Pat Palmer where can I buy my cytolog?

Discussion in 'Fibromyalgia Main Forum' started by tansy, Jul 15, 2003.

  1. tansy

    tansy New Member

    I ordered some from the allergy research group and they have since e-mailed me to say they can not send it here because it has to be shipped with dry ice. Should I have gone for the 30 dollar shipping charge (!) when placing my order?

    Really p****** off about this, in such a mess at the moment and did feel this might move some problems along.

    Cheers

    Tansy
  2. tansy

    tansy New Member

    I had ordered the cytolog through a UK site last time but perhaps this will be more successful.

    Today is muggy, not quite as bad as the heat but probably has the same effect on you ie everything feels glued up. Body just hasn't settled down and I think that's aggravating other problems. More hot weather on the way, it really has caught me out this year, used to reactions but never at this level.

    Did saliva test yesterday, now that was a challenge since I suffer from an almost permanent dry mouth. This was not helped by the fact I could not drink water for one hour before hand. Definitely prefer needles!

    Sorry to hear you could not get up to London but there's no way I would risk it at the moment so your decision does make sense. Must be so fustrating for you though.

    The nutri centre stock so many supplements, I was really impressed by the choice. Thanks again for reminding me about that.

    Take care

    Love

    Jean



    [This Message was Edited on 07/16/2003]
  3. PatPalmer

    PatPalmer New Member

    Yes, I got my Cytolog through the Nutricentre in London, Tel 020 7436 5122. Usual cost £18.40 + £1.75 p&p for orders under £50.

    They were out of stock 2 wks ago so had to wait a week for delivery - so worth it...

    Don`t forget Tansy, you get 25% discount if you have an ME charity Membership No.

    This weather`s been unbearable, drinking like a fish and weighed myself this morning and was 1 1/2 lbs lighter - positively melting away!

    Much better now it`s rained a bit...

    Love Pat
  4. tansy

    tansy New Member

    Good to know there's a UK source for cytolog and I have ordered some. Am looking forward to trying it out, if I get any benefit it will be great, could really do with something to help my body do it's job.

    Providing there's no reaction to it I can't see how this supp could do any harm.

    My son improved 90% and now he's getting even healthier, it's so great to see. It's been a mixture of what each of us has learnt, his sports mad friends giving him advice, and the Atkins Diet.

    He's going to need the benefits soon, then we'll know how much progress he has made.

    Love

    Tansy




    [This Message was Edited on 07/16/2003]
  5. PatPalmer

    PatPalmer New Member

    Like your son, my daughter`s doing very well too, she`s looking for ways to occupy her days now instead of hibernating in her bedroom.

    It`s wonderful to see this improvement in them, and have learned so much in the meantime too.

    Good luck with the cytolog, a friend of mine with FM & chronic Arthritis is also giving it a try, it`s going to be very interesting.

    Hope you have a good day tomorrow.

    Love Pat
  6. dolsgirl

    dolsgirl New Member

    Does cytolog help with fms pain or arthritis pain or both? dolsgirl
  7. PatPalmer

    PatPalmer New Member

    I have cut and pasted a piece of info on a trial carried out. A bit technical but very interesting...

    Pat.


    OA PATIENTS

    During the initial phase of the RA trial, several patients with OA asked to be included, because of the excellent results they saw on their friends or relatives. Since the Infopeptides had initially shown to be very effective in pain control regardless of cause, and because of its general safety and tolerance, we decided to initiate a parallel observation including OA patients.

    10 patients, all female, (average age 58.4 years) entered the observation. Duration of disease ranged from 6 months to 11 years, averaging 5.6 years. All patients were on a NSAID, and 2 had other medications when they entered the trial.

    OA patients were evaluated based on patient estimated scale of pain, where 0 would be total absence of pain, and 100 the worst pain.

    9 out of 10 patients reported a significant reduction of pain, and showed clinical reduction of inflammation, between 15 and 21 days after starting the therapy. The average response time was 16 days. After the initial three-month evaluation period, only 5 patients were taking NSAID's while the others were taking the Infopeptides as their only therapy. The only patient who did not report pain reduction of relief despite showing a clinically significant reduction of local edema and heat, had severe, deforming knew damage, where surgery was indicated.

    COMMENTS

    After the initial step, we concluded this colostrum product contains one or more immunomodulating agents that promote antiinflammatory cytokine-type activity resembling the antiinflammatory activity of Cytokines 4, 10, 13, 15, 16. Longer follow-up and laboratory support data will be necessary to determine whether or not it is possible to stop, or even revert to any extent the existent articular cartilage damage (this effect was described in vitro using Cytokines 4 and 10 on mononuclear cells of RA patients) (40).

    As expected from Biologic Response modulator, the effects of the Infopeptides are not disease-specific, allowing the organism to recuperate normal functioning patterns, regardless of the original immune system disease process. This hypothesis is supported by the good responses observed in both RA and OA. At present time, there are several other autoimmune processes that are already receiving benefit from this therapeutic alternative, with promising results.

    The results of this initial clinical trial are very significant, not because of the high level of clinical response of the whole group of patients, but also because of the sustained benefit and improvement on prolonged therapy. Its oral administration, low cost when compared to other current experimental biologic response modulators, and the absence of side effects are remarkable as well. Nevertheless, to us, as clinicians, the most valuable aspect of this new therapeutic alternative is its almost miraculous effect on pain relief....something humanity has always longed for.


    Unlike the commercially available interferon or other products, Cytolog™ is administered orally, and has been proven to be free of side effects or contraindications. No toxic effects have been observed after doses several times larger than the recommended ones. Since it behaves as a nutritional supplement, rather than a pharmacological agent, no adverse interactions with other medications have been observed, and it is possible to use it along with conventional established therapies. The initial reports in small groups of patients suggested its efficacy in processes like Rheumatoid Arthritis, Systemic Lupus Erythematosus, and AIDS-related intractable diarrhea, among others.
    [This Message was Edited on 07/16/2003]
  8. tansy

    tansy New Member

    So once again thanks Pat for yet more information, the more we get the better. We need this in order to make informed decisions. It strikes me that this is one supp that can be taken with any meds, ie no contraindications.

    Bumping so others can see it too.

    Cheers

    Tansy
    [This Message was Edited on 07/17/2003]
  9. dolsgirl

    dolsgirl New Member

    I was looking for an old message of mine & found this one from you. Thanks for the info. dolsgirl
  10. beckster

    beckster New Member

    cytolog. What is the best time of day to take it? What kind of things did you notice first about it???????

    You all across the pond there, is it an extra hot and muggy summer there or something? The few weeks I ever spent in London I thought were great weather wise; now, Iowa (where
    I am currently)can REALLY be hot and humid. Cheers-Beckster
  11. beckster

    beckster New Member

  12. tansy

    tansy New Member

    because I'm still awaiting delivery of my cytolog.

    I feel sure Pat Palmer can give you good advise.

    Does the main site on cytolog give you info on this? If not have you thought of asking advice via e-mail? I've got really good info doing this regarding concerns and dosages on other supps/remedies.

    Cheers

    Tansy