the necessary tests? Perhaps your primary care doctor can request these for you. Living with fear increases stress and you know the rest.

    Hope you can get the support you need.
    Take care,
    jan
  5. magic

    magic New Member

    I also have a blocked parotid gland and have had 3 operations on it all done under general anaesthetics.It still blocks when it wants and I end up looking like a chipmunk.Unfortunatly white wine brings it up so if I have some everyone can tell.
  6. contessa

    contessa New Member

    Ten years ago my face swelled up like a grapefruit. I spent 8 days hospitalized on IV antibiotics and another 3 weeks on oral ones. I couldn't even open my mouth to eat. To make a long story short, the antibiotics made me so sick for 16 weeks following hospital stay I developed pain, inability to walk, bowel problems. Couldn't even write my name because my hands turned into claws. For 10 years I tried to convince docs this treatment was the cause of my mystery disease. Have had two short relapses which cleared on oral antibiotics. Still no doctor would believe my story. Then blessed three years of remission. Until the bad pizza two years ago. Now all the pain and problems have returned.

    Downside of my hospital stay - the infection had gotten into the muscles and was traveling to my heart. Gone the other way and it would have hit the brain. Now I can't spit for crap, dry mouth is miserable, and knowing I no longer have 'sweet' breath is very embarassing. The new lemon or tangerine candies are the best. Also Orbit gum works very well for me - lasts a long time. Yesterday went back on Salagen..had to stop because I couldn't breathe. Hopefully, that problem was the asthma diagnosis. Want to try salagen one more time because it worked so well. Usually used for Sjokjens which I don't have.

    And I though I was the only one with this problem! It can be such a painful condition and needs immediate treatment when it does flare up. Nothing gets rid of it without invention (at least for me nothing works)!